Sturge-Weber FoundationP.O. Box 418
Mt. Freedom,
NJ
07970
Tel: 973-895-4445
800-627-5482
Fax: 973-895-4846
EMail:
SWF@sturge-weber.comhttp://www.sturge-weber.comDescription: International non-profit organization established for support, referral, advocacy, and research into the management and cause
of Sturge-Weber Syndrome (SWS). Also serves parents, professionals, and others concerned with Klippel-Trenaunay Syndrome
and port wine stain.
National 501(c) tax-exempt organizations offer a comprehensive program of information and support services for patients and
their families. They may offer patient and professional information and education materials, sponsor meetings and scientific
workshops, fund research, and provide referrals to chapters and support groups.