Our
11th Anniversary of Service to the Public:
March
31, 1998 to March 31, 2009
Thank
you for putting your trust in the American
Hemochromatosis Society
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May
1st, 2009 is the beginning of the
National Hemochromatosis Genetic Screening &
Awareness
Month sponsored
by the American Hemochromatosis Society
Help us to spread the word about Hereditary Hemochromatosis!
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The American Hemochromatosis Society (AHS) extends sincere sympathy
to the family of J. Michael Mullen, who passed away on Thursday, April 9, 2009 from
hereditary hemochromatosis only a few months after diagnosis.
Sandra Thomas, President, American Hemochromatosis Society
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April 25th, 2009
Remembering your 88th birthday, Mom
Even though you aren't here with us to celebrate your birthday,
we will always remember you and how blessed we were to have you
for 78 years. In this picture, you were an innocent child, in a time before
"genetics" were even understood. But, you were born with two gene mutations for
hereditary hemochromatosis that would ultimately take your life 78 years later.
Had hemochromatosis not taken your life on May 13, 1999, you might still be with us,
because you didn't have any other health problems. You might have been here with us
to share this important day in our family. Your destiny was to be born with
hemochromatosis gene mutations and to die as a result of having them in your body.
And, through this destiny, your story will be told so that other families
will not have to suffer as you, and so many others, have due to a treatable,
and even preventable, disease.
We won't be lighting 88 candles on a cake, but we will
light a candle in your memory.
Your loving daughter, Sandra
Josephine Petry Bogie (Thomas)
Born: April 25th, 1921 in Mt. Sterling, Kentucky
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In
Loving Memory
Mother's Day May 10th, 2009
Josephine
Bogie Thomas (Mrs. Joseph Burghard Thomas)
"The
Iron Angel"
April
25, 1921/Mt. Sterling, KY to May 13, 1999/Pittsburgh,
PA
It
has been 10 long years since hereditary hemochromatosis
(HH)/iron overload disease
stole
you from us. Your legacy lives on through the American
Hemochromatosis Society
(
www.americanhs.org ). You will always
be our "Iron Angel".
Remembering
and loving you today, and every day, Mom.
Your
daughter, Sandra Thomas
**************************************************
Joseph
Burghard Thomas
Board member and major benefactor of the
American Hemochromatosis Society
October 5, 1914 to August
27th, 2007
Dad, you are missed every day. You did so much to help the cause for awareness of
hereditary hemochromatosis, the disease which took your dear wife, Josephine, from you. You cared for her tenderly, and stood by her without exception, tirelessly,
patiently, you were there for her from diagnosis in 1983 to her death in 1999. You set
a wonderful example of devotion and dedication. One which I easily and gladly followed when it was your turn to face the final chapter of your life. You and mom were the best, and are dearly missed. Thank you for all of the timeless life lessons you taught me.
Love, Sandra
(Joe was the father of AHS president
and founder, Sandra Thomas)
Joseph Burghard Thomas Obituary
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See the January
8th, 2007 issue of US News & World Report
Magazine available now --AHS
president, Sandra Thomas and the
American Hemochromatosis Society are
mentioned in this article by Nancy Shute on genetic testing
and its future.
"...Ever
since a gene that causes the disease was detected in 1996,
doctors have debated widespread screening. Sandra
Thomas, president of the American Hemochromatosis
Society, encourages people who contact her to
use DTC tests and thinks that everyone should be screened
for the disease, which killed her mother."
Do-it-yourself
genetic tests promise to reveal your risk of coming down
with a disease. But do they really deliver? For
the full story, go to:
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MediFocus
Guidebook on Hereditary Hemochromatosis
Medifocus has published an excellent rescource and information
guide for patients and families concerning Hereditary
Hemochromatosis.
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Visit
the AHS Neonatal Hemochromatosis Information Center (NH) Site
|
"Dylan"
(left) has Neonatal Hemochromatosis (NH).
AHS has launched a web site for this rare newborn
iron disease. Learn more about NH in newborns
and the exciting new treatment which offers new
hope for pregnant women who have already had an
NH baby.
If you
have an NH baby, please email or call us at 407-829-4488
so you aren't going through this experience alone.
There are others who have been through this same
experience and doctors who are eager to help in
any way they can. |
Visit
our web site for Neonatal Hemochromatosis (NH) at:
www.neonatalhemochromatosis.org |
|