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The Study of Disease Severity in Adults with NF1 and
The Study of Neurofibroma Growth in Adults with NF1
Online Resources for NF1
NOTE: The National Institutes of Health and NHGRI do not endorse or recommend any commercial products, processes or services. The links listed on this Web page do not necessarily state or reflect the views of the U.S. government, and their inclusion here may not be used for advertising or product endorsement purposes.
Children's Tumor Foundation
www.ctf.org
An organization dedicated to ending neurofibromatosis through research.
Neurofibromatosis, Inc
www.nfinc.org
A national, tax-exempt, charitable organization whose mission is to create a community of support for those affected by NF, through education, advocacy, coalitions, and supporting research for treatments and a cure. This site lists contact information for the organization's many state and regional affiliates, including those in Arizona, California, Illinois/Midwest, Indiana, Kansas and Central Plains, Michigan, Mid-Atlantic, Minnesota, New England/Northeast and Southern Nevada.
ClinicalTrials.gov
www.clinicaltrials.gov
Provides regularly updated information about federally and privately supported clinical research in human volunteers.
NIH Clinical Research Studies: Variation in Gene Expression in Neurofibromatosis Type 1
www.clinicalstudies.info.nih.gov
The study NIH to identify genes that predict the seriousness of neurofibromatosis type 1 (NF1), explain why some people with NF1 have more medical problems than others and examine medical problems in NF1 that are rarely seen and are not well understood.
Last Reviewed: May 8, 2009
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