Who Is At Risk for LAM?
Except for rare cases, LAM only affects women. More
than 70 percent of women who develop LAM are between the ages of 20 and 40 when
they begin to have symptoms. However, LAM can occur in women as old as 80.
More than 800 women in the United States have been
diagnosed with either sporadic LAM or TSCLAM.
Many more women may have LAM and not know it. They
may have been wrongly diagnosed with another, more common lung disease, such as
emphysema (em-fi-SE-ma),
asthma,
or bronchitis (brong-KI-tis).
LAM affects about 3 out of every 10 women who have
TSC. Thus, as many as 10,000 women in the United States who have TSC also may
have undiagnosed LAM. Many of these women may have mild cases of LAM that
don’t cause symptoms. Not everyone who has TSC and LAM has lung symptoms.
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