The Challenges and Impact of Human Genome Research for Minority Communities

proceedings from a conference presented by
Zeta Phi Beta Sorority, Inc., National Educational Foundation
July 7-8, 2000, Philadelphia, PA


Zeta Background
Acknowledgments
Introduction
Foreword
Zeta NEF Purpose

Conference
Conference Mission
Conference Objectives
Research Plans
Conference Agenda
Conference Summary
Workshop I Summary

Workshop II Summary
Workshop III Summary
What's Next?
Photographs
Human Genome News article

Presenters
Dr. Aristides A. Patrinos
Dr. John Quackenbush
Dr. Georgia M. Dunston
Dr. Mary Kay Pelias
Dr. Fatimah Jackson
Dr. Christopher Adams
Dr. Rosalind P. Hale
Dr. Margaret C. Werner-Washburne
Rev. Dr. Deborah P. Wolfe
Dr. Jeroo S. Kotval
Betty K. Mansfield
Issie L. Shelton Jenkins, Esq.
Phyllis Griffin Epps, Esq.
Dr. Kathryn T. Malvern

Contact Information
Board of Managers
Presenters
National Educational Foundation

Acknowledgments

Dear Reader:

The Human Genome Project is one of the most important undertakings of our times. The changes which human genome research will make in our lives in the 21st Century will be significant.

The National Educational Foundation of Zeta Phi Beta Sorority has been privileged to have the opportunity to bring to minority communities information on the Human Genome Project (HGP) on the ethical, legal, and social implications of HGP research and findings.

The Foundation has planned and conducted two informational conferences on the Human Genome Project: one in April, 1999, at Xavier University, New Orleans, Louisiana, and the second in July, 2000, in Philadelphia, Pennsylvania. Both conferences had, as the primary target audience, members of the minority communities. These conferences provided information on the status of genetic research, avenues for greater involvement of minorities, and a vehicle for input by the minority communities on their issues and concerns.

The publication of the proceedings of the Philadelphia Conference is provided as a community service, for greater dissemination of this important information. The Foundation is grateful to the United States Department of Energy and the National Institutes of Health for grants and other support, and the March of Dimes and Merck Research Labs. It also wishes to thank the many presenters, panelists, and facilitators who were conference participants, and members of the community who served on the Conference Advisory Committees.

Special thanks to the following cooperating institutions: Xavier University of Louisiana, the New Orleans District Office and the Philadelphia District Officer of the Equal Employment Opportunity Commission, Directors Patricia Bivens and Marie Tomasso, respectively. Finally, our special thanks also to the Project Director of each conference, Dr. Rosalind Pijeaux Hale and Dr. Kathryn T. Malvern, and to Dr. Barbara West Carpenter, National President of Zeta Beta Sorority, Inc.

Sincerely,

Issie L. Shelton-Jenkins
Foundation Chair
July 1995 – July 2000

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The online presentation of this publication is a special feature of the Human Genome Project Information Web site.