Foundations and Private Organizations |
These are usually groups that
support and promote activities related to a specific goal such as
improving care for children. Activities can include the funding of
research and providing information related to a specific topic such
as the developmental needs of children. |
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Board on Children,
Youth, and Families at Institute of Medicine
BOCYF
The Board on Children, Youth, and Families addresses policy-relevant
issues related to the health and development of children and
families by convening experts to weigh in on matters from the point
of view of the social, behavioral, and health sciences. |
The Center for Child Well-being
The Center focuses on nurturing strengths in children that contribute
to their health and well-being, including physical health, growth of
the mind, and social and emotional development. The website
includes parenting forums, and resources for parents and community
members. |
Commonwealth Fund
The Commonwealth Fund is a private foundation that supports independent
research on health & social issues. This foundation also makes
grants to improve health care practice & policy. |
Family Voices
Family Voices is a national, grassroots organization that serves as a
clearinghouse for information and education concerning the health
care of children with special health needs. The website
includes links to resources and information on advocacy. |
First Signs
First Signs is a national non-profit organization dedicated to
educating parents and physicians about the early warning signs of
autism and other developmental disorders. The site offers
information on screening, development, referral, treatment, and
resources for parents. |
IDEA Infant and Toddler
Coordinators Association
Organizational activities of this association include promoting
the exchange of information in the administration of the IDEA Infant
and Toddler Program, providing support to state coordinators,
increasing awareness among decision-makers of the needs of children
and their families, and providing leadership to help meet the
developmental needs of infants & toddlers. |
National Association for Child
Development NACD
An international organization of parents and professionals dedicated to
helping children and adults reach their full potential through the
use of innovative techniques and research. The site offers
information on the program, information on joining, and publications
and resources. |
National Association for the Education
of Young Children
NAEYC
The nation's largest and most influential organization of early
childhood educators and others dedicated to improving the quality of
programs for children from birth through third grade. The site
can locate accredited programs by zipcode. |
Zero to Three
ZERO TO THREE's mission is to promote the healthy development of our
nation's infants and toddlers by supporting and strengthening
families, communities, and those who work on their behalf. The
site includes resources for parents and professionals. |
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Federal |
Agencies and organizations listed as
“Federal” include those that are associated with the U.S. Department
of Health and Human Services, the U.S. Department of Education, or
another government agency. These agencies and organizations provide
a range of information related to the early identification of
children who might benefit from early intervention and education
services, statistics about America’s health, assessing development,
legislation, and improving outcomes for people with disabilities. |
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Administration for Children and
Families ACF
ACF is a federal agency that funds state, territory, local, and tribal
organizations to provide family assistance (welfare), child support,
child care, Head Start, child welfare, and other programs relating
to children and families. |
Agency for Health Care Research
(Child Health Toolbox)
AHRQ
Measures health care performance in child health programs |
Centers for Medicare & Medicaid Services CMS
CMS is the federal agency that works to assure health care security for
recipients of programs such as Medicare and Medicaid. |
Child Find (component of IDEA)
Child Find is apart of IDEA and provides information related to the
early identification of young children and their families who may
benefit from early intervention or education services. |
Department of Education
DOE
The DOE provides information related to early childhood education and
assessing development in children |
Individuals with
Disabilities Education Act IDEA
The National Early Childhood Technical Assistance Center website
provides the full text of the IDEA legislation and other
related information. |
Maternal and Child Health Bureau
MCHB
MCHB focuses on maternal and child health and is responsible for Title
V of the Social Security Act. Title V is a Federal block grant
program that is responsible for ensuring the health of all mothers,
infants, children, adolescents, and children with special health
care needs. |
National Center on Birth Defects
and Developmental Disabilities NCBDDD
NCBDDD is apart of the Centers for Disease Control and Prevention (CDC)
and promotes the health of babies, children, and adults, to enhance
the potential for full, productive living. |
National Center for Health
Statistics NCHS
NCHS is the principal U.S. health statistics agency and compiles
statistical information to guide actions and policies to improve the
health of people. |
NCHS State and Local Area
Integrated Telephone Survey SLAITS
SLAITS provides in-depth State and local area data that can be used to
help meet various program and policy needs. |
Department of Education,
Office of Special Education and Rehabilitative Services
OSERS
OSERS is apart of the U.S. Department of Education and is committed to
improving results and outcomes for people with disabilities of all
ages. |
State Children's Health Insurance
Program SCHIP
SCHIP is a program that was created by the Balanced Budget Act of 1997
and enables States to initiate and expand health insurance coverage
for uninsured children. |
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Professional |
Professional organizations are those
that represent a certain profession or area of research. The members
of these organizations are usually involved in the given profession
or area of research. The organizations listed under the Professional
category include those that represent nurses, pediatricians, and
child development research. |
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American Academy of Pediatrics
AAP
The mission of the American Academy of Pediatrics is to attain optimal
physical, mental, and social health and well-being for all infants,
children, adolescents, and young adults. The site lists
resources including books and articles, and provides articles on
current topics. |
American Academy of Family Physicians
The AAFP is an organization that represents family physicians, family
practice residents and medical students and is dedicated to
preserving and promoting the science and art of family medicine and
to ensure high-quality, cost-effective health care for patients. |
National Association of Pediatric
Nurse Practitioners NAPNAP
NAPNAP is a non-profit nursing organization that is devoted to
improving the quality of infant and child health care. |
National Center of Medical
Home Initiatives for Children with Special Needs
The American Academy of Pediatrics’ medical home website contains
resources, information, and tools on providing medical homes for
children and youth with special health care needs (CYSHCN). Visit
this site to learn more about CYSHCN, the providers and families
that care for them, and the strategies that practices, communities,
and states are taking to improve the lives of CYSHCN. |
Society for Research on Child
Development SRCD
The purposes of SRCD are to promote multidisciplinary research in the
field of human development, to foster the exchange of information
among scientists and other professionals of various disciplines, and
to encourage applications of research findings. The site
includes resources, and information on conferences. |
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Promoting Developmental Screening |
This section provides information on
programs that work to promote developmental screening. |
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Assuring Better Child Health and Development Program ABCD Program
The ABCD program is a part of the Commonwealth Fund and emphasizes new
opportunities to expand child development services through Medicaid,
the state Children’s Health Insurance Program, and community health
centers. |
Bright Futures BF
A national initiative to promote and improve the health and well-being
of infants, children, and adolescents. The site includes
publications, training tools, and distance learning materials. |
Child
Find Demonstration Projects
Descriptions of the Office of Special Education Programs Early
Childhood Child Find Projects are listed here |
Healthy Steps for Young Children
Program
The Healthy Steps program is a national initiative that focuses on the
importance of the first three years of life and is connected to
health care practices. The Healthy Steps approach emphasizes a close
relationship between mothers, fathers, and health care professionals
in addressing the physical, emotional, and intellectual growth and
development of children from birth to age three. |
Tracking, Referral, and Assessment Center for Excellence
TRACE
This project, funded through the Office of Special Education Programs,
will establish a center to identify and promote the use of
scientifically based models and practices for early identification,
child find, and referral for infants and children with disabilities
and their families who are eligible for Part C early intervention
and Part B early childhood special education programs. |
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Developmental Screening Research |
This section provides information
about research efforts on or related to developmental screening. |
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American Academy of
Pediatrics (AAP), Periodic Survey of Fellows
The AAP Periodic Survey of Fellows is a questionnaire that is mailed to
a random sample of approximately 1600 Academy fellows. The survey is
intended to gather information about issues of interest to the AAP
and is used for informing policy, developing new initiatives, or
modifying or evaluating existing projects. |
Annual Early
Periodic Screening, Diagnostic, and Treatment Report EPSDT
Report
The EPSDT service is Medicaid's comprehensive and preventive child
health program for individuals under the age of 21. EPSDT includes
periodic screening, vision, dental, and hearing services. |
National
Survey of Early Childhood Health NSECH
The NSECH provides national baseline data on pediatric care (and its
impact) from the parent’s perspective. Survey questions focus on the
delivery of pediatric care to families with children under 3
years-of-age and the promotion of young children’s health by
families in their homes. |
California Children and Families
Commission
The California Children and Families Act of 1998 is designed to
provide, on a community-by-community basis, all children prenatal to
five years-of-age with a comprehensive, integrated system of early
childhood development services. The site offers links to
current articles and focuses on current state legislation. |
The Whole Child
Resources for parents and educators including articles, videos, and age
appropriate activities. |