Welcome to Cooley's Anemia Foundation Welcome to the home of the Cooley's Anemia Foundation. This information is for patients and their families, medical personnel, donors, Foundation volunteers, and anyone interested in learning about Cooley's Anemia and other forms of the genetic blood disorder, thalassemia.
Written by Craig Butler
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Friday, 30 January 2009 21:05 |
January 30, 2009 - On Sunday, February 22, 2009, Confederazione Siciliana del Nord America –Comissione Donne Siciliane will host “Carnevale Italiano,” a dinner and fundraiser to benefit the Cooley Anemia Foundation. |
Last Updated ( Friday, 30 January 2009 21:14 )
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Written by Craig Butler
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Wednesday, 28 January 2009 18:10 |
January 28, 2009 - The New York State Grand Lodge of OSIA (Order Sons of Italy in America) will hold its annual “Dine Around” for Cooley’s anemia on February 10, 2009. This special event will be held at Verdi’s in Westbury, NY. |
Last Updated ( Wednesday, 28 January 2009 18:11 )
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Written by Craig Butler
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Tuesday, 27 January 2009 17:59 |
January 27, 2009 - In response to information concerning a label change for the iron chelator Exjade, CAF today forwarded the following letter to patients and health care providers: |
Last Updated ( Tuesday, 27 January 2009 18:47 )
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Written by Craig Butler
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Monday, 26 January 2009 15:51 |
January 26, 2009 - Stephanie More, BSc, a genetic counseling student at Sarah Lawrence College, is conducting an online study on reproductive care for women with thalassemia. Below is information from Ms. More for any patients who may wish to participate in the online study. |
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Written by Craig Butler
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Monday, 26 January 2009 15:21 |
January 26, 2009 - According to a recent news article, there may be more than 70,000 people with thalassemia in Pakistan. An article published today in the "International News" quotes Al-Mustafa Thalassemia Unit Project Director Munaf Aliana as estimating the country's thalassemia population at more than 70,000, with 6,000 children with thalassemia born annually. |
Last Updated ( Monday, 26 January 2009 15:22 )
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Written by Craig Butler
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Monday, 26 January 2009 14:58 |
January 26, 2009 – CAF is continuing its recruitment efforts for focus groups involving people affected by thalassemia, including both patients and parents/caregivers. |
Last Updated ( Monday, 26 January 2009 15:24 )
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Written by Craig Butler
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Tuesday, 20 January 2009 14:19 |
January 20, 2009 - The Children’s Hospital & Research Center Oakland has published its new Standards of Care Guidelines for Thalassemia. The guidelines, which have been authored by a team of knowledgeable thalassemia care experts lead by Elliott Vichinsky, MD, and Laurice Levine, MA, CCLS, provide valuable information about the proper care of individuals with thalassemia. |
Last Updated ( Tuesday, 20 January 2009 15:57 )
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Written by Craig Butler
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Tuesday, 20 January 2009 14:14 |

Next episode to be posted: February 2, 2009 |
Last Updated ( Tuesday, 20 January 2009 14:54 )
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Written by Craig Butler
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Friday, 16 January 2009 16:58 |
January 16, 2009 - According to a story in the January 8 edition of Sri Lanka’s Daily News, the government’s Healthcare and Nutrition Ministry spends 5% of its annual budget on individuals with thalassemia. |
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Written by Craig Butler
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Friday, 16 January 2009 16:33 |
January 15, 2009 - The Thalassemia Clinical Research Network (TCRN) presented a poster on Hemoglobin H-Constant Spring , a form of alpha-thalassemia, at the annual meeting of the American Society of Hematology (ASH) in December. |
Last Updated ( Friday, 16 January 2009 16:34 )
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Written by Craig Butler
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Monday, 12 January 2009 15:09 |
January 12, 2009 - Memorial-Sloan Kettering Cancer Center will present a forum, "Treating Thalassemia: From Transfusion to Engineered Stem Cells," on February 5, 2009, from 2:00-5:30 p.m. This symposium is intended for physicians, researchers, patients and patient advocates. |
Last Updated ( Monday, 12 January 2009 15:12 )
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