Immune Deficiency Foundation - IDF
Organization URL(s)
idf@primaryimmune.orgwww.primaryimmune.org/
Other Contact Information
40 West Chesapeake Avenue
Suite 308
Towson,
MD 21204
800-296-4433 (Voice - Toll-free)
410-321-6647 (Voice)
410-321-9165 (FAX)
Description
The Immune Deficiency Foundation (IDF) is a nonprofit, national, voluntary, health organization dedicated to promoting and supporting research into the causes, prevention, treatment, and cure of primary immunodeficiency diseases; gathering and disseminating information concerning research and treatment of these diseases; increasing public awareness; and establishing chapters in each State. Primary Immunodeficiency diseases (ranging in prevalence from 1 in 500 individuals to 30 to 50 cases yearly in the U.S.) are a group of diseases which occur when part of the body's immune system components is missing or does not function properly. This organization is supported by grants and donations from concerned individuals and groups.
Online Resources
- Peer Support: Local Immune Deficiency Foundation Programs
http://www.primaryimmune.org/patients_families/peersupport_outreach.htm - What is a Primary Immune Deficiency Disease?
http://www.primaryimmune.org/about_pi/about_pi.htm
Print Resources
The Foundation produces brochures with information on specific immunodeficiency diseases, home care, and suggested readings--Immune Deficiency Diseases: An Overview, Immune Deficiency Diseases: A Guide for Nurses, and Immune Deficiency Diseases: Patient and Family Handbook. Serial Publications: IDF Newsletter--information on IDF and research and treatment of immune deficiency diseases and chapter news.