The Study of Neurofibroma Growth in Adults with NF1
Overview: The Study of Neurofibroma Growth in Adults with NF1
We invite you to join a research study of neurofibromatosis type 1 (NF1) in
adults at the National Institutes of Health (NIH). We are trying to answer a
simple question: In adults, how fast (or how slow) do skin neurofibromas grow?
By answering this question, we hope to lay the groundwork for future trials
of new drugs to control the growth of neurofibromas. We also hope to find genes
that control the growth of neurofibromas in NF1.
With this study, we are trying to learn how fast or slow neurofibromas grow,
and how often they appear. We also are looking for the genes that control the
growth rate of the tumors. The results of this study may help us design future
trials to test new drugs to treat the tumors. If we can find genes that control
the growth rate of the tumors, we hope to use those genes to predict the approximate
number of tumors a person with NF1 might have.
To find out more about The Study of Neurofibroma Growth in Adults with NF1
at the National Human Genome Research Institute (NHGRI), please explore the Study of
Neurofibroma Growth in Adults web pages.
Brochure for the Study of Neurofibroma Growth in Adults with NF1 
Douglas R. Stewart, M.D.
National Human Genome Research Institute
National Institutes of Health
Contact Information
Jennifer Sloan, Ph.D., M.S.
Protocol Coordinator & Genetic Counselor
National Human Genome Research Institute
National Institutes of Health
10 Center Dr. MSC 1205 Building 10, CRC, Room 3-2551
Bethesda, MD 20892
Phone: (301) 451-9145
Fax: (301) 496-7157
E-mail: jsloan@mail.nih.gov
Last Reviewed: December 1, 2008
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Overview: The Tumor Growth Study 