Hi, all-

Some comments re access:  I encourage people interested in this topic (broadly defined as digital divide or IT literacy and health) to consider joining the Digital Divide network http://www.digitaldivide.net/comm/  .  Siobhan Champ-Blackwell just posted comments on it today about what a HUGE topic The Digital Divide and Human Health is.  She she sees it from two sides:  the health care providers who serve low income and underserved populations are themselves experiencing barriers to information, and the people they serve have barriers. Then Siobhan (who has a terrific blog at http://nnlm.gov/mcr/bhic/ )  mentions how many public & medical libraries are stepping in with service; but people still need to find out about services. This is a big issue: how people information seek, and what information they trust are separate-yet part- of the access issue. (see also Durrance and Pettigrew, 2001 <http://www.firstmonday.org/issues/issue6_4/durrance/index.html>  ;  Abrahamson & Fisher, 2007 <http://informationr.net/ir/12-4/colis/colis15.html>  )   Dervin's 2001 <http://communication.sbs.ohio-state.edu/sense-making/artdirect/artdervin01nlm.pdf>   background paper also summarizes some earlier empirical work re: everyday health information seeking and use.   

The NCI  HINTS <http://hints.cancer.gov/>  (Health Information National Trends Survey) & Hints Briefs  <http://hints.cancer.gov/docs/HINTS_Brief_10_061708.pdf>  produces new data re: health information seeking & trust . One question is "How much would you trust the information about cancer from] the Internet?" http://hints.cancer.gov/questions/qDisplay.jsp?specCase=0&qID=858 
See also OCLC's 2007 Sharing, Privacy and Trust in Our Networked World <http://www.oclc.org/reports/pdfs/sharing.pdf>  for this issue.

Anyway, following are some more links for those wanting documents on the Web just re: access to Internet, especially for low literacy individuals. 

 
--Marcia

Accessible Health Information Technology (IT) for Populations with Limited Literacy: A Guide for Developers and Purchasers of Health IT. The Agency for Healthcare Research and Quality has just published 
http://healthit.ahrq.gov/portal/server.pt?open=514&objID=5554&mode=2&holderDisplayURL=http://prodportallb.ahrq.gov:7087/publishedcontent/publish/communities/k_o/knowledge_library/features_archive/features/accessible_health_information_technology__it__for_populations_with_limited_literacy__a_guide_for_developers_and_purchasers_of_health_it.html
Internet Usage by Low-Literacy Adults Seeking Health Information: An Observational Analysis. Birru MS, Monaco VM, Charles L, Drew H, Njie V, Bierria T, Detlefsen E, Steinman RA J Med Internet Res 2004;6(3):e25  http://www.jmir.org/2004/3/e25/  

Health Information Literacy and Competencies of Information Age Students: Results From the Interactive Online Research Readiness Self-Assessment (RRSA). Ivanitskaya L, O'Boyle I, Casey AM  J Med Internet Res 2006;8(2):e6  http://www.jmir.org/2006/2/e6/ 

Online Health Information and Low-Literacy African Americans  Mehret S Birru and Richard A Steinman
J Med Internet Res. 2004 Jul-Sep; 6(3): e26. Published online 2004 September 3. doi: 10.2196/jmir.6.3.e26. 
http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=1550609 

 What do we mean by Internet access? A framework for health researchers. Bush NE, Bowen DJ, Wooldridge J, Ludwig A, Meischke H, Robbins R Preventing Chronic Disease [serial online], 2004. Available from http://www.cdc.gov/pcd/issues/2004/oct/04_0019.htm  

Lower-Literacy Users. Jakob Nielsen's Alertbox, March 14, 2005 http://www.useit.com/alertbox/20050314.html  

Enhancing access to relevant health information. Kreps, G.L. (2002). In R. Carveth, S. B. Kretchmer, & D. Schuler (Eds.). Shaping the network society: Patterns for participation, action, and change (pp. 149-152). CPSR: Palo Alto, CA. http://www.amia.org/meetings/s03/presentations/Access.pdf 

Health literacy and cancer communication. Davis TC, Williams MV, Marin E, Parker RM, Glass J. CA Cancer J Clin 2002; 52:134 http://caonline.amcancersoc.org/cgi/content/full/52/3/134 

One Fifth of Americans Never use the Internet? Benton Web site http://www.benton.org/node/6791 Lasar's] The average respondent spent about 12.8 hours a week on line, according to the report http://hraunfoss.fcc.gov/edocs_public/attachmatch/DA-07-3470A2.pdf . More about the FCC Report  author: M Lasar http://www.lasarletter.net/drupal/node/447 

Poll #108: Four in Five of All U.S. Adults - An Estimated 178 million - Go Online Nov 5, Harris Poll, the  number of adults who are online at home, in the office, at school, library or other locations continues to grow at a steady rate. In 2007, the number of online users reached an estimated 178 million, a ten percent increase.  http://www.harrisinteractive.com/harris_poll/index.asp?PID=827

Public Access to the Internet, Arunachalam, Subbiah 26 Jan 2006, extract from the book Word Matters: multicultural perspectives on information societies. This book, which has been coordinated by Alain Ambrosi, Valérie Peugeot and Daniel Pimienta released on Nov 5, 2005 by C & F Éditions <http://cfeditions.com> .

Ensuring Information Access for Low-Literate Adults, Pam Whitten, Michael Mackert, Mr Brad Love 
http://gateway.nlm.nih.gov/MeetingAbstracts/ma?f=103622778.html

Internet & Society 2007 Conference MANY links http://www.is2k7.org/ (Harvard's Berkman Center for Internet and Society Cambridge, MA May 31-Jun 1, 2007) 

Participative Web and User-Created Content: Web 2.0, Wikis and Social Networking 124p, ISBN 978-92-64-03746-5, Published: Oct 2007  This study describes the rapid growth of UCC & its increasing role in worldwide communication. Free PDF e-book from OECD, http://213.253.134.43/oecd/pdfs/browseit/9307031E.PDF 

Where Does the U.S. Really Stand on Broadband and Do Policy Makers Have the Tools to Know? http://www.benton.org/?q=node/6256

Technology & Media Use: Home Broadband Adoption 2007, Pew Internet Report June 2007: by John Horrigan & Aaron Smith 47% of adults have high-speed internet connections at home as of early March 2007 
14p Memo http://www.pewinternet.org/pdfs/PIP_Broadband%202007.pdf 
Other recent reports & memos re: Technology & Media http://www.pewinternet.org/PPF/c/1/topics.asp 

Internet Passes Radio, Closes in on Television as "Most Essential" Medium in American Life (7 p. summary of Edison Res Rept, 2007) http://www.edisonresearch.com/home/archives/Q3%20Media%20Perceptions%20-%20large%20slides%20_2_.pdf 

Carl and Ruth Shapiro Family National Center for Accessible Media [pdf] http://ncam.wgbh.org/

Don't Leave Me Out! Designing Usable and Accessible Web Sites May 2007 Ginny Redish
http://www.stc.org/54thConf/sessions/sessionMaterials05.asp?ID=57 

Communication Rules editorial (HarrisInteractive Trends & Tudes V6#1 Fe 2007) by S Martin & L Crane examines communication tools such as the Internet, cell phones & text messaging, which young people seem to grasp rules for using http://www.harrisinteractive.com/news/newsletters/k12news/HI_TrendsTudes_2007_v06_i02.pdf

A review of national information and communication technologies (ICT) and a proposed National Electronic Initiative Framework (NEIF) by Alan R. Peslak (originally published in May 2006) First Monday 
http://www.firstmonday.org/issues/issue11_5/peslak/index.html

Effective use: A community informatics strategy beyond the Digital Divide by Michael Gurstein (c2003) http://www.firstmonday.org/issues/issue8_12/gurstein/index.html 

Your Guide to the Digital Divide by Mark Glaser gives an overview of the digital media revolution, annotated with online resources and tips. http://www.pbs.org/mediashift/2007/01/digging_deeperyour_guide_to_th.html 

Magnifico: Science, literacy, and the internet? Understanding how young people evaluate information on the internet. http://spotlight.macfound.org/main/entry/magnifico_science_literacy_and_the_internet/ 

Latinos Online [Pew Hispanic Center Release] by Susannah Fox and Gretchen Livingston, is based on telephone surveys of 6,016 Latino adults, aged 18+, Jun 2006 - Oct 2006 http://pewhispanic.org <http://pewhispanic.org/> 

Modern Technology has Tremendous Impact on the Way Teens Communicate (Harris Interactive Fe 20, 2007) http://www.harrisinteractive.com/news/allnewsbydate.asp?NewsID=1181 

A goal of the Macarthur Foundation digital media and learning initiative is to better understand how young people evaluate information that they find on the internet In session on games and learning-report by Johathan Fanton http://spotlight.macfound.org/main/entry/games_panel_crowd/.

New Literacies of the Internet Literacy expert Donald Leu addresses reading and writing strategies required for using the Internet and how these new literacies are changing the way we teach in grades 3-5. http://www.learner.org/channel/workshops/teachreading35/session5/index.html 

Adding Societal Impact and Reflection to Information Technology Fluency Classes Golub, E. (Dec 2006)  HCIL-2006- http://hcil.cs.umd.edu/trs/2006-28/2006-28.pdf  

Beyond the Printed Page: Style Suggestions for Electronic Texts. J Online Learning and Teaching V2#4, Dec 2006 GL Bradshaw & RJ Crutcher http://jolt.merlot.org/vol2no4/bradshaw.htm 

Communication Technology and the Evolution of Knowledge H Wilder & SP Ferris V9#2,Sum 2006 http://www.hti.umich.edu/cgi/t/text/text-idx?c=jep;cc=jep;rgn=main;view=text;idno=3336451.0009.201 

How Low-Resolution Displays Have Changed the Way We Read, Write, and Interact J Follett, Aug 2006 Digital Web Magazine http://www.digital-web.com/articles/vision_quest/ 

Internet World Usage Stats http://www.internetworldstats.com/stats2.htm 

Communication Technologies -- A Decision Tree for Users http://blogs.salon.com/0002007/categories/blogsBlogging/2006/11/24.html
Information Literacy: Research Perspective Peter Brophy PPT
 http://www.cilip.org.uk/NR/rdonlyres/C64B5AC3-BCFB-49B3-8C12-8D363FDAEE31/0/Brophy.ppt

Accessing information about health and social care services, Picker Institute research for the UK Dept of Health (Apr 2007) found that too often services supposed to help people at a time of real need instead throw them back on their own resources, requiring their considerable time, effort & determination to get information relevant to their circumstances. News release at http://www.pickereurope.org/Filestore/Downloads/News_release_access_to_information_for_health_and_social_care_service_users.pdf
Brief at http://www.pickereurope.org/Filestore/Downloads/At_a_Crossroads_Without_Signposts_information_report_summary_Apr07.pdf and the 
Accessing information about health and social care services at 108 p. report, http://www.pickereurope.org/Filestore/Publications/Information_access_final_web.pdf
http://www.pickereurope.org/Filestore/Downloads/At_a_Crossroads_Without_Signposts_information_report_summary_Apr07.pdf

UNESCO and IFLA redesigned the Information Literacy Resources Directory <http://www.infolitglobal.info/> . at http://www.infolitglobal.info/. links to Web information literacy sites (including literacy materials from different parts of the world, on behalf of UNESCO <http://www.unesco.org/webworld/mdm>  )
For example, Information Literacy in the Health Sciences (McGIll U) http://www.health.library.mcgill.ca/course/infolit.htm

Stanford's Key to Information Literacy: an interactive tutorial! http://skil.stanford.edu/intro/index.html 

Information Literacy (ACRL) http://www.ala.org/ala/acrl/acrlstandards/informationliteracycompetency.htm 

Everyday inclusive Web design: an activity perspective S. Kane IR: Information Research V12 # 3, Apr 2007  http://informationr.net/ir/12-3/paper309.html 

E Learning and the World Wide Web - Accessibility and Participation for People with Learning Disabilities 
ESRC Award/Grant Title: APPLE RES-328-25-0025 -Research Summary at http://www.esrcsocietytoday.ac.uk/ESRCInfoCentre/Plain_English_Summaries/knowledge_communication_learning/index135.aspx?ComponentId=17307&SourcePageId=11748 
Full Research Report by Minnion, Andrew E-Learning and the World Wide Web - Accessibility and Participation for People with Cognitive Disabilities attached as file to http://tinyurl.com/ysgfnv 

The Infinite Dial 2007: Radio's Digital Platforms, Edison Media Research & Arbitron follow-up to Infinite Dial study explores the digital audio platforms (radio, podcasting, other) & implications  Summary Report http://www.edisonresearch.com/home/archives/Infinite%20Dial%202007_Report.pdf 
Press Release http://www.edisonresearch.com/home/archives/Infinite%20Dial%202007_Press%20Release%20%282%29.doc 

RES-328-25-0025 - E Learning and the World Wide Web - Accessibility and Participation for People with Learning Disabilities http://www.esrcsocietytoday.ac.uk/ESRCInfoCentre/Plain_English_Summaries/knowledge_communication_learning/index135.aspx?ComponentId=17307&SourcePageId=11748

Critical Appraisal Links from Information Literacy Web site http://www.informationliteracy.co.uk/Resources_By_Sector/Health/Critical_appraisal.aspx 

Information Literacy in a Digital World Lynne Brindley: Power Point presentation  
http://www.cilip.org.uk/NR/rdonlyres/4B47053F-F385-4436-902C-A1AE6CFE570F/0/brindley.ppt 

75% of 800 consumers surveyed by Prospectiv's June 2007 Pharmaceutical Marketing CPI poll feel the Internet is their most trusted source for health information http://www.prospectiv.com/press121.jsp

New Research Norms for a New Medium by H. Nissenbaum in The Commodification of Information.  N. Elkin-Koren and N. Netanel (eds), 2002. 433-457. (26 p. paper up-side-down) http://www.nyu.edu/projects/nissenbaum/papers/research_norms.pdf







-------------- next part --------------
An HTML attachment was scrubbed...
URL: http://www.nifl.gov/pipermail/healthliteracy/attachments/20080731/f3543b26/attachment.html