III.
Implementation
Toward
a culturally competent medical model of
care
Outreach
and prevention programs can promote
healthy behaviors and facilitate
early detection of disease and disorders.
However, not all diseases and disorders
can be prevented; therefore, culturally
appropriate and cost effective treatment
must also be available for physical,
mental health, and substance abuse
problems. Treatment of Hispanic
patients/clients must move beyond
the medical model of care and examine
the quality of that care to practice
healing. To respond to the need
for culturally competent treatment
for Hispanic patients/clients, new
service models are being developed.
|
|
Treatment
of Hispanic patients/clients must
move beyond the medical models of
care... |
III.
Implementation Chapter Seven: Outreach
The
only way to reach the Hispanic community
is on a two-way street.
Even
beyond the barriers of language
and culture, attempts at effective
outreach to the Hispanic community
may profoundly challenge health
providers in varied and unexpected
ways. Strategies for developing
and bringing new health models,
education and access to individuals
within their own community settings
are an essential but largely overlooked
component of the health care system
in the United States. Community-based
organizations within Hispanics neighborhoods,
barrios, colonias, and other ethnic
enclaves provide a significant point
of entry and opportunity to expand
on any outreach effort you may be
involved in.
While
the health care system has established
some links to historically black
universities, colleges, and medical
schools, and through health-education
programs and African-American churches;
limited relationships exist with
the Hispanic community. In fact,
the Hispanic community has a completely
different institutional structure
when it comes to issues of health
and health services, a structure
with little organic or historical
connection to mainstream providers.
In America's barrios and colonias
there are no "Historically
Hispanic" colleges and universities
or medical schools and the Catholic
Church, with over three-quarters
of all Hispanics, sees its focus
on the spiritual aspects of life.
As a result, a network of hundreds
of local community-based organizations
have emerged in almost every Hispanic
community in America. For the past
30 years, these organizations have
acted as frontline advocates for
and providers of Hispanic health
care and social services, yet continue
to struggle for existence because
of limited funding.
|
|
Strategies
for bringing new health models,
education and access to individuals
within their own community settings
are an essential but largely overlooked
component of the health care system
in the United States.
...a network of hundreds of local
community-based organizations have
emerged in almost every Hispanic
community in America. |
Many of these organizations, and hundreds
of others like them, trace their origins
to the political upheavals of the late
1960s and early '70s, when Hispanics began
to assert themselves in bold, confrontational
demonstrations linked to anti-Vietnam
war protests, civil rights, and demands
for economic justice. Among the highlights
of the period were the emergence of Cesar
Chavez and the United Farm Workers Union
that organized in the West with a focus
on work-related issues. In the East, there
was the emergence of the Puerto Rican
Young Lords in New York with a focus on
meeting community-based needs.83
Interestingly, one of their first actions
was the seizure of Lincoln Hospital in
Harlem to demand that it become more responsive
to the health needs of the Hispanic community.
Equally interesting was the fact that,
even in the context of highly polarized
times, the New York public hospital system's
response was not to call in the police,
but to agree to some early, tentative
steps towards becoming culturally competent
and more responsive to the Hispanic population
that it served.
...community-based
health and social service organizations
have established histories of providing
linguistically and culturally credible
services within their own communities.
|
|
Still,
to a large extent the community-based
health and social service organizations
that grew out of this period of upheaval
were and still are a product of community
frustration at being denied access
to mainstream health services or resources.
Born out of community struggles, they
remain governed by community boards
and have established histories of
providing linguistically and culturally
credible services within their own
communities. It is this national infrastructure
and network that is the most appropriate
and sensible entry point for designing
and implementing health outreach programs
for Hispanic communities. The following
case studies and key concepts are
relevant to other situations. |
Case
Study
The
Latin American Research and Service Agency
(LARASA),
in Denver, Colorado established Project
CORE — Cancer
Control Through Outreach, Research, and
Education. In 1995,
CORE has aimed at increasing the number
of Latinas in
Colorado who are screened for breast and
cervical cancer.84
CORE
grew out of a needs assessment survey
and focus groups conducted within
the Hispanic community by LARASA.
Among the survey's findings: Latina
women are traditionally the care takers
of the family, but few health studies
focus on women, particularly Latinas.
While Latinas in Colorado were diagnosed
with lower rates of invasive breast
cancer and higher rates of invasive
cervical cancer than white women,
their five-year survival rates were
found to be lower in both cases. The
key program components included: |
|
CORE
grew out of a needs assessment survey
and focus groups conducted within
the Hispanic community by LARASA. |
- Holding
educational forums in both English and
Spanish
on the importance of early screening
and detection of
cancer for Latinas in local neighborhoods
and at a
northwest Denver elementary school.
-
Distributing written educational materials
to 1200 homes,
through 400 mailings, and at a statewide
conference
attended by 200 Latinas.
-
Providing 93 women with a clinical breast
exam or breast
exam and mammogram through use of a
mobile van
operating in targeted neighborhoods
within Denver's
Hispanic community.
-
Initiating a meeting of Latina women
who have survived
breast and/or cervical cancer.
-
Helping to bring the issue "out
of the closet" by
organizing and participating in an interview
with a Latina
breast cancer survivor broadcast on
local Spanish-
language television.
Case
Study
...Texas
health educators surveyed Mexican
Americans asking them what was their
primary source for health information.
|
|
In
pre-planning a community outreach
and awareness program on cardiovascular
disease in Houston, Texas health educators
surveyed Mexican Americans asking
them what was their primary source
for health information. Thirty-five
percent identified their physician.
Nearly 50% identified some form of
mass media (TV, newspapers, magazines,
radio). The planners then used the
survey findings to design a Spanish-language
media program, El asesino silencioso
(The Silent Killer) that linked television
programming and other mass media with
credible medical authority.85 |
Case
Study
The
effectiveness of the program was confirmed
when a number of the kids’ parents
began asking for and receiving instruction
on how to prepare these healthy Hispanic
recipes. |
|
In
1996, in New Mexico, Youth Development,
Inc. (YDI) was able to move a youth
outreach program from a gym-based
after-school setting to its own
community training center, a converted
2,000 square foot residential house
in the south valley section of Albuquerque.
Since many of the twenty-five 9
to12 year-old students YDI worked
with each year were "latchkey"
kids (children who returned home
from school while their parents
were still at work), the organization
was able to utilize this house as
a training facility for home safety
and nutrition. Along with basic
instruction on safety hazards such
as exposed electrical plugs, they
also instructed the children, many
of whom already cooked for themselves
and their younger brothers and sisters,
on how to safely prepare healthy
and nutritious Hispanic meals. Along
with showing them videos on nutrition
and health, and providing recipes,
YDI staff and a volunteer chef also
gave them hands-on cooking instructions
in the center's kitchen. The effectiveness
of the program was confirmed when
a number of the kids' parents began
asking for and receiving instructions
on how to prepare these healthy
Hispanic recipes.86 |
Case
Study
An
example of positive role-modeling
took place in Chicago where, beginning
in 1992, the Pilsen-Little Village
Community Mental Health Center provided
an after school and summer school
program for children whose families
were in treatment for substance abuse.
The range of activities included drama,
poetry, and art therapy workshops.
Mother's Day poems that the children
composed were read to their mothers
at a special family event. Thirty
9 to12 year-old children also participated
in the Great Chicago River Rescue
Day Clean Up of the I&M canal
in 1996 along with older Hispanic
teens from other parts of the city.
At a subsequent picnic these children
heard a steel band and were taken
on canoe rides by a Hispanic river
guide who became a favorite adventure
career role-model for many of the
children. Other nature-oriented field
trips included bus and van visits
to the Indiana Dunes and Illinois
forest reserves. |
|
...in
Chicago . . . Pilsen-Little Village
Community Mental Health Center provided
an after school and summer school
program for children whose families
are in treatment for substance abuse.
|
Case
Study
In
Los Angeles, youths were taken on
a field trip to Kaiser Permanente's
Sunset Hospital in Hollywood. There
they learned about health care issues,
saw how a hospital works, and met
with physicians, nurses, a physical
therapist, and other health care
professionals. After the tour they
all expressed their desire to work
in health care. After a similar
tour of the UCLA campus, all the
youngsters announced they wanted
to be college students and health
care providers. They were told they
could do both.
As
a result of Kaiser Permanente's
participation in this project, the
East Los Angeles Multicultural Area
Health Education Center (MAHEC)
was granted funds to provide childhood
immunization services, and began
to consider other ways in which
it, as a health care institution,
could participate in preventative
and outreach role-modeling opportunities
for Hispanic and other youths from
underserved communities.87
|
|
In
Los Angeles, youths...learned about
health care issues, saw how a hospital
works, and met with physicians, nurses,
a physical therapist, and other health
care professionals. |
Case
Study
Hotline
promotion is conducted primarily through
Spanish-language media, including
radio, television, newspapers and
magazines, and by public service announcements
and interviews highlighting the services
provided by the hotline. |
|
The
National Hispanic Prenatal Hotline
(NHPH) (1-800-5047081) provides outreach
to over 3,000 Hispanic consumers a
year interested in information about
pregnancy and prenatal care and offers
referrals to local prenatal care services.
Hotline promotion is conducted primarily
through Spanish-language media, including
radio, television, newspapers and
magazines, and by public service announcements
and interviews highlighting the services
provided by the hotline. NHPH is staffed
by bicultural, bilingual information
specialists who use the language the
caller feels most comfortable speaking.
The information provided, both verbal
and written was free to consumers
and individualized to the callers’
needs.88 |
Important
Points for Developing Outreach Programs
Key
Concept
To
earn confianza in a targeted community
find out who is respected in the
community.
Don't
assert your agenda, instead listen
for the community's agenda —
what people are asking for —
and assign your priorities based
on their needs.
...outreach programs must demonstrate
a capacity and willingness to allow
community priorities to guide them.
Spanish-language
signs, educational materials, and
videotapes do not work as well when
they're simply translated directly
from English.
If
a patient feels that the provider
has violated the rules of respeto,
the patient may terminate treatment.
|
|
- To
earn confianza (trust) in a targeted
community find out who is respected
in the community. Ask your patients,
your staff, business owners, clergy,
members of the media, and teachers
who are the respected leaders
and agencies that serve the community's
needs.
- Remember
the value of personalismo (familiarity).
Go to local leaders and ask for
their opinions about what people
in the community most need. Ask
them who is already helping with
that, and what outreach resources
are available. Ask for advice
about who you should work with.
Don't assert your agenda, instead
listen for the community's agenda
— what people are asking
for — and assign your priorities
based on their needs.
- To
work effectively with community-based
organizations, outreach programs
must demonstrate a capacity and
willingness to allow community
priorities to guide them. They
must earn the community's trust
or confianza; reach into the community
through existing, respected groups;
select culturally relevant media
and/or materials to convey their
messages; and, target whole families
with understanding and respect.
- To
effectively meet the needs of
Hispanic communities, health outreach
and promotion programs should
also target the specific community
or Hispanic subgroup they seek
to serve. Spanish-language signs,
educational materials, and videotapes
do not work as well when they're
simply translated directly from
English. They have to be developed
specifically for the target population.
The person(s) developing the materials
should be familiar with the language,
literacy level, and culture of
a specific target group and should
have the materials reviewed by
members of the target audience.
Providers must be open receivers
and listeners of "culture"
and its dynamics in the delivery
of health care.
- Respeto
(respect) dictates appropriate
deferential behavior toward others
on the basis of age, sex, social
position, economic status, and
authority. The provider enters
into a reciprocal interaction
when treating an Hispanic patient.
If a patient feels that the provider
has violated the rules of respeto,
the patient may terminate treatment.
Younger providers, even though
they will be awarded respeto as
authority figures, are expected
to be especially formal in their
interactions with older patients.
Formality is a sign of respect,
but should not be confused with
emotional distance.
|
III.
Implementation Chapter Eight: Prevention
The
great risk is in not making the effort
What
is Prevention?
Prevention
is important in lifestyle choices
for health behaviors that may reduce
chronic health disorders, eliminate
some infectious disease, and deter
mental health and substance abuse
problems. The purpose of prevention
is ultimately to change behavior,
the social and environmental norms
that support unhealthy behaviors,
and to foster use of systems of care
that can detect health conditions
before problems arise. Prevention
is most effective when the activities
are culturally relevant and address
social norms, attitudes, and values
which may contribute to the targeted
behavior change. |
|
The
purpose of prevention is ultimately
to change the cultural and environmental
norms that support unhealthy behaviors.
|
To
date, many prevention models have been
developed and widely distributed for the
mainstream culture which are egocentric
or individual-oriented in focus. Few prevention
models that are sociocentric or group-oriented
in focus have been developed and validated.
It is essential to understand the differences
in the focus of the orientation because
it helps to understand what is generally
important and how importance is manifested.
Although many of the factors appear to
be similar, the differences are often
found in the emphasis and related behaviors.
For instance, most cultures may value
family; however, the behaviors expected
may be very different.
Egocentric
values tend to place emphasis on autonomy,
success of the individual and independence.
Thus, an eighteen year old daughter from
an egocentric culture may value her family
and go to college across the U.S. with
little familial contact even though she
wants to work in the neighborhood library.
Reflective of the individual-oriented
focus, she may believe her good grades
and a high income job will mark her success
and fulfillment of her family values.
Alternatively,
sociocentric values tend to place emphasis
on the good of the group. An eighteen
year old daughter from a sociocentric
culture may value her family and go to
work in the neighborhood with daily familial
contact even though she wants to go away
to college. The happiness of her family
(because she is close to home) marks her
success and fulfillment of her family
values given that the group is better
because she stayed home. Both daughters
are fulfilling their family values and
neither is better or worse than the other.
Knowledge, as well as, experiences in
the other perspective will enable the
discernment of the complex differences
and foster the value of each culture.
This understanding will enable the development
of prevention models tailored to specific
groups and minimize the ethnocentricism
of mainstream general application of egocentric
models.
The
public health model supports the notion
that behavior patterns are developed,
maintained, and supported within a
social context. |
|
As
stated earlier, few sociocentric models
have been validated in the U.S. and
egocentric models may not be applicable.
In the absence of science-based group-oriented
models, a public health model which
addresses the individual and the environment
is recommended. The public health
model supports the notion that behavior
patterns are developed, maintained,
and supported within a social context. |
The
socialization of behaviors falls on
a continuum by which new and old behaviors
are either supported or chastised.
Therefore, it is important to differentiate
between the process for adopting new
behaviors (known as social norming)
and the sustaining of old behaviors
referred to as culture. Culture is
the total lifestyle of people from
a particular social group, including
all the ideas, symbols, preferences,
and material objects they share. Culture
evidences stability over time as beliefs,
traditions, and values are passed
from one generation to the next. However,
social conditions and environmental
changes may impact and change aspects
of culture for any group. The Culture-Value
Theory suggests some cultures are
more likely to bring about risky shifts,
while others are more likely to result
in cautious shifts. In other words,
some aspects of culture shift with
external influences. What causes these
shifts is best understood through
the process of social norming which
is the implicit or explicit rules
a group has for the acceptable behavior,
values, and beliefs of its members.
Social norms can be influenced by
critical events such as AIDS, war,
economic depression, migration, etc.
They are also impacted by purposeful
acts such as media, social marketing,
discrimination, acculturation, basic
science findings, laws, and technological
advances. In order to prevent unhealthy
behaviors and promote healthy ones,
prevention approaches must focus on
both culturally motivated behaviors,
as well as, social norming influences.
|
|
...Culture-Value
Theory suggests some cultures are
more likely to evince risky shifts,
while others are more likely to evince
cautious shifts. |
Understanding
the rules of the culture, how it
functions, and how it is influenced
foreshadows effective prevention
strategies. The prevention strategies
employed must be tailored to the
targeted individual and his/her
environment, including culture and
social norms. Individual change
may be difficult without communal
support or guides. Some of the components
which are more resistive to change
may be assisted with public and
organizational policy changes. |
|
The
prevention strategies employed must
be tailored to the targeted individual
and his/her environment, including
culture and social norms. |
To
date, there is little to no validated
information to delineate prevention
strategies specifically for Hispanics.
However, it is known that Hispanics
are not an individual-oriented culture;
therefore, the mainstream prevention
approaches focusing on the individual
may not be appropriate because they
do not address the importance of culture,
nor do they provide a social context.
The prevention strategy which may
be more appropriate, until cultural
specific models are developed, is
the |
|
...Hispanics
are not an individual-oriented culture;
therefore, the mainstream prevention
approaches focusing on the individual
may not be appropriate... |
A
public health model that utilizes
a comprehensive community approach
to include family, school, college,
church, work, community, and health
care-based activities would probably
be the most effective prevention plan
for health promotion and dissipating
high risk social norms with Hispanics.
|
|
public
health model. A public health model
that utilizes a comprehensive community
approach to include family, school,
college, church, work, community,
and health care-based activities would
probably be the most effective prevention
plan for health promotion and dissipating
high risk social norms with Hispanics.
Although there is little scientific
base to date, prevention models which
factor in the influences and impact
of social environment are probably
the most culturally appropriate for
Hispanics. Hispanics, in all areas
of prevention, including prenatal
and pediatric check-ups, inoculations,
adult physicals, HIV/AIDS, abuse of
alcohol and illicit drugs, and smoking
tend to receive fewer benefits and
have significantly limited participation
in behavior-based prevention programs.
Given the low rates of Hispanic use,
the application of current prevention
models seemingly lack cultural competence
which consequently discourages utilization
and misunderstanding of the relevance
of prevention programs. Culturally
appropriate prevention activities
must promote healthy behaviors and
reduce risk behaviors. Each presents
a different challenge, but must be
integrated successfully and efficiently
into merging models of health care
delivery, such as managed care or
care of the uninsured. The remainder
of this chapter examines key concepts
for promoting healthy behaviors and
reducing risk behaviors. |
Promoting
Healthy Behaviors
The
purpose of promoting healthy behaviors
is to foster decisions that will
maintain good health and have early
detection of health problems.
1.
Lifestyle Choices
|
|
Key
Concept |
Diet,
exercise, and weight control appear
to be factors that contribute to
good health. The current standards
for appropriate diet, weight, and
exercise levels are based on mainstream
whites. Based on these standards,
Hispanics report as overweight,
lacking exercise, and falling short
of the recommended daily allowances
of fruits and vegetables. Standards
must be determined specifically
for Hispanics with programs established
that promote good lifestyle choices
and have support systems instituted
to sustain change.
|
|
The
current standards for appropriate
diet, weight, and exercise levels
are based on mainstream whites...standards
must be determined specifically
for Hispanics... |
2.
Mental Health
To
promote good mental health, social
stress and cultural conflict must
be addressed as many Hispanics are
first, second, and third generation
immigrants. Research has shown it
takes approximately three generations
to acculturate. For many others
for which the border moved, social
stress and cultural conflict must
also be dealt with, as the invasion
of the dominant culture forced unwanted
changes in their behaviors. Validation
of cultural strengths and ethnic
heritage are needed in conjunction
with the coping skills to manage
social stress and conflict. |
|
Research
has shown it takes approximately
three generation to acculturate.
|
The
daunting statistics of substance abuse,
violence and suicide reflect coping behaviors
that need new strategies and skills. To
foster good mental health, behaviors must
be promoted that build upon the respectful
values of the Hispanic culture and provide
appropriate strategies for managing the
ill feelings and anger that have resulted
from troubled environments and perceptions
of discrimination.
The
social, economic, familial, and personal
costs of mental illness are too great
to have ill persons go without treatment.
|
|
Mental health problems are a burden
to the ill person, their family, and
society. The social, economic, familial,
and personal costs of mental illness
are too great to have ill persons
go without treatment.89
Hispanics with diagnosable mental
disorders receive insufficient mental
health care, especially from specialists.
More Hispanics use a medical care
provider for their mental health and
substance abuse problem.90
It was also found that rates of use
were lower for Mexican born in Mexico
and those who are low acculturated.
Much less information is known about
Hispanic children. Leaf et. al. found
fewer children receive services in
the specialty mental health sector
than are in need of these services.91
To ensure good mental health, culturally
appropriate mental health services
must be made available to Hispanics
with mental health problems and mental
health illnesses. |
3.
Disease and Disorder Screening and Other
Preventive Practices
Many
Hispanics, due to geographic location.
lack of resources, and no insurance,
have limited access to screening and
preventive practices. |
|
To
promote health, culturally appropriate
screening services and preventive
practices, such as immunizations,
must be available, accessible, affordable
and practical. Many Hispanics, due
to geographic location, lack of resources,
and no insurance, have limited access
to screening and preventive practices.
Consequently, care is sought for critical
conditions and later stages of disease
and disorders which often result in
unnecessary death or mutilation. Early
detection and treatment of disease
increases the probability of recovery.92
|
Some
Hispanics, like most other Americans,
may need to be educated about the
value of screening and other preventive
practices. The most effective education
appraisal for prevention and early
diagnosis is often improved outcomes.
Due to the frequent lack of trust
in bureaucratic systems and limited
access to preventive care, cognitive
information may not be enough to persuade
the perception of value or to counter
the negative social norms that have
resulted from inadequate preventive
care. As services are made more available
and the health status improves, conditions
that created a social norm such as
"fatalism" when diagnosed
with cancer may change. If those diagnosed
with cancer typically live, the social
norming process transforms the fatalist
belief that a diagnosis of cancer
equates to death. Combine this experience
with the knowledge that cancer is
mostly curable if detected early through
screening. Ultimately, the benefits
of early detection and improved recovery
could motivate screening and preventive
practices which are reflective of
an improved health status.
|
|
Due
to the frequent lack of trust in bureaucratic
systems and limited access to preventive
care, cognitive information may not
be enough to persuade the perception
of value or to counter the negative
social norms that have resulted from
inadequate preventive care. |
In
the advocacy for screening and prevention
practices, the social environment
must also be assessed. The negative
consequences of screening and support
for healthy behaviors must also be
addressed. Screening and prevention
should be accompanied by additional
resources and services. For instance,
it is not enough to screen for alcohol
without services for the problem drinker.
It is not enough to screen for cancer
or mental illness without follow-up
treatment. Prevention is best when
there is support and feasible alternative
behaviors. Screening and prevention
are not stand alone practices and
may have negative impacts on communities
where additional resources are unavailable.
|
|
Screening
and prevention should be accompanied
by additional resources and services...it
is not enough to screen for alcohol
without services for the problem
drinker.
|
Reducing
Risk Behaviors
Key
Concept
The
motivation foreshadowing risk behaviors
may be individually driven; however,
there appears to be strong social
influences, especially for sociocentric
groups, such as Hispanics. |
|
Accurately
assessing the array of mental processes
that influence behavior is inherently
difficult, primarily because it
relies on that person's subjective
report of how he or she feels, justification
for a particular behavior, and the
often lack of awareness of cues.
Consequently, it is difficult to
determine what prevention or intervention
strategy will actually reduce risk
behaviors. Initial model development
supports the notion of reducing
risk factors and increasing protective
factors across many areas of a person's
life. The motivation foreshadowing
risk behaviors may be individually
driven; however, there appears to
be strong social influences, especially
for sociocentric groups, such as
Hispanics. Consequently, the models
developed and validated for Hispanics
must include the many domains or
social influences surrounding the
person.
In
order to consistently prevent or
reduce risk behaviors, refusal skill
training and life-skill training
programs that are specifically targeted
to Hispanics should be used. As
a sociocentric group with additional
life stressors, such as discrimination
and poverty, the expected models
are more complex than just saying
"no." |
1.
Alcohol and Illicit Drug Abuse
Data
from the past 20 years show that prevention
has succeeded in substantially reducing
the incidence and prevalence of illicit
drug use. Successful substance abuse prevention
also leads to reductions in traffic fatalities,
violence, unwanted pregnancy, child abuse,
sexually transmitted diseases, HIV/AIDS,
injuries, cancer, heart disease and lost
productivity.
Although
few models have been validated specifically
for Hispanics, the current mainstream
models being tested include a comprehensive
approach which reduces risk factors,
increases protective factors, and
addresses use/abuse in all domains
or environments.
Risk
Factors vary considerably according
to an individual's age, psychosocial
development, ethnic/cultural identity,
and environment. However, the impact
of any single risk factor may change
over time with the development of
changes in his or her environment.
Some of the risk factors to consider
include social acceptance, parents
or peer usage, stressors, availability,
accessibility, etc.
Protective
Factors can increase a child's resilience
to substance abuse, since they act
as buffers to initiating or continuing
substance use. The literature on
protective factors and resilience
is more diffuse than that for risk
factors, and there is less clarity
about which factors are most important
in the prevention of substance abuse,
especially for Hispanics. Some protective
factors include group support, knowledge,
laws, etc.
Domains
interact, with the individual at
the core of the framework, primarily
through an individual's risk and
protective factors. The precise
nature of the links between substance
use and each of the risk factors
identified under the six domains
(individual, family, peer, school,
community, and society) are not
yet fully understood. Research must
be directed to understanding the
decision and influence paths to
use/abuse for members of sociocentric
groups, such as Hispanics.93
|
|
...the
current mainstream models being tested
include a comprehensive approach which
reduces risk factors, increases protective
factors, and addresses use/abuse in
all domains or environments. |
2.
Tobacco Use
Each
year, smoking kills more people
than AIDS, alcohol, drug abuse,
car crashes, murders, suicides,
and fires — combined! |
|
An
estimated 48 million adults in the
United States smoke cigarettes, even
though this single behavior will result
in death or disability for half of
all regular users. Tobacco use is
responsible for more than 430,000
deaths each year, or 1 in every 5
deaths. Paralleling this enormous
health toll is the economic burden
of tobacco use: more than $50 billion
in medical expenditures and another
$50 billion in indirect costs. Each
year, smoking kills more people than
AIDS, alcohol, drug abuse, car crashes,
murders, suicides, and fires —
combined! Current smokers were more
likely to be heavy drinkers and illicit
drug users. Among smokers, the rate
of heavy alcohol use (five or more
drinks on five or more days in the
past month) was 12.8 percent and the
rate of current illicit drug use was
14.7 percent. Among nonsmokers, only
2.5 percent were heavy drinkers and
2.6 percent were illicit drug users.
In 1996, current smoking rates were
higher among whites (29.8 percent)
and blacks (30.4 percent) than among
Hispanics (24.7 percent) and those
of other race/ethnic groups (17.2
percent). Both white and black females
in the total population were significantly
more likely than Hispanic females
to be current smokers.
|
...there
is an increase in Hispanic smokers,
which may be an indicator of potential
problems. |
|
However,
there is an increase in Hispanic smokers,
which may be an indicator of potential
problems. Among Hispanic high school
seniors, cigarette smoking declined
from 1977 (35.7%) to 1989 (20.6%);
however, smoking prevalence was 25.9%
in1997. Among Hispanic 10th-grade
students, smoking prevalence was 18.3%
in 1992 and 23.0% in 1997. For Hispanic
eighth-grade students, prevalence
was 16.7% in 1992 and 19.1% in 1997.
Current cigarette smoking prevalence
was lower among Hispanic high school
students than white students. There
was a 34% increase in smoking prevalence
among Hispanic students from 1991
(25.3%) to 1997 (34.0%).94 |
Smoking
is responsible for 87% of the lung
cancer deaths in the United States.
Overall, lung cancer is the leading
cause of cancer deaths among Hispanics.
Lung cancer deaths are about three
times higher for Hispanic men (23.1
per 100,000) than for Hispanic women
(7.7 per 100,000).
|
|
Overall,
lung cancer is the leading cause of
cancer deaths among Hispanics. |
Studies
have documented that tobacco products
are advertised and promoted disproportionately
to ethnic communities. Examples
of target promotions include the
introduction of a cigarette product
with the brand name "Rio" and an
earlier cigarette product "Dorado,"
which was advertised and marketed
to the Hispanic community. Thus,
targeted comprehensive Hispanic
community approach is needed to
prevent smoking, including economic
interventions, counter advertising,
retailer-directed interventions,
environmental policies, etc.
In the past, helping people quit
smoking was the primary focus of
efforts to reduce tobacco use at
all ages in order to reduce the
risk of premature death. In recent
years, the focus of tobacco control
has expanded to include strategies
to prevent individuals from ever
starting to smoke — particularly
young people, since the decision
to use tobacco is nearly always
made in the teenage years, and about
one-half of young people who take
up smoking continue to use tobacco
products as adults. Yet, there are
no validated models specifically
for Hispanic youths.95 |
|
Studies
have documented that tobacco products
are advertised and promoted disproportionately
to ethnic communities.
...the decision to use tobacco is
nearly always made in the teenage
years... |
3.
Crime Prevention In 1996, U.S. residents
age 12 or older experienced approximately
36.8 million crimes, according to the
National Crime Victimization Survey. Three
out of four were property crimes; 25 percent
were crimes of violence.
The
nation's law enforcement agencies reported
a four percent decrease in serious crime
during the first six months of 1997. Violent
crime decreased five percent and property
crime fell four percent during the first
half of 1997.96
The juvenile arrest rate for violent crime
in 1996 dropped nine percent from 1995
and 12 percent from 1994.97
Issues
such as domestic violence, violence
in the workplace, emergency room visits,
homicide, suicide, and assaults are
all public health issues. |
|
Issues
such as domestic violence, violence
in the workplace, emergency room
visits, homicide, suicide, and assaults
are all public health issues. Crime
tends to occur in neighborhoods
with high poverty. People who are
victims of crime often experience
both physical and mental health
problems. There is no data available
to specifically depict Hispanic
health issues and crime; however,
crime prevention and the injuries
and loss due to crime should be
considered in health models. |
Case
Study
In
1995, the Puerto Rican Family Institute
(PRFI) of New York applied to a foundation
for a grant to establish a pediatric health
clinic in the Bushwick section of Brooklyn.
This program provided preventative health
care services to children ages 9 to 12
year-olds. Working with a pediatrician
from Brooklyn's Wycoff hospital and a
part-time outreach worker, the project
provided physicals and immunizations for
hundreds of children, along with referrals,
progress reports, and escort services
for children needing blood work and other
medical follow-up. While the clinic’s
mission was to provide preventative care
to children, because of its bilingual/bicultural
benefits and easy access within the community,
many parents and other family members
also began to use it as their "one-stop
shop," health care provider.
PRFI’s
response was to try and develop
an effective referral system to
help reconnect families with the
health care system and educate them
on the importance of long-term preventative
health care action.
The
clinic also provided crucial lifesaving
interventions for the children of
undocumented workers and others
who might have fallen through the
cracks in the health care system
had the clinic not been there. One
example involved a 12 year-old girl
who had recently arrived from Mexico
who was diagnosed with acute lupus,
and referred to treatment. Another
instance was a 10 year-old boy,
suffering possible brain damage
from a traffic accident that took
place while he was being illegally
transported from Mexico to New York.
He was also provided long-term medical
treatment as a result of a clinic
diagnosis.
By
providing a people-friendly environment
with offerings from coffee and snacks
for parents, to lollipops and stickers
for their young patients, to children's
books, art supplies and health educational
videos in the waiting room, PRFI
created a model of an informal community
based bilingual/bicultural health
care facility.
With
the end of its foundation funding
in 1998, PRFI was able to negotiate
with Wycoff Hospital for the establishment
of a five-day a week pediatric satellite
clinic to be based within PRFI.
This reflected a recognition by
this mainstream health care provider
that working on prevention programs
with a culturally competent community-based
organization could provide benefits
for the patient population, while
at the same time providing economic
benefit to the hospital in the form
of reduced costs.98 |
|
...working
on prevention programs with a culturally
competent community based organization
could provide benefits for the patient
population, while at the same time
providing economic benefit to the
hospital in the form of reduced costs.
|
...prevention
programs are most successful when
they emphasize the connection between
the individual, their family and
the community. |
|
As
with community outreach, at-risk behavior
prevention programs are most successful
when they emphasize the connection
between the individual, their family
and the community. The importance
of establishing a relationship of
trust with community leaders and institutions
in order to assess and create effective
prevention strategies can not be overemphasized.
Important questions to ask yourself
are: do you do your outreach through
existing Hispanic groups, select influential
media, develop culturally relevant
materials, and target the whole family
with your prevention messages?
|
Culturally
relevant materials, as stated earlier,
must be relevant to the specific Hispanic
subgroup targeted with a prevention
message or program. |
|
Culturally
relevant materials, as stated earlier,
must be relevant to the specific Hispanic
subgroup targeted with a prevention
message or program. Simply assuring
that something is in Spanish will
not ensure that the message will be
delivered. Taking it one step further
would be to develop specific messages
for each family member. A preventative
health video, for example, that was
produced for a government agency by
a non-Hispanic production company
used a Mexican cast in a border setting
and was found to be useless as an
educational tool for Puerto Ricans,
Dominicans, and Central Americans
in other parts of the country. By
contrast, videos produced by Hispanic
organizations, have used a range of
actors who speak a non-idiomatic Spanish,
and cannot be easily identified with
any single Hispanic sub-group. |
Spanish
language print and broadcast media by
contrast have proven far more willing
to run and even help produce prevention-oriented
public service announcements than has
the mainstream English language media.
These free ads have ranged in content
from smoking reduction, cancer, radon,
and prenatal information messages, to
instructions on how to receive free check-ups,
child-car seats, and home fire detectors.
Still, available resources such as these,
within low-income and underserved Hispanic
communities, remain limited so that getting
out the prevention message will require
imagination, cooperation and creativity.
Conclusion
To
date, there are few prevention models
to promote healthy behaviors or to
reduce risks that are tailored specifically
to Hispanics. Additional research
is needed. In the interim, public
health models may be the most effective.
However, at a minimum, it is critical
to understand that even though there
may be relevant factors in mainstream/egocentric-based
prevention models, they cannot be
generally applied to Hispanics as
a sociocentric group and expect successful
outcomes. The challenge is for providers
to move beyond their belief systems
and values and expand their world
views to validate how others function.
|
|
...it
is critical to understand that even
though there may be relevant factors
in mainstream/ egocentric-based
models, they cannot be generally
applied to Hispanics as a sociocentric
group and expect successful outcomes. |
III.
Implementation Chapter Nine: Service
“You
have to establish a relationship of trust
with patients, if you want to practice
healing.”
Access
to health services is a major barrier
for Hispanics. Despite the benefits
many Hispanics have gained from
risk-reduction, outreach, and prevention
efforts; reinforcement of positive
cultural traits, and clinical treatment;
Hispanics remain the United States
population least likely to have
access to a regular source of health
care services and most likely to
underutilized available health care
services. Currently, health care
benefits are primarily linked to
type of employment. Although Hispanics
are the group most likely to be
employed, they are not working in
jobs which offer health care benefits.
Approximately, one-third of full-time
employed Hispanics do not have health
care benefits. Access to treatment
must be addressed and corrected,
along with the availability of culturally
competent care.
Access
to health services, particularly
those relating to chronic and disabling
conditions is of prime importance
to Hispanic adults. However, Hispanic
adults are the group least likely
to see a physician. According to
the National Ambulatory Medical
Care Survey, the number of physician
visits per year for persons 45 to
64 years old was 4.8 for Mexican
Americans, Cuban Americans, and
Puerto Ricans, compared to 5.6 for
non-Hispanic blacks and 6.5 for
non-Hispanic whites.99
For
many Hispanics, health insurance
is another major barrier to service,
if not the major barrier to health
care utilization. As noted earlier
Hispanics are the racial/ethnic
group least likely to be insured.
|
|
...Hispanics
remain the United States population
least likely to have access to a regular
source of health care services and
most likely to underutilize available
health care services. |
The
lack of insurance in the Hispanic
community is tied in part to a lack
of health insurance in the workplace,
where the rate of uninsured Hispanics
is a disturbing 37.9%. Over one-third
of working adult Hispanics are uninsured,
compared to about a quarter of working
adult blacks and an eighth of working
adult whites.100 |
|
Over
one-third of working adult Hispanics
are uninsured.... |
...a
study of UCLA Emergency Medicine
Center went on to find that ethnicity
— not language, gender, or
insurance status, was the main predicator
for inadequate pain relief. |
|
Unfortunately
even when Hispanic patients have medical
insurance and do seek medical services,
they often must contend with a health
care system that is not responsive
to their needs. For example, a study
of UCLA Emergency Medicine Center
patients with long-bone fractures
found that Hispanics were twice as
likely as non-Hispanic white patients
to be denied adequate pain medication
(analgesia) in the emergency room.
The study went on to find that ethnicity
— not language, gender, or insurance
status, was the main predicator for
inadequate pain relief. The importance
of cultural competency in improving
Hispanic access to and service in
health care settings seems to be key
to making progress in this area.101
|
...Hispanics
today comprise 12% of the U.S. population,
only 4.3% of physicians, and less
than 3% of registered nurses are
Hispanic. |
|
The
growth in numbers of Hispanic health
professionals has also not kept pace
with the recent growth of the Hispanic
population as a whole. While Hispanics
today comprise 12% of the U.S. population,
only 4.3% of physicians, and less
than 3% of registered nurses are Hispanic.102
By 2050, Hispanics could make up 25%
of the population according to the
Census Bureau. |
Will
Hispanics be equally well represented
in the health and social service professions?
While this is an important question in
terms of social equity, an equally important
question is, will Hispanics be able to
receive culturally competent care and
service from their health-care providers
regardless of who those providers are?
On
a cultural level you may encounter
a definitional problem about who
is a health care provider and what
that person does. In traditional
Hispanic culture physicians, nurses,
and other health care professionals
are seen as authority figures to
be visited when one is sick. The
idea of going to a doctor when one
is feeling well may strike some
Hispanics as odd (or if uninsured,
an unaffordable luxury). Consequently,
for many Hispanics, care such as
physical exams or screenings for
diabetes, cholesterol, heart disease,
cancer, etc. may be unfathomable.
One result is that Hispanics with
high cholesterol levels have been
found to be less aware of their
situation than their non-Hispanic
white counterparts. That is also
why one- third of Hispanic, adolescent
women who make their first gynecological
visit do so for a pregnancy test
compared with one-tenth of non-Hispanic
women.
Since
Hispanic women tend to look forward
to pregnancy as a natural part of
life, they do not see it as an illness
or a medical condition. Therefore,
they are less likely to visit a
health care provider once they have
confirmed they are pregnant. Consequently,
Hispanic mothers are more than three
times as likely as non-Hispanic
white mothers to have late or no
prenatal care, (approximately 30%
receive no prenatal care). Although
the infant mortality rate for Hispanic
mothers (6.8 per 1,000 live births)
is similar to that of non-Hispanic
white mothers (6.9 per 1,000 live
births), there is no question that
the benefits Hispanic mothers derive
from traditional Hispanic diets,
family-support, etc. could be greatly
supplemented and improved upon by
regular prenatal check-ups with
a health care professional.103
Through
outreach and prevention programs
many Hispanics are now being exposed
to healthy living models that no
longer see hospitals as a place
where you go to die. At the same
time, new service models are being
developed that respond to the need
for culturally competent treatment
for Hispanic patients and clients.
Case
Study
One
example is taking place at the Women's
and Children's Hospital of the University
of Southern California School of
Medicine. In their paper, "Evaluation
of a Culturally Competent Outpatient
Management Program of Insulin-requiring
Diabetes in Pregnancy in a Latina
population," doctors Carolina Reyes,
|
|
...one-third
of Hispanic, adolescent women who
make their first gynecological visit
do so for a pregnancy test compared
with one- tenth of non- Hispanic women.
|
Martin
Montoro, and Siri Kjos, and R.N.s Maria
Victor and Norma Chavez report that under
that hospital's Outpatient Diabetes Education
Program (ODEP), between 1987 and 1993,
508 women, "All underwent intensive
one-day (12 hour) instruction in diet
and insulin therapy taught by bilingual
certified diabetes educators...Ninety-five
percent of patients were Spanish-speaking
with 29% completing less than 6 years
of education (and yet)...The program successfully
avoided hospitalization in 97% of patients."104
Hospitalization
is very disruptive, at many levels,
for the pregnant patient and those
dependent on her. |
|
The
article reports that, "Protocols
for initiating insulin therapy with
gestational and non-insulin dependent
diabetic pregnant patients historically
included routine hospitalization...Such
management is labor intensive and
has serious social and financial implications
for the patients and the institutions
rendering their care. Pregnant patients
are often the central caretaker of
other small children and hospitalization
creates major hardship. Many who work
cannot afford lost revenue or the
expense of hospitalization. Hospitalization
is very disruptive, at many levels,
for the pregnant patient and those
dependent on her. |
"Fundamental
to the success of this program is a requirement
of bilingual certified diabetes educators
with the ability to communicate fluently
in Spanish and a cultural understanding
of the factors influencing their diet
and exercise behavior," the authors
point out.
"This
type of program may be hospital-based
or office-based. It requires a coordinated
team (physician, diabetic educator, nutritionist)
to offer education, management, and prenatal
follow-up for those requiring initiation
of insulin therapy during the pregnancy.
Outpatient education for people with diabetes
is an effective way to reduce health care
costs and improve efficacy."105
Case Study
A
similar project has been initiated
in Oklahoma City, Oklahoma by the
Latino Community Development Agency.
A project summary report states
that, "To decrease service
access barriers, enhance service
efficiency and reduce costs, our
agency decided to develop a multi-service
community center." Located
in a 27,000 square foot converted
school house in a low-income Hispanic
community, it has been dubbed "Clinica
Amistad" or Friendship Clinic.
Among the culturally competent services
it offers is pediatric care for
children up to the age of 16, an
immunization center, a well-baby
clinic, a daycare program, drop-in
child care, community college classes,
after-school programs (including
health education) for school-age
children, and a recreational youth
facility for teens.106
Of
course, only when mainstream institutions
including major managed care programs,
public and private hospitals, clinics,
and nursing facilities fully integrate
into their systems culturally competent
approaches to patient care, will
Hispanic and other populations in
the United States feel confident
they can receive the best care possible.
A proxy indicator to access culturally
competent care is client satisfaction
and patient perceptions of quality.
To determine the effectiveness of
developing models for Hispanics,
client satisfaction must be assessed
for both critical care and long
term care. These assessments are
necessary as more institutions are
transitioning to the new service
models.
A
number of major institutions have
already transitioned to this new
service model, including Harbor
View Medical Center in Seattle,
Washington and Thomason Hospital
in El Paso, Texas. Often providing
these kinds of culturally competent
services proves to be both low-cost
and high-benefit from a care-delivery,
as well as, from a financial point
of view. |
|
...only
when mainstream institutions including
major managed care programs, public
and private hospitals, clinics, and
nursing facilities fully integrate
into their systems culturally competent
approaches to patient care, will Hispanics
and other populations in the United
States feel confident they can receive
the best care possible. |
Case
Study
...provides
transportation for family care givers
of patients, particularly migrant
workers from the eastern part of
the state, where the injury or illness
of one family member can be highly
disruptive to the lives of others.
|
|
Harbor
View provides transportation (including
ambulance ridealongs when advisable)
for family care givers of patients,
particularly migrant workers from
the eastern part of the state, where
the injury or illness of one family
member can be highly disruptive to
the lives of others. Harbor View has
also provided expanded in-hospital
visitation and living opportunities,
including translation and social service
help in locating housing, clothing,
laundry and other needed services
for the dislocated care-giver as well
as the patient. Along with a family
approach in case management, all in-patient
staff are given cultural competency
training for their Hispanic, Southeast
Asian, and other patient populations.
In addition, there are cross-cultural
rounds conducted at the hospital every
month, involving speakers and presentations
from different community-based groups.
Those rounds are open to staff, faculty,
and community members to attend. Recently,
Harbor View, working with St. James
Catholic Church, also initiated an
on-site English as a Second Language,
program for interested patients and
their family members.107 |
Case
Study
Thomason,
a public hospital with 335 beds and 1400
employees in El Paso, Texas has an 80%
bilingual, bicultural staff serving a
patient population that is 94% Hispanic.
The main focus for patient care, as well
as, collegiate work is respeto (respect)
according to hospital C.E.O. Pete Duarte.
"You have to establish a relationship
of trust with patients if you want to
practice healing," he explains.108
This
translates to a range of culturally-adjusted
service relationships, from allowing families
to spend the night with
their in-patient relatives and providing
them access to clergy, staff psychiatrists
or other comforts they might seek, to
ongoing contractual agreements between
the hospital and community-based health
care and social service agencies that
help patients resolve problems that go
beyond their immediate medical condition
but may contribute to it. These problems
may include risk-taking behaviors, lack
of employment, poor housing, or nutritional
shortfalls.
To
promote its holistic approach to
service, the hospital has developed
a motivational CARE program. The
“C” stands for community
and recognizes the hospital's role
in helping to make the surrounding
community a better place for families
to live in and prosper, the “A”
stands for accountability not only
for the health care dollars they
administer but also to the shared
values of the community they are
a part of, the “R” stands
for respect and dignity, "the
most important research and development
program we have in terms of healing,"
according to Duarte, and the “E”
is for excellence of service and
care-delivery, a standard expected
of every staff member regardless
of their position.109 |
|
To
promote its holistic approach to service,
the hospital has developed a motivational
CARE program. |
"It
goes back to the basics of what we
are as human beings," hospital
C.E.O. Duarte explains. "We have
to get beyond the cultural stereotypes
of the media and recognize that all
our patients are human beings. We
all come from the same place and have
the same dreams for our families and
our future, and we have to base our
actions, as health care professionals,
on trying to provide the best possible
vision of healing in the very sacred
places where we do our work."
|
|
...we
have to base our actions,as health
care professionals, on trying to provide
the best possible vision of healing
in the very sacred places where we
do our work. |
Conclusion
Health
professionals must continue to adjust
to a more multi-ethnic, multi-racial
society in order to meet the needs
of their patients and clients. A provider
must always be aware and respect the
uniqueness of the patient. The desire
of health care professionals like
yourself to reach out to community-based
organizations and develop more effective
ways of serving your Hispanic and
other patients' needs, will create
the kind of American health care system
we can all be proud of. |
|
The
desire of health care professionals
to...develop more effective ways
of serving Hispanic and other patients’
needs, will create the kind of American
health care system we can be proud
of. |
|