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What
is the Pulmonary Fibrosis Foundation?
The Pulmonary Fibrosis Foundation is a non-profit corporation founded in the state of Colorado in 2000 by Albert Rose and Michael Rosenzweig, Ph. D., both of whom were diagnosed with Pulmonary Fibrosis (IPF). Dr. Marvin Schwarz was also instrumental in its creation. The national headquarters is located in Chicago, Illinois. The Foundation is dedicated to providing the leadership and resources that have resulted in Increased Research, Improved Health, Early and Accurate Detection, and the Inspiration needed to Find a Cure for Pulmonary Fibrosis. The members of the Board of Directors have either been diagnosed with Pulmonary Fibrosis or have a close relationship with individuals suffering from the disease. The Foundation has experienced continuous growth since its inception and has developed a solid infrastructure to promote research and the development of new therapies for improving the quality of life for those diagnosed with Pulmonary Fibrosis. The Foundation has fostered collaborations with investigators throughout the United States, Mexico and Europe. The Foundation works closely with the National Institutes of Health (NIH), Universities, individuals affected with Pulmonary Fibrosis, and the pharmaceutical industry to expedite the development of new and improved therapies. A recent development has been the formation of a Pulmonary Fibrosis Foundation Center of Excellence at the University of Chicago. The Center will be using the laboratories and staff of the School of Medicine in the search for a cure to this terrible disease. In addition to a search for effective treatments, there will be an investigation of the genetic structure to find which genes are responsible for the onset of Pulmonary Fibrosis as well as those which cause a rapid progression of the disease. The research will be at the cutting edge of scientific study of Pulmonary Fibrosis. The foundation has allocated $1,000,000 to the Center over the next three years. Donations are welcome to support this endeavor.
Pulmonary Fibrosis Foundation Center of Excellence The Pulmonary Fibrosis Foundation participates in strategic alliances with government, industry and other national and international health and research organizations. In recognition of our service in public health in the area of lung-related health issues, the American Thoracic Society (ATS) has presented its acclaimed Public Service Award to the Pulmonary Fibrosis Foundation. The award was presented to the Foundation at the 2003 ATS International Conference in Seattle, Washington. The Foundation is proud and gratified to accept this award from the American Thoracic Society. We intend to continue our partnerships in the funding of research which hopefully will soon find a cure for Pulmonary Fibrosis. There are support groups in many cities throughout the U.S. For a list of these click here. Volunteers are needed to help us carry out many aspects of our mission. If you live in the Chicago Metropolitan area and would like to devote some of your time to a worthy cause please contact us at:
Pulmonary Fibrosis
Foundation Last updated November 13, 2008 |
