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Caregiver Resources

Information from the Centers for Disease Control & Prevention (CDC) on H1N1 (swine flu) and steps you can take to protect your family and those you care for and when to seek medical care.

Information to help inform and support people living with amyotrophic lateral sclerosis (ALS), often referred to as "Lou Gehrig's disease," and their families and caregivers.

Information on the abuse and neglect of children with cognitive, intellectual and developmental disabilities and how to help prevent and report abuse.

Information for families who may be considering adopting children with developmental disabilities such as Down syndrome, cerebral palsy or autism.

Information about research on quality health services for children.

Publication from the National Institute on Aging offers tips and resources on topics including dealing with diagnosis, choosing a nursing home and at home care.

Web site from the National Institute on Aging helps you find current, comprehensive Alzheimer's disease information and resources.

March/April 2009 Ask Medicare newsletter with information on subjects including Advance Directives; Help Paying for Drug Coverage; and the National Caregivers Library. This link opens a PDF document.

Provides information, tools and materials to assist the caregiver and their loved ones in making informed health care decisions.

A comprehensive Web-based service to screen for benefits programs for seniors with limited income and resources.

Information on caregiver support programs in each of the 50 states and the District of Columbia.

Resources for caregivers and links to organizations that provide assistance.

Information and resources for caregivers of people living with Alzheimer's disease.

Information and links to CDC's work with birth defects and developmental disabilities, prevention of disabling injuries and the health and well-being of individuals with disabilities.

Explains preventive care for children such as checkup visits, immunizations and tests and exams and provides guidance on related issues.

Information for parents and children with diabetes.

Information on the Child, Adolescent and Family Branch of the Federal Center for Mental Health Services, which promotes and ensures that the mental health needs of children and their families are met within the context of community-based systems of care.

Information and links to resources for caregivers of people with paralysis.

An online educational resource offering training opportunities for caregivers, teachers, mentors and counselors of individuals with developmental disabilities.

Links to a broad range of federal health resources available online.

DPC is an independent, nationwide, non-profit, patient-governed dialysis patient organization dedicated to improving dialysis patients' quality of life by developing awareness of dialysis-related issues, advocating for dialysis and pre-dialysis patients, improving the partnership between patients and caregivers and promoting favorable public policy.

Brochure describes ways to assess when a loved one needs outside care. It covers developing a care plan, organizing important documents and what you can do to give support.

Information for people with disabilities and healthcare providers on maintaining health standards.

The U.S. Equal Employment Opportunity Commission (EEOC) will hold a public meeting at 10 a.m. (Eastern Time) on April 22, 2009 to address best practices to avoid discrimination against workers with caregiving responsibilities.

Discussions of evaluating and choosing a facility, generating family consensus, resident rights, and dispute resolution in nursing home selection.

Nationwide database of Aging Network agencies available to help older adults with disabilities and their family caregivers access needed services and support.

Offers state-by-state help for family caregivers. Includes services for family caregivers, as well as resources for older or disabled adults living at home or in a residential facility. It also includes information on government health and disability programs, legal resources, disease-specific organizations and much more.

Provide caregivers with the basic tools, skills and information they need to protect their own physical and mental health while they provide high quality care for their loved one. Includes information on how to find help for caregivers - from financial assistance to home care to respite care.

Information from the FDIC on insurance coverage for accounts you are managing as a caregiver.

Advice from the Federal Deposit Insurance Corporation (FDIC) on how to prevent and deal with potential money problems when loved ones are ill.

Federally-funded health centers care for you, even if you have no health insurance. You pay what you can afford based on your income. There are health centers in most cities and many rural areas.

Information regarding fire safety for individuals with disabilities and their families and caregivers.

Communicating Effectively with Healthcare Professionals, a two-part series, took place Thursday, November 6 and Thursday, November 13, 2008 from 2:00 - 3:00 PM Eastern Time.

Federal government Web site with detailed information on government benefit programs.

Booklet from the Centers for Medicare and Medicaid Services examines topics such as how to find and compare nursing homes, nursing home resident rights and where to call for help.

News and information from the National Organization on Disability about health care access issues of particular concern to the disability community.

Health care resources for women, children, people living with HIV/AIDS, health professionals and others from the Health Resources and Services Administration (HRSA).

Gateway to reliable consumer health and human services information developed by the U.S. Department of Health and Human Services.

Fact sheet addresses common questions regarding Individual Service Coordination for individuals with Mental Retardation. Individual Service Coordination (ISC) is a service that individuals or families may use to obtain needed supports. Document is in Word format.

Booklet about informal caregiving (unpaid care given voluntarily to ill or disabled persons by their families and friends).

Paper examines family caregiving including caregiver employment, attention to other family needs, health and finances.

Contains information on various programs for families and children administered HHS, including a block grant program to help families care for children with special health needs.

Disability-specific and general information on hundreds of diseases, conditions and wellness issues.

This Locator provides you with comprehensive information about mental health services and resources and is useful for professionals, consumers and their families, and the public. You can access this information in several ways by selecting a State or U.S. Territory from the map or drop-down menu.

Sponsors research and training aimed at preventing mental retardation and related developmental disabilities.

Helps organizations enroll seniors and younger adults with disabilities with limited means into the benefits programs for which they are eligible so that they can remain healthy and improve the quality of their lives.

Provides support to physicians, families and other medical and non-medical providers who care for children with special needs so that they have access to a medical home.

Supports efforts to improve recruitment and retention of direct service workers who help people with disabilities and older adults to live independently and with dignity.

Resources for families, caregivers and professionals including where to find support, assistance and services.

Supports, empowers, educates and speaks up for the more than 50 million Americans who care for a chronically ill, aged or disabled loved one.

This award program was created to improve the quality of life of family caregivers by recognizing and supporting the efforts of non-profit community groups that work with them. The seven awards will recognize the current work of community agencies and other organizations that support family caregivers as a significant part of their mission. Deadline for submission of applications was April 24, 2009.

An online directory that offers resources and information to help wounded warriors, their families and those who serve them as they transition back to civilian life.

A guide for people with disabilities, benefits counselors, disability organizations and others on ensuring adequate and appropriate access to prescription drugs. Document is in Word format.

The Centers for Medicare & Medicaid Services (CMS) launched Ask Medicare, a new initiative to help family caregivers access valuable healthcare information, services and resources.

Provides detailed information on health plans, nursing homes, Medigap policies, contacts and Medicare.

Publications on mental health and disaster issues from the Substance Abuse and Mental Health Services Administration (SAMHSA).

Links to information on support services, caregiving organizations, care homes, special needs trusts and more.

Fact sheet regarding respite care, temporary care provided to people with disabilities in order that their families can take a break from the daily routine of caregiving.

Anyone who has Medicare can get Medicare Prescription Drug coverage. Extra help with co-payments and deductibles worth up to $3,900 per year is available for some people with limited income and resources.

Study of the extent to which states have changed welfare-to-work policies as applied to individuals with disabilities and caregivers. This document is in PDF format.

A nationally recognized center that has pioneered research, training and services for families in which a child, parent or grandparent has a disability (including physical, developmental or intellectual disabilities) or medical issue.

Links to many resources, including information on eldercare, long-distance caregiving and federal benefits programs.

Gives support to wives, husbands and partners of people who are chronically ill and/or have disabilities.

Fact sheet explains what adult day care is, how centers operate and what to look for in an adult day care center.

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Swine Flu: Information for Parents & Caregivers
Information from the Centers for Disease Control & Prevention (CDC) on H1N1 (swine flu) and steps you can take to protect your family and those you care for and when to seek medical care.
EEOC to Hold Public Meeting on Discrimination Against Workers with Caregiving Responsibilities
The U.S. Equal Employment Opportunity Commission (EEOC) will hold a public meeting at 10 a.m. (Eastern Time) on April 22, 2009 to address best practices to avoid discrimination against workers with caregiving responsibilities.
Abuse of Children with Cognitive, Intellectual & Developmental Disabilities
Information on the abuse and neglect of children with cognitive, intellectual and developmental disabilities and how to help prevent and report abuse.
Centers for Disease Control & Prevention (CDC) Disability Page
Information and links to CDC's work with birth defects and developmental disabilities, prevention of disabling injuries and the health and well-being of individuals with disabilities.
Fire Safety for People with Disabilities
Information regarding fire safety for individuals with disabilities and their families and caregivers.