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[HealthLiteracy 2219] Re: More links for studies re: access to Internet
boyd davis
boydhdavis at yahoo.comFri Aug 1 06:24:10 EDT 2008
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Marcia, thank you for the time you spent assembling this highly useful list!
Boyd Davis
--- On Thu, 7/31/08, Zorn, Marcia (NIH/NLM) [E] <zornm at mail.nlm.nih.gov> wrote:
From: Zorn, Marcia (NIH/NLM) [E] <zornm at mail.nlm.nih.gov>
Subject: [HealthLiteracy 2218] More links for studies re: access to Internet
To: "The Health and Literacy Discussion List" <healthliteracy at nifl.gov>
Date: Thursday, July 31, 2008, 1:18 PM
More links for studies re: access to Internet
Hi, all—
Some comments re access: I encourage people interested in this topic (broadly defined as digital divide or IT literacy and health) to consider joining the Digital Divide network http://www.digitaldivide.net/comm/ . Siobhan Champ-Blackwell just posted comments on it today about what a HUGE topic The Digital Divide and Human Health is. She she sees it from two sides: the health care providers who serve low income and underserved populations are themselves experiencing barriers to information, and the people they serve have barriers. Then Siobhan (who has a terrific blog at http://nnlm.gov/mcr/bhic/ ) mentions how many public & medical libraries are stepping in with service; but people still need to find out about services. This is a big issue: how people information seek, and what information they trust are separate—yet part— of the access issue. (see also Durrance and Pettigrew, 2001 ; Abrahamson & Fisher, 2007 ) Dervin’s 2001
background paper also summarizes some earlier empirical work re: everyday health information seeking and use.
The NCI HINTS (Health Information National Trends Survey) & Hints Briefs produces new data re: health information seeking & trust . One question is “How much would you trust the information about cancer from] the Internet?” http://hints.cancer.gov/questions/qDisplay.jsp?specCase=0&qID=858
See also OCLC’s 2007 Sharing, Privacy and Trust in Our Networked World for this issue.
Anyway, following are some more links for those wanting documents on the Web just re: access to Internet, especially for low literacy individuals.
--Marcia
Accessible Health Information Technology (IT) for Populations with Limited Literacy: A Guide for Developers and Purchasers of Health IT. The Agency for Healthcare Research and Quality has just published
http://healthit.ahrq.gov/portal/server.pt?open=514&objID=5554&mode=2&holderDisplayURL=http://prodportallb.ahrq.gov:7087/publishedcontent/publish/communities/k_o/knowledge_library/features_archive/features/accessible_health_information_technology__it__for_populations_with_limited_literacy__a_guide_for_developers_and_purchasers_of_health_it.html
Internet Usage by Low-Literacy Adults Seeking Health Information: An Observational Analysis. Birru MS, Monaco VM, Charles L, Drew H, Njie V, Bierria T, Detlefsen E, Steinman RA J Med Internet Res 2004;6(3):e25 http://www.jmir.org/2004/3/e25/
Health Information Literacy and Competencies of Information Age Students: Results From the Interactive Online Research Readiness Self-Assessment (RRSA). Ivanitskaya L, O’Boyle I, Casey AM J Med Internet Res 2006;8(2):e6 http://www.jmir.org/2006/2/e6/
Online Health Information and Low-Literacy African Americans Mehret S Birru and Richard A Steinman
J Med Internet Res. 2004 Jul–Sep; 6(3): e26. Published online 2004 September 3. doi: 10.2196/jmir.6.3.e26.
http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=1550609
What do we mean by Internet access? A framework for health researchers. Bush NE, Bowen DJ, Wooldridge J, Ludwig A, Meischke H, Robbins R Preventing Chronic Disease [serial online], 2004. Available from http://www.cdc.gov/pcd/issues/2004/oct/04_0019.htm
Lower-Literacy Users. Jakob Nielsen's Alertbox, March 14, 2005 http://www.useit.com/alertbox/20050314.html
Enhancing access to relevant health information. Kreps, G.L. (2002). In R. Carveth, S. B. Kretchmer, & D. Schuler (Eds.). Shaping the network society: Patterns for participation, action, and change (pp. 149-152). CPSR: Palo Alto, CA. http://www.amia.org/meetings/s03/presentations/Access.pdf
Health literacy and cancer communication. Davis TC, Williams MV, Marin E, Parker RM, Glass J. CA Cancer J Clin 2002; 52:134 http://caonline.amcancersoc.org/cgi/content/full/52/3/134
One Fifth of Americans Never use the Internet? Benton Web site http://www.benton.org/node/6791 Lasar's] The average respondent spent about 12.8 hours a week on line, according to the report http://hraunfoss.fcc.gov/edocs_public/attachmatch/DA-07-3470A2.pdf . More about the FCC Report author: M Lasar http://www.lasarletter.net/drupal/node/447
Poll #108: Four in Five of All U.S. Adults – An Estimated 178 million – Go Online Nov 5, Harris Poll, the number of adults who are online at home, in the office, at school, library or other locations continues to grow at a steady rate. In 2007, the number of online users reached an estimated 178 million, a ten percent increase. http://www.harrisinteractive.com/harris_poll/index.asp?PID=827
Public Access to the Internet, Arunachalam, Subbiah 26 Jan 2006, extract from the book Word Matters: multicultural perspectives on information societies. This book, which has been coordinated by Alain Ambrosi, Valérie Peugeot and Daniel Pimienta released on Nov 5, 2005 by C & F Éditions.
Ensuring Information Access for Low-Literate Adults, Pam Whitten, Michael Mackert, Mr Brad Love
http://gateway.nlm.nih.gov/MeetingAbstracts/ma?f=103622778.html
Internet & Society 2007 Conference MANY links http://www.is2k7.org/ (Harvard's Berkman Center for Internet and Society Cambridge, MA May 31-Jun 1, 2007)
Participative Web and User-Created Content: Web 2.0, Wikis and Social Networking 124p, ISBN 978-92-64-03746-5, Published: Oct 2007 This study describes the rapid growth of UCC & its increasing role in worldwide communication. Free PDF e-book from OECD, http://213.253.134.43/oecd/pdfs/browseit/9307031E.PDF
Where Does the U.S. Really Stand on Broadband and Do Policy Makers Have the Tools to Know? http://www.benton.org/?q=node/6256
Technology & Media Use: Home Broadband Adoption 2007, Pew Internet Report June 2007: by John Horrigan & Aaron Smith 47% of adults have high-speed internet connections at home as of early March 2007
14p Memo http://www.pewinternet.org/pdfs/PIP_Broadband%202007.pdf
Other recent reports & memos re: Technology & Media http://www.pewinternet.org/PPF/c/1/topics.asp
Internet Passes Radio, Closes in on Television as “Most Essential” Medium in American Life (7 p. summary of Edison Res Rept, 2007) http://www.edisonresearch.com/home/archives/Q3%20Media%20Perceptions%20-%20large%20slides%20_2_.pdf
Carl and Ruth Shapiro Family National Center for Accessible Media [pdf] http://ncam.wgbh.org/
Don’t Leave Me Out! Designing Usable and Accessible Web Sites May 2007 Ginny Redish
http://www.stc.org/54thConf/sessions/sessionMaterials05.asp?ID=57
Communication Rules editorial (HarrisInteractive Trends & Tudes V6#1 Fe 2007) by S Martin & L Crane examines communication tools such as the Internet, cell phones & text messaging, which young people seem to grasp rules for using http://www.harrisinteractive.com/news/newsletters/k12news/HI_TrendsTudes_2007_v06_i02.pdf
A review of national information and communication technologies (ICT) and a proposed National Electronic Initiative Framework (NEIF) by Alan R. Peslak (originally published in May 2006) First Monday
http://www.firstmonday.org/issues/issue11_5/peslak/index.html
Effective use: A community informatics strategy beyond the Digital Divide by Michael Gurstein (c2003) http://www.firstmonday.org/issues/issue8_12/gurstein/index.html
Your Guide to the Digital Divide by Mark Glaser gives an overview of the digital media revolution, annotated with online resources and tips. http://www.pbs.org/mediashift/2007/01/digging_deeperyour_guide_to_th.html
Magnifico: Science, literacy, and the internet? Understanding how young people evaluate information on the internet. http://spotlight.macfound.org/main/entry/magnifico_science_literacy_and_the_internet/
Latinos Online [Pew Hispanic Center Release] by Susannah Fox and Gretchen Livingston, is based on telephone surveys of 6,016 Latino adults, aged 18+, Jun 2006 – Oct 2006 http://pewhispanic.org
Modern Technology has Tremendous Impact on the Way Teens Communicate (Harris Interactive Fe 20, 2007) http://www.harrisinteractive.com/news/allnewsbydate.asp?NewsID=1181
A goal of the Macarthur Foundation digital media and learning initiative is to better understand how young people evaluate information that they find on the internet In session on games and learning—report by Johathan Fanton http://spotlight.macfound.org/main/entry/games_panel_crowd/.
New Literacies of the Internet Literacy expert Donald Leu addresses reading and writing strategies required for using the Internet and how these new literacies are changing the way we teach in grades 3-5. http://www.learner.org/channel/workshops/teachreading35/session5/index.html
Adding Societal Impact and Reflection to Information Technology Fluency Classes Golub, E. (Dec 2006) HCIL-2006- http://hcil.cs.umd.edu/trs/2006-28/2006-28.pdf
Beyond the Printed Page: Style Suggestions for Electronic Texts. J Online Learning and Teaching V2#4, Dec 2006 GL Bradshaw & RJ Crutcher http://jolt.merlot.org/vol2no4/bradshaw.htm
Communication Technology and the Evolution of Knowledge H Wilder & SP Ferris V9#2,Sum 2006 http://www.hti.umich.edu/cgi/t/text/text-idx?c=jep;cc=jep;rgn=main;view=text;idno=3336451.0009.201
How Low-Resolution Displays Have Changed the Way We Read, Write, and Interact J Follett, Aug 2006 Digital Web Magazine http://www.digital-web.com/articles/vision_quest/
Internet World Usage Stats http://www.internetworldstats.com/stats2.htm
Communication Technologies -- A Decision Tree for Users http://blogs.salon.com/0002007/categories/blogsBlogging/2006/11/24.html
Information Literacy: Research Perspective Peter Brophy PPT
http://www.cilip.org.uk/NR/rdonlyres/C64B5AC3-BCFB-49B3-8C12-8D363FDAEE31/0/Brophy.ppt
Accessing information about health and social care services, Picker Institute research for the UK Dept of Health (Apr 2007) found that too often services supposed to help people at a time of real need instead throw them back on their own resources, requiring their considerable time, effort & determination to get information relevant to their circumstances. News release at http://www.pickereurope.org/Filestore/Downloads/News_release_access_to_information_for_health_and_social_care_service_users.pdf
Brief at http://www.pickereurope.org/Filestore/Downloads/At_a_Crossroads_Without_Signposts_information_report_summary_Apr07.pdf and the
Accessing information about health and social care services at 108 p. report, http://www.pickereurope.org/Filestore/Publications/Information_access_final_web.pdf
http://www.pickereurope.org/Filestore/Downloads/At_a_Crossroads_Without_Signposts_information_report_summary_Apr07.pdf
UNESCO and IFLA redesigned the Information Literacy Resources Directory. at http://www.infolitglobal.info/. links to Web information literacy sites (including literacy materials from different parts of the world, on behalf of UNESCO )
For example, Information Literacy in the Health Sciences (McGIll U) http://www.health.library.mcgill.ca/course/infolit.htm
Stanford's Key to Information Literacy: an interactive tutorial! http://skil.stanford.edu/intro/index.html
Information Literacy (ACRL) http://www.ala.org/ala/acrl/acrlstandards/informationliteracycompetency.htm
Everyday inclusive Web design: an activity perspective S. Kane IR: Information Research V12 # 3, Apr 2007 http://informationr.net/ir/12-3/paper309.html
E Learning and the World Wide Web - Accessibility and Participation for People with Learning Disabilities
ESRC Award/Grant Title: APPLE RES-328-25-0025 -Research Summary at http://www.esrcsocietytoday.ac.uk/ESRCInfoCentre/Plain_English_Summaries/knowledge_communication_learning/index135.aspx?ComponentId=17307&SourcePageId=11748
Full Research Report by Minnion, Andrew E-Learning and the World Wide Web - Accessibility and Participation for People with Cognitive Disabilities attached as file to http://tinyurl.com/ysgfnv
The Infinite Dial 2007: Radio's Digital Platforms, Edison Media Research & Arbitron follow-up to Infinite Dial study explores the digital audio platforms (radio, podcasting, other) & implications Summary Report http://www.edisonresearch.com/home/archives/Infinite%20Dial%202007_Report.pdf
Press Release http://www.edisonresearch.com/home/archives/Infinite%20Dial%202007_Press%20Release%20%282%29.doc
RES-328-25-0025 - E Learning and the World Wide Web - Accessibility and Participation for People with Learning Disabilities http://www.esrcsocietytoday.ac.uk/ESRCInfoCentre/Plain_English_Summaries/knowledge_communication_learning/index135.aspx?ComponentId=17307&SourcePageId=11748
Critical Appraisal Links from Information Literacy Web site http://www.informationliteracy.co.uk/Resources_By_Sector/Health/Critical_appraisal.aspx
Information Literacy in a Digital World Lynne Brindley: Power Point presentation
http://www.cilip.org.uk/NR/rdonlyres/4B47053F-F385-4436-902C-A1AE6CFE570F/0/brindley.ppt
75% of 800 consumers surveyed by Prospectiv's June 2007 Pharmaceutical Marketing CPI poll feel the Internet is their most trusted source for health information http://www.prospectiv.com/press121.jsp
New Research Norms for a New Medium by H. Nissenbaum in The Commodification of Information. N. Elkin-Koren and N. Netanel (eds), 2002. 433-457. (26 p. paper up-side-down) http://www.nyu.edu/projects/nissenbaum/papers/research_norms.pdf
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