January 27, 2009 - In response to information concerning a label change for the iron chelator Exjade, CAF today forwarded the following letter to patients and health care providers:

January 26, 2009 - According to a recent news article, there may be more than 70,000 people with thalassemia in Pakistan.

An article published today in the "International News" quotes Al-Mustafa Thalassemia Unit Project Director Munaf Aliana as estimating the country's thalassemia population at more than 70,000, with 6,000 children with thalassemia born annually.

January 26, 2009 – CAF is continuing its recruitment efforts for focus groups involving people affected by thalassemia, including both patients and parents/caregivers. 

Next episode to be posted: February 2, 2009

January 16, 2009 - According to a story in the January 8 edition of Sri Lanka’s Daily News, the government’s Healthcare and Nutrition Ministry spends 5% of its annual budget on individuals with thalassemia. 

January 15, 2009 - The Thalassemia Clinical Research Network (TCRN) presented a poster on Hemoglobin H-Constant Spring , a form of alpha-thalassemia, at the annual meeting of the American Society of Hematology (ASH) in December.

January 12, 2009 -  Memorial-Sloan Kettering Cancer Center will present a forum, "Treating Thalassemia: From Transfusion to Engineered Stem Cells," on February 5, 2009, from 2:00-5:30 p.m.  This symposium is intended for physicians, researchers, patients and patient advocates.