Canavan Research Illinois
'A Family's Fight
For the Cure'
"On March 6th 1998, we were given the news that no parent ever wants to
hear... our son, Max Randell, was diagnosed with Canavan disease."
Our beautiful 4½ month old baby boy was dying of Canavan disease, a degenerative brain
disease for which there was no cure or treatment. At that point we
decided to fight for our dear little Max and all the other children
with Canavan disease.
We soon learned that there was one chance in the world for our son... experimental
research pioneered by parents determined to keep their children and
hope alive. Our family joined forces with other families affected by
Canavan disease in the hopes that no parent would ever have to hear
those words again. We founded Canavan Research Illinois, a public
charity, based in Illinois, dedicated to curing Canavan disease.
Ilyce & Michael Randell, co-founders
Canavan Research Illinois
2004 - 'Make A Difference Day Award Winner'
2006 - Diet Rite Cola 'Zero Boundaries Award'
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In the News:
Max Randell at 2½
Now eleven, little Max has represented our battle to save the childhood
victims of Canavan disease on Dateline NBC, Leeza, Montel,
Philadelphia Inquirer, Washington Post, and the Chicago
Tribune.
Our dedication
to these precious children has been recognized by:
Dateline NBC
Leeza
Montel
Philadelphia Inquirer
Live W/ Regis and Kelly
Washington Post
Daily Herald
Pioneer Press
Chicago Tribune
October again was proclaimed 'Canavan Disease Awareness
Month' in honor of the '10th Annual Canavan Charity Ball'
and
Max's 11th Birthday!
click for
invitation
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