[{"fromDate":"Jan 23, 2013 12:00:00 AM","title":"Announcing the Advancing Autism Discovery Users Group","text":"The National Database for Autism Research is pleased to announce the Advancing Autism Discovery Users Group. This two-day workshop will be held April 22-23 at the Neuroscience Center, 6001 Executive Boulevard, Rockville, MD 20852. NDAR now contains harmonized -omics, imaging, and phenotypic data on over 44,000 research subjects. Workshop attendees will be provided instruction on how to use NDAR to advance discovery, provide short-term feedback on how NDAR can improve to meet scientific needs, and develop a user group to continue feedback for the next year.\n\u003cbr\u003e\u003cbr\u003eThis workshop is free and open to all researchers with an active NDAR data access agreement with attendance limited only by the space available. The workshop agenda and additional information is available at the link below. Individuals who plan to attend the workshop must register by March 1, 2013. For more information, please contact ndarhelp@mail.nih.gov.\u003cbr\u003e\u003cbr\u003e\u003ca href\u003d\"http://ndar.wufoo.com/forms/z7x3p3/\"\u003eRegistration Form\u003c/a\u003e\u003cbr\u003e\u003cbr\u003e\u003ca href\u003d\"http://ndar.nih.gov/ndarpublicweb/Documents/Advancing%20Autism%20Discovery%20-%20Agenda.pdf\"\u003eAgenda\u003c/a\u003e\n","internalUrl":"/ndarpublicweb/aboutNDAR.html","externalUrl":"http://ndar.nih.gov/ndarpublicweb/Documents/Advancing%20Autism%20Discovery%20-%20Agenda.pdf ","rank":1,"id":82},{"fromDate":"Nov 20, 2012 12:00:00 AM","title":"NDAR Mentioned in November 1st Issue of Nature","text":"The National Database for Autism Research was mentioned in \"Brain scans need a rethink\" by Ben Deen and Kevin Pelphrey, published in the November 1st, 2012 issue of Nature. Click \u003ca href\u003d\"http://www.nature.com/nature/journal/v491/n7422_supp/full/491S20a.html\" target\u003d\"_blank\"\u003ehere\u003c/a\u003e to read the article.","internalUrl":"/ndarpublicweb/aboutNDAR.html","rank":1,"id":81},{"fromDate":"Nov 9, 2012 12:00:00 AM","title":"omicSEARCH and Resolve Subject Identifiers Available For Use","text":"omicSEARCH allows researchers to filter and download subject data based upon experiment (e.g. molecule, type of sample, technology, and platform) and/or alteration type (e.g. SNP, CNV, SNV), affected region, chromosome, cytoband, etc., returning specific alterations. Selected alterations can then be applied - via Show results - against participant data, including phenotypic (see methods) categories and imaging results in NDAR. Next month, authorized users will be able to download. \u003cbr\u003e\u003cbr\u003eThe autism community has standardized on the NDAR GUID for cross project subject identifiers, however many other identifiers remain in use. Resolve Subject Identifiers (found under Harmonization Tools) was designed to resolve these identifiers to the appropriate GUID/Subjectkey and ensure that no duplicate subjects exist in any retrieved data. Instructions on how to associate other repositories\u0027 identifiers (e.g. SFARI, AGRE, ATN) with the GUID are also provided. ","internalUrl":"/ndarpublicweb/aboutNDAR.html","rank":1,"id":61},{"fromDate":"Sep 28, 2012 12:00:00 AM","title":"First Publication Using NDAR Data Now Available","text":"The first ever peer-reviewed paper derived from NDAR data has been published in the Journal of Intellectual Disability Research. The paper, entitled Predictors of self-injurious behaviour exhibited by individuals with autism spectrum disorder, assesses whether impulsivity, hyperactivity, negative affect, severity of sterotypy, intellectual functioning, or severity of autism symptoms predicted the severity of self-injurious behavior (SIB).","internalUrl":"/ndarpublicweb/aboutNDAR.html","externalUrl":"http://onlinelibrary.wiley.com/doi/10.1111/j.1365-2788.2012.01628.x/full","rank":1,"id":42},{"fromDate":"Sep 28, 2012 12:00:00 AM","title":"NDAR Announces the Autism Genome Project (AGP) Data Release","text":"As of September 2012, some Autism Genome Project data is now available to qualified researchers through the National Database for Autism Research (NDAR). The AGP dataset in NDAR includes raw genotypic intensity data and genotype calls. \u003cbr\u003e \u003cbr\u003eThe AGP is a study of over 5,000 strictly defined ASD subjects to understand the genetic and phenotypic heterogeneity in autism spectrum disorders (ASDs). It allowed for the discovery of key features of the ASD genomic architecture as well as new susceptibility loci, developing a course for future ASD research. The project was funded by the NIMH, NICHD, NINDS, NCCR, and Autism Speaks. \u003cbr\u003e ","internalUrl":"/ndarpublicweb/aboutNDAR.html","externalUrl":"http://ndar.nih.gov/data_from_labs.html?id\u003d1916\u0026showSingle\u003dtrue","rank":1,"id":41},{"fromDate":"May 24, 2012 12:00:00 AM","title":"NDAR Publication on Sharing Heterogeneous Data","text":"Dan Hall, Dr. Michael Huerta, Dr. Matthew McAuliffe and Dr. Gregory Farber publish \"Sharing Heterogeneous Data: The National Database for Autism Research\" article in Neuroinformatics. The publication describes the basic structure of NDAR, the strategies NDAR has used to overcome the issues of data heterogeneity, solutions to some of the problems in making data from human subjects widely available to the research community, and the results of these efforts so far. Several ways to use NDAR are also outlined in this paper.","internalUrl":"/ndarpublicweb/aboutNDAR.html","externalUrl":"http://www.springerlink.com/content/512608l255851t4j/","rank":1,"id":35},{"fromDate":"Feb 29, 2012 12:00:00 AM","title":"NDAR Releases Video Explaining GUID","text":"NDAR produced a video to help explain the value of participating autism research and to provide a better understanding of the use and security of the Global Unique Identifier (GUID). Aimed at potential participants, the video is freely available to any researcher to help supplement the informed consent process.","internalUrl":"/ndarpublicweb/aboutNDAR.html","externalUrl":"http://www.nimh.nih.gov/news/media/video/national-database-for-autism-research.shtml","rank":1,"id":29}]
