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News Alert!
NIH Announces Expansion of Rare Diseases Clinical Research Network
Nineteen New and Returning Consortia to be Awarded $117 Million
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Rare Diseases Information
Talking Glossary of Genetics
Rare Diseases and Related Terms
NLM Gateway
PubMed
Office of Orphan Products Development, FDA
Patient Advocacy Groups
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National Organization for Rare Disorders (NORD)
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ClinicalTrials.gov
Cancer.gov: Clinical Trials
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NIH-maintained Database of Scientific Projects (CRISP)
The Rare Diseases Clinical Research Network
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Information about Rare Cancers
ORDR Co-funded Scientific Conferences
Rationale, Strengths, and Strategies for New Large Birth Cohort Studies at the Society for Epidemiologic Research
NOMA: Building a Research Infrastructure for Developing Countries
Lowe Syndrome: Clinical Challenges and Solutions
Emerging Diseases Facing Canada, Mexico, and the United States: The Potential Influence of NAFTA on the Emergence of Rare Infectious Diseases and Threats Faced by Canada, Mexico, and the U.S.
Genetics Information & Services
Collaboration, Education, and Test Translation (CETT) Program for Rare Genetic Diseases
Online Mendelian Inheritance in Man (OMIM)
Gene Tests
Genetics Home Reference (GHR)
CDC Laboratory Practice Evaluation and Genomics Branch (LPEGB)
Research Resources
ARRA: ORDR Recovery Act Information
Grants – Office of Extramural Research
National Disease Research Interchange (NDRI), National Rare Disease Biospecimen Resource (NRDBR)
NIH Office of Technology Transfer - Rare Diseases
NIH Office of Technology Transfer - Neglected Diseases
Patient Travel & Lodging
Angel Flight at NIH
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Air Charity Network (ACN)
The Children’s Inn at NIH
Edmond J. Safra Family Lodge at NIH
Reports & Publications
Biennial Report on the Rare Diseases Research Activities at the National Institutes of Health FY 2006
Annual Report on the Rare Diseases Research Activities at the National Institutes of Health FY 2005
ORDR Brochure
Rare Disease News
Advancing Rare Disease Research: The Intersection of Patient Registries, Biospecimen Repositories, and Clinical Data Workshop
NIH Announces Expansion of Rare Diseases Clinical Research Network
2009 Flu Info
ARRA: ORDR Recovery Act Information
Notice: CETT Program Update
Recursos en Español
GobiernoUSA.gov
El Centro de Información sobre Enfermedades Genéticas y Raras
Oficina Nacional de Genómica en Salud y Prevención de Enfermades de los Centros para el Control y Prevención de Enfermedades (en español)
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