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Support Groups Online Support Groups
The Pulmonary Fibrosis Foundation's online support group may
be accessed by A caregiver's online support group is also available: http://health.groups.yahoo.com/group/Breathe-SupportCaregivers/ This group is for people who take care of and support the people who have pulmonary fibrosis. Lung transplant. Should I or shouldn't I? Check out our newly formed online support group for Lung Transplant patients before and after. This forum will be for people trying to decide whether or not to have a transplant but also for people who have had a transplant and can share their story with those who are waiting or deciding. Here's the link: http://health.groups.yahoo.com/group/Breathe-SupportLungTransplant/. If your loved one passed away from pulmonary fibrosis and you would like to "talk" to someone, you can connect with people on our grief board: http://health.groups.yahoo.com/group/Breathe-SupportGrief/. UK on-line support groups providing support and information for people suffering from pulmonary fibrosis primarily in the UK but anyone can participate. This site is for patients, carers and people who have lost a loved one to pf: http://health.groups.yahoo.com/group/pulmonaryfibrosis & www.pulmonaryfibrosis.org.uk India on-line support group providing support to patients and their families in India who are dealing with pulmonary fibrosis: http://health.groups.yahoo.com/group/PF_Support_Group_India
Chicago and Suburbs, IL The Breakfast Club, Pulmonary Fibrosis Support Group Meetings: 4th Saturday of the month - 10:00 AM Location: Elmhurst Memorial Center for health Contact: Leanne Storch 312-587-9272 RSVP, please This meeting is open to Pulmonary Fibrosis patients and their families and friends.
Joliet, IL Pulmonary Support Group Meetings: 2nd Thursday of the month - 10:00 am - 11:00 am Location: Silver Cross Hospital, Specialty Care Pavilion, 1300 Copperfield Avenue Call: 888-660-4325 This support group is for individuals with pulmonary fibrosis, sarcoidosis, emphysema, chronic bronchitis, COPD & adult asthma
Naperville, IL Pulmonary
Fibrosis Support Group Location:
Edward Hospital, 801 S. Washington Street, Naperville, IL
Scottsdale, AZ Pulmonary Fibrosis Support Group Location: Via Linda Senior Center, 10440 E. Via Linda, (480) 312-5810 Meetings: Last Saturday of the month Contact information: Lillian (480) 219-6260 -Home (480) 570-9929 -Cell
Sacramento
, Meetings: 3rd Monday of the month (call for confirmation) 1:30 - 3:30 PM Contact information: Sandra Rock (916) 354-1324
Victorville, CA Pulmonary Fibrosis Support Group Location: Charitable Foundation 16716 Bear Valley Road Meetings: 1st Wednesday of every month, 3:00 - 4:30 PM Contact information: Steve Clemmons (760) 246-7711
Pulmonary Fibrosis support group Location: National Jewish Medical and Research Center 1400 Jackson Street, Denver Meetings: Every other month Contact information: Carol Bair, RCP, (800) 423-8891 x 1621
Wheatridge, CO Pulmonary Fibrosis Support Group Location: Exempla Lutheran Rehabilitation Center 9830 I-70 Frontage Road South Conference Room Meetings: Last Tuesday of the month 2:00pm – 3:30pm Contact information: Brenda Crowe, CRTT 303-467-4133 or Phil Konsella 303-526-0541 or 303-324-7679
Dover, DE Pulmonary Hypertension / Pulmonary Fibrosis Support Group Location: Kent Pulmonary, 938 Bradford Street Meetings: 2nd Tuesday of every month, 6:30 PM Meeting information line: 302-328-3107 option 3
Newark, DE Pulmonary Hypertension / Pulmonary Fibrosis Support Group Location: Christiana Care Hospital, 4755 Ogletown-Stanton Road Meetings: 3rd Tuesday of every month, 6:30 PM Meeting information line: 302-328-3107 option 3
Fort Myers, FL Pulmonary Fibrosis support group Location: HealthPark Medical Center, Room 2A 9470 HealthPark Circle, South Ft. Myer Meetings: Second Friday of the month - 1:00 PM Contact information: Marge (239) 481-0582 or Dana (239) 335-7720 West Palm Beach, FLAmerican
Lung Association of SE Florida PF Support Groups/Lectures Location: Good Samaritan Medical Center, 1309 N. Flagler Drive, Teleconference room Meeting: Times Vary Contact
information: Mary Shields (561) 659-7644 (please call for reservations)
Pittsfield,
MA Private
Dining Room B Ground Floor or
cfezzie1@berkshire.rr.com for
meeting dates and times
Baltimore,
MD
Bay
Bridge Breathers
Harbor Hospital's LifeResource
Center 2990 S.
Hanover St.
Meetings:
Monday - noon
For those with emphysema, chronic bronchitis
and pulmonary fibrosis.
Contact:
410-350-8255 for specific meeting dates
Ann Arbor, MI
Contact: Emily Chartow at:
734-998-7012 Email:
echartow@umich.edu
Sterling Heights, MI
Support Group
Meetings: 2nd Tuesday of
each month: 1:00 to 3:00 PM
Contact: Darlene S. Watkins,
RRT 586-573-5763 Email: darlene.watkins@stjohn.org
Morristown,
NJ
North\Central
Jersey PF Support Group Meetings:
Last Wednesday of every month, 7:00 PM
Contact
information: Barbara Murphy - bjmurphy21@comcast.net Sleepy
Hollow, NY
Pulmonary
Fibrosis Support Group
Location:
Phelps Memorial Hospital, 701 N. Broadway - Pulmonary Gym
Meetings:
Thursday - 12:30PM - 1st meeting June 1, 2006
Contact
information: Susan DiFabio - 914-366-3712
IPF
Support Group Location:
St. John Health Plaza 1819
East 19th Street, 1st Floor Meetings:
3rd Saturday during March, May, July, September and
November Contact information: Leon Simmons, ipftulsa@tulsaconnect.com
Spirited Breathers support group for PF patients & families Location: Sacred Heart Medical Center, Oregon Heart Center conference room 1255 Hilyard Street, Eugene Meetings: Second Thursday of the month, quarterly meetings 3:00 - 4:30 PM Contact
information: Susan:
(541) 686-7442
Tualatin, OR Pulmonary Fibrosis Support Group Location: Legacy Meridian Park Hospital, Community Health Educational Building 19300 SW 65th Avenue Meetings: 1st Thursday of the month, 3:00 - 4:30 PM Contact information: Karen Saveride: (503) 692-2158
Pittsburgh, PA IPF support group Location:
UPMC Presbyterian Conference Room 1102, 11th floor Meetings: First Monday of every other month excluding January, July and August, 1:00 - 3:00 PM Contact
information: (412)
802-3275, sirnmonslLD@msx.uprnc.edu
Nashville, TN Middle
Tennessee Support Group Meetings: Second Monday of the month, (July's meeting will be the third Monday) 12:00 noon Speakers will provide educational information and lunch is usually provided Contact: Wendi - (615) 322-2386 Website: www.mc.vanderbilt.edu/root/vumc.php?site=ipfcenter
Houston, TXPulmonary
Fibrosis support group Location:
Kelsey Seybold Main Campus 2727
W. Holcombe Boulevard, 2nd Floor imaging conference room, Houston Meetings: Every third Saturday, every other month. Contact information: Jan Orndorff: (281) 348-2378 (281) 844-5300 (cell) or Jan3145@aol.com
Falls Church, VA Location: Inova Fairfax Hospital, 3300 Gallows Road, Conference Center, Room 5 Meetings: Varies Contact information: Jane Harrison: (703) 776-3203, jane.harrison@inova.com
Everett, WA Pulmonary Fibrosis Support Group - Lung Rangers Location: Medical Office Building -1330 Rockefeller - Rainer Room - Ground Floor Meetings: Third Tuesday of the month, 4:00 - 5:30 PM For information call: (425) 261-3780
Seattle, WA Pulmonary Fibrosis support group (in existence for 15 years!) Location: American Lung Association of Washington 2525 Third Avenue (downtown Seattle between Cedar and Vine) Meetings: Second Tuesday of every month (except July-August), 1:00 - 3:00 PM Contact
information: (206)
441-5100
Milwaukee, WI
Milwaukee Breath
Scroungers (MBS) - Pulmonary Fibrosis Support Group
Meetings: 2nd Thursday
of each month, 1:30 PM - 3:30 PM
Contact Sheri
Baldikowski, President, for location and information @ 414-313-4698
North
Staffordshire, UK --
FIRST BREATH OF LIFE FOR CHEST ILLNESS GROUP Additional Support Groups If you know of any additional support groups that are not listed above or would like to participate in the formation of a new group, please email: pulmonaryfibrosisinfo@yahoo.com Pulmonary
Fibrosis Foundation Last updated April 16, 2009
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