HomeResearchIntramural ResearchClinical ResearchCurrent NHGRI Clinical StudiesThe Study of Disease Severity in Adults with NF1 Contact Information for the NF1 Studies

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The Study of Disease Severity in Adults with NF1 and
The Study of Neurofibroma Growth in Adults with NF1

Overview: The Disease Severity Study Overview: The Tumor Growth Study General Information About NF1 FAQ About the Disease Severity Study FAQ About the Tumor Growth Study Diagnostic Criteria Online Resources for NF1 Study Updates Contact Information

Contact Information for the NF1 Studies

We invite you to join a research study of neurofibromatosis type 1 (NF1) in adults at the National Institutes of Health (NIH). We have two studies: the Disease Severity Study and the Study of Neurofibroma Growth in Adults with NF1. To find out more about either study, please explore these Web pages. The study brochures (as PDFs) for both studies are available for download. If you are interested in participating, please contact us.

Brochure for the Study of Disease Severity in Adults with NF1

Brochure for the Study of Neurofibroma Growth in Adults with NF1

Douglas R. Stewart, M.D.
National Human Genome Research Institute
National Institutes of Health

Contact

Sarah Coombes, M.S., C.G.C.
Protocol Coordinator/Genetic Counselor
National Human Genome Research Institute
National Institutes of Health
Building 10, CRC 5-1485
10 Center Drive MSC 1449
Bethesda, MD 20892
Phone: (301) 451-9145
Fax: (301) 480-9454
E-mail: coombessl@mail.nih.gov

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Last Updated: April 6, 2009