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2008 Atlas of Stroke Hospitalizations Among Medicare BeneficiariesAppendix C: Resources
Federal Government AgenciesCenters for Disease Control and Prevention The Centers for Disease Control and Prevention (CDC) has established Heart Disease and Stroke Programs in 33 state departments of health across the nation. These state programs are committed to reducing the burden of heart disease and stroke by promoting heart-healthy and stroke-free working and living environments. The CDC also funds (1) Paul Coverdell National Acute Stroke Registries to monitor and improve the quality of acute stroke care in four states; (2) WISEWOMAN, a program that currently exists in 14 states to help women with little or no health insurance gain access to screening and lifestyle interventions that can reduce their risk for heart disease and stroke; and (3) State Cardiovascular Health Examination Surveys, which collect state-level data on blood pressure, blood cholesterol, and other risk factors for heart disease and stroke in four states. In addition, the Division for Heart Disease and Stroke Prevention at CDC performs extensive monitoring of recent trends in heart disease and stroke and conducts applied research to prevent heart disease and stroke. Centers for Medicare & Medicaid Services The mission of the Centers for Medicare & Medicaid Services (CMS) is to ensure effective, up-to-date health care coverage and to promote quality care for beneficiaries. National Institute of Neurological Disorders and Stroke The goal of the National Institute of Neurological Disorders and Stroke (NINDS) is to reduce the burden of neurological disease—a burden borne by every age group, by every segment of society, and by people all over the world. Agency for Healthcare Research and Quality The Agency for Healthcare Research and Quality (AHRQ) was established in 1989 as the Agency for Health Care Policy and Research. Re-authorizing legislation passed in November 1999 established AHRQ as the lead federal agency on quality research. AHRQ, part of the U.S. Department of Health and Human Services, is the lead agency charged with supporting research designed to improve the quality of health care, reduce its cost, and broaden access to essential services. AHRQ’s broad programs of research bring practical, science-based information to medical practitioners and to consumers and other health care purchasers. Office of Minority Health The mission of the Office of Minority Health is to promote health and quality of life by preventing and controlling the disproportionate burden of disease, injury, and disability among racial and ethnic minority populations. Office of Minority Health The Office of Minority Health, which operates under the U.S. Department of Health and Human Services, works to improve collection and analyses of data on the health of racial and ethnic minority populations. It also monitors efforts to achieve Healthy People 2010 goals for minority health. Office of Minority Health Resource Center The Office of Minority Health Resource Center was established to assist in the exchange of information and analysis of minority health issues. The center collects and distributes information on a wide variety of health topics and facilitates the exchange of information on minority health issues. National Center on Minority Health and Health Disparities The Office of Research on Minority Health (ORMH) was founded in 1999 by the National Institutes of Health (NIH) in order to help solve research questions that result from the disparity of health status among Americans. The ORMH mission is to support and promote biomedical research aimed at improving the health status of minority Americans across the lifespan and programs aimed at expanding the participation of under-represented minorities in all aspects of biomedical and behavioral research. Minority Health OrganizationsMinority Health Professions Foundation The Minority Health Professions Foundation is a nonprofit educational, scientific, and charitable organization that provides support for professional education, research, and community service that promote optimum health among poor and minority people. National Association for the Advancement of Colored People The National Association for the Advancement of Colored People (NAACP) is the oldest, largest, and strongest civil rights organization in the United States. The principal objective of the NAACP is to ensure the political, educational, social, and economic equality of minority group citizens of the United States. The NAACP is committed to nonviolence and relies on the press, the petition, and the ballot to fulfill its mission. Black Health OrganizationsInternational Society on Hypertension in Blacks The International Society on Hypertension in Blacks (ISHIB) is a not-for-profit professional, medical membership society devoted to improving the health and life expectancy of ethnic populations. ISHIB was founded in 1986 to respond to the problem of high blood pressure among ethnic groups. Its organizational scope includes diabetes, stroke, lipid disorders, renal disease, and other related cardiovascular diseases. National Black Nurses Association The National Black Nurses Association (NBNA) was founded to develop a better health care system for black people, where black nurses and other nurses of color play a prominent role in the system. The NBNA encourages black nurses to take the lead to make a difference in the quality of life in communities of color. National Association of Black Social Workers The National Association of Black Social Workers was formed in response to issues related to providing human services in the black community, educating social workers for effective service in the black community, and providing opportunities for participation of black social workers in the social welfare arena. National Medical Association The National Medical Association is committed to (1) preventing the diseases, disabilities, and adverse health conditions that disproportionately or differentially impact black and underserved populations, (2) supporting efforts that improve the quality and availability of health care to poor and underserved populations, and (3) increasing the representation and contribution of blacks in medicine. Hispanic Health OrganizationsNational Alliance for Hispanic Health The National Alliance for Hispanic Health is dedicated to connecting communities and creating change to improve the health and well-being of Hispanics in the United States through consumer education and outreach, training programs, policy analysis, development and dissemination, and advocacy. The National Council of La Raza The National Council of La Raza, with over 300 formal affiliates who together serve 41 states, Puerto Rico, and the District of Columbia, was established to reduce poverty and discrimination, and improve life opportunities for Hispanic Americans. National Association of Hispanic Nurses The National Association of Hispanic Nurses is the only national organization representing Hispanic registered nurses in the United States. Its goal is to increase the leadership development of Hispanic nurses and to improve the quality of health of Latino communities. National Hispanic Medical Association The National Hispanic Medical Association (NHMA) was organized to address the interests and concerns of 36,000 licensed physicians in the United States. Its goal is to improve the health of Hispanics and other underserved populations. As a rapidly growing national resource based in the nation’s capital, NHMA provides policy makers and health care providers with expert information and support for Hispanic communities across the nation. Interamerican College of Physicians and Surgeons The Interamerican College of Physicians and Surgeons was founded to improve the health of the Hispanic community, reduce the incidence of preventable diseases, improve educational and leadership opportunities for Hispanic physicians, and encourage Hispanic youths to pursue careers in the health care field. National OrganizationsAmerican Stroke Association The American Stroke Association is a not-for-profit, voluntary health organization funded by private contributions. Its mission is to reduce disability and death from stroke. The Brain Attack Coalition The Brain Attack Coalition is a group of professional, voluntary, and governmental entities dedicated to reducing the occurrence, disabilities, and death associated with stroke. The goal of the coalition is to strengthen and promote the relationships among its member organizations in order to help people who have had a stroke or are at risk for having a stroke. InterAmerican Heart Foundation The goals of the InterAmerican Heart Foundation are to promote an environment throughout North, Central and South America and the Caribbean conducive to preventing heart disease and stroke; to facilitate the development and growth of heart foundations; and to foster partnerships between health professionals and other sectors of society, including business and government, for the accomplishment of its mission. National Stroke Association The mission of the National Stroke Association is to reduce the incidence and impact of stroke, to save lives, and to improve the quality of care for stroke survivors. Patient ResourcesAmerican Stroke Association The American Stroke Association offers resources for stroke patients regarding health, fitness, and dietary guidelines. Information may be obtained via Internet, telephone, or direct mail. Centers for Disease Control and Prevention The Centers for Disease Control and Prevention (CDC) is a government agency dedicated to promoting health and quality of life by preventing and controlling disease, injury, and disability. The CDC Web site provides information about a variety of topics, including women’s health, cardiovascular health, and minority health. National Heart, Lung, and Blood Institute The National Heart, Lung, and Blood Institute can supply a wealth of information regarding heart, blood, and lung diseases for patients. Resources are available on the Internet as well as via telephone and direct mail. About the AuthorsMichele L. Casper, PhD, is an epidemiologist and acting team leader of the Small Area Analysis Team within the Division for Heart Disease and Stroke Prevention at the Centers for Disease Control and Prevention (CDC). Her research focuses primarily on the geographic, racial, and ethnic disparities in heart disease and stroke. Janet B. Croft, PhD, is an epidemiologist and chief of the Epidemiology and Surveillance Branch within the Division for Heart Disease and Stroke Prevention at CDC. Her research focuses primarily on disparities in stroke, hypertension, and heart failure. David S. Nilasena, MD, MSPH, is the chief medical officer for the Region VI Office of the Centers for Medicare & Medicaid Services. He has been actively involved in the agency’s quality improvement efforts for heart disease and stroke, leading national work on these topics conducted through the Quality Improvement Organization program for the past 7 years. Isaac A. Nwaise, MA, is a statistician and Geographic Information Systems (GIS) analyst with the Small Area Analysis Team within the Division for Heart Disease and Stroke Prevention at CDC. His research interests include health economics; GIS applications; and geographic, racial, and ethnic disparities in heart disease and stroke.
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