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Autism Information Center
Developmental Disabilities > Autism Information Center > Family Resources

 Resources for Families

If you have questions or concerns about how your child is developing, the first step is to talk with your child's health care professional or teacher.

CDC does not study education or treatment programs for people with autism spectrum disorders (ASDs) and does not provide services to people with ASDs or their families. But the links that follow can help you find agencies and organizations that do. 

Disclaimer

 

Man with boy

  Resources by State

Every state provides education services for children who have developmental problems. These programs can start right after a baby is born and last until he or she turns 22 years old. Find out more about these programs at the links that follow.

National Dissemination Center for Children with Disabilities
The National Dissemination Center for Children with Disabilities (NICHCY) is a central source of information on disabilities in infants, toddlers, children, and youth. NICHCY has compiled a resource directory by state that lists key programs for children with developmental disabilities and their families. The lists include state agencies serving children and youth with disabilities, state chapters of disability organizations and parent groups, and parent training and information projects. 

National Early Childhood Technical Assistance Center
The National Early Childhood Technical Assistance Center works to strengthen the systems that provide early childhood services under the Individuals with Disabilities Education Act (IDEA). The center’s mission is to ensure that children with disabilities (birth through 5) and their families receive and benefit from high-quality, culturally appropriate, and family-centered supports and services.

National Mental Health Information Center
The National Mental Health Information Center is part of the Substance Abuse and Mental Health Services Administration of the Department of Health and Human Services. Its Mental Health Services Locator helps families and professionals find information about mental health services and resources by state and/or region.

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 Resources from Partner Organizations

Autism Society of America’s Autism Source
ASA’s Autism Source is a database of resources in local communities. It includes contact information for ASA chapters and other local supports. 

Organization for Autism Research’s “Parent’s Guide to Research”
A Parent’s Guide to Research,” a free publication from the Organization for Autism Research, helps parents find,  understand, and evaluate autism research studies.

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 Disaster Planning

AutismCares
A growing number of national autism organizations have partnered to form AutismCares, a national initiative to help families with members who have autism that are challenged with disasters in their community. AutismCares registers families through a free online service to help manage and store their health care records and ensure that trained case managers are able to locate them more effectively in case disaster strikes their community.

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 Financial Resources for Health Care

Centers for Medicare & Medicaid
The Centers for Medicare & Medicaid Services (CMS) works to improve access to services for underserved and at-risk populations. Among the programs CMS runs are Medicaid and the State Children's Health Insurance Programs. People of all ages who have disabilities may be eligible for health care coverage through Medicaid. SCHIP, created by the Balanced Budget Act of 1997, enables states to initiate and expand health insurance coverage for uninsured children.

Children’s Health Insurance Program
Insure Kids Now! is a national campaign to link the nation's 10 million uninsured children--from birth to age 18--to free and low-cost health insurance. It is sponsored by the Department of Health and Human Services. Each state has a Children's Health Insurance Program that provides free or low-cost health insurance for eligible children. The website has basic facts about these programs as well as links to every state’s program for children. The site also has information on where you can learn who is eligible for the program, how to apply, and what services are covered. You can get information in English and Spanish. En Español: ¡Asegure a sus Hijos Ahora! | El Programa de su Estado

Social Security Administration
The Social Security Administration has information about how to apply for social security benefits. Its website also provides an interactive tool to answer questions about eligibility, benefits, limits, and other programs offered.

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 Assistive Technology

People who have an autism spectrum disorder may use assistive technology (AT). AT is any item that helps people do things in their daily lives. Examples of AT devices include a keyguard that helps children find the right keys on a computer keyboard, a simpler remote control for a TV or stereo, an adapted mouse that makes getting around on the computer easier, switches that help children play with toys, and talking books.

MEDLINEplus: Assistive Devices
MEDLINEplus is an online service of the National Library of Medicine and the National Institutes of Health. Updated daily, the site offers information on a range of health topics, including autism and assistive devices, in English and Spanish (En Español).

Technical Assistance Project
The Technical Assistance Project is sponsored by the Rehabilitation Engineering and Assistive Technology Society of North America (RESNA), funded by the U.S. Department of Education. The project reduces barriers and increases access to assistive technology (AT) devices and services for people with disabilities of all ages. Visit the project’s website to find an assistive technology program in your state or territory

Disclaimer: We have provided a link to these sites because they have information that may be of interest to you. CDC does not necessarily endorse the views or information presented on these sites. Furthermore, CDC does not endorse any commercial products or information that may be presented or advertised on these sites.

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Date: February 07, 2007
Content source: National Center on Birth Defects and Developmental Disabilities

 

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CDC seeks to give people accurate and timely information about public health and the Autism Spectrum Disorders.  We respond to requests for information from state and local agencies, health professionals, universities, and the general public. Please be aware that we cannot give medical or educational advice. We urge you to talk with your doctor about any questions and concerns. Your doctor either already has or can gather your personal medical history and status and can best answer your questions and concerns: cdcinfo@cdc.gov

 
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