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Cystinosis
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Cystinosis Resources - Cystinosis Research Network 
This page contains links to other organizations of interest to Cystinosis patients, families, and friends. The links are organized into categories, including education, support, and medical and health... Details >
Cystinosis Support Group
This is the place to discuss the various aspects of cystinosis, a rare disease that primarily affects children. Parents, affected teenagers and adults, caregivers, family, and friends discuss how it a... Details >
Cystinosis Symptoms and Treatments
This document offers information on Cystinosis, a rare and genetic metabolic disease that primarily affects children. Learn about symptoms and how medications such as Cysteamine (Cystagon), new treatm... Details >
Facts About Cystinosis
These are facts about the causes, symptoms, and treatment of cystinosis.... Details >
Family Connection: Cystinosis Research Foundation
This site is designed as a place to share stories about the children and young adults with Cystinosis. ... Details >
Newsletters: Cystinosis Research Foundation
This online newsletter is a product of the Cystinosis Research Foundation. Its mission is dedicated to funding bench and clinical research for the development of improved treatments and finding a cure... Details >