Other government agencies and non-profit organizations
maintain databases with service-related information.
These databases include, but are not limited to, traumatic
head and brain injury; toxic and hazardous substances;
real-time tracking of injured; and a broad scope of personnel,
manpower, training, and financial data.
Below
are brief descriptions of these data sources. The links
will take users directly to the VIReC information about
the data source.
Please send the VIReC
Help Desk your suggestions of additional useful
data sources.
Data Sources Outside the VA
The Centers
for Disease Control and Prevention's (CDC) Behavioral
Risk Factor Surveillance System (BRFSS) is a national
system of health surveys that tracks health-risk behaviors,
clinical preventive practices, and health care access
and use, primarily related to chronic diseases and injury. One
of the items in the BRFSS survey asks if the respondent
has ever served on active duty in the United States Armed
Forces.
The
Defense and Veterans Brain Injury Center (DVBIC) , formerly
the Defense and Veterans Head Injury Program (DVHIP),
is a multi-site medical care, clinical research and education
center funded by the Department of Defense (DoD). DVBIC
conducts and advances research that enhances the quality,
appropriateness, timeliness, and cost-effectiveness of
treatment delivered to military and veteran beneficiaries
with traumatic brain injuries (TBI).
The Defense
Manpower Data Center (DMDC) maintains the largest archive
of personnel, manpower, training, and financial data
in the Department of Defense (DoD).
The new design of this website contains all the same information that was previously on DeploymentLINK and its sub sites, to enable the Service members and families, DoD Leaders, and Health Care Planners and Providers to search and find, the answers being sought.
Health Science and Force Optimization (HS&FO)
The Health Science and Force Optimization (HS&FO) capability area of FHP&R develops policy for, and oversees health research and clinical investigations conducted under the Defense Health Program: the Component Clinical Investigation Programs; Congressionally Directed Medical Research Program; and the USD(P&R) Human Research Protection Program (HRPP). The HS&FO capability areas:
- Ensures optimal research investment for the health, safety and care of DoD warfighters and other beneficiaries;
- Promotes DoD-wide awareness of and availability to private sector cutting-edge biomedical expertise and technology;
- Assures expedited technology and product transition from bench and field research to our DoD beneficiaries including our Warfighters;
- Works to ensure the US food and agriculture sector facilities and processes are secure;
- Informs Service members, their families and interested others about DoD and other federally funded research on deployment-related health issues;
- Encourages the ethical conduct of research with humans and animals;
- Works to coordinate research activities to enhance a Service members ability to carry out the mission; and
- Provides information and guidance on issues or Frequently Asked Questions (FAQs) on or related to DoD biomedical research.
DeployMed ResearchLINK
This web site, DeployMed ResearchLINK, was established as part of FHP&R's Health Science and Force Optimization (HS&FO) mission to inform Service members, researchers & health care providers, leaders, and interested others about DoD and other federally funded research on deployment-related health issues. DeployMed ResearchLINK presents information on deployment medical research conducted and supported by federal research programs within DoD, VA, and HHS. The purpose of this web site is to be a central resource of information on federally funded medical research related to deployments from the 1990-91 Gulf War forward. http://www.deploymentlink.osd.mil/deploymed/
The
Agency for Toxic Substances and Disease Registry
(ATSDR) is a federal public health agency of the
U.S. Department of Health and Human Services (HHS).
Its Hazardous Substance Release and Health Effects
Database (HazDat) is a scientific
and administrative database developed to provide
access to information on the release of hazardous
substances from Superfund sites or from emergency
events, and on the effects of hazardous substances
on the health of human populations.
The Total Army Injury and
Health Outcomes Database (TAIHOD) is a system that joins
multiple personnel and health datasets from various Defense
Department agencies. The TAIHOD now links four general
categories of data: demographics, health
outcomes, self-reported health habits
and risk-taking behaviors from surveys; and chemical
exposures from the Defense Occupational Health
Readiness System (DOHRS).
The Traumatic Brain Injury
National Data Center (TBINDC) is the coordinating center
for the research and dissemination efforts of the Traumatic
Brain Injury Model Systems (TBIMS) program. The TBI Model
Systems consist of 16 comprehensive systems of care that
conduct research and provide care to persons who experience
traumatic brain injury.
The information in TBI
Data Collection was compiled by the National Association
of State Head Injury Administrators (NASHIA) and the
Center for Disease Control and Prevention’s (CDC)
National Center for Injury Prevention and Control (Injury
Center) to help states build population-based traumatic
brain injury (TBI) registries.
The USAISR’s mission is to provide requirements driven combat casualty care medical solutions and products for injured soldiers from self-aid through definitive care across the full spectrum of military operations; provide state-of-the-art burn, trauma, and critical care to DoD beneficiaries around the world; and provide Burn Special Medical Augmentation Response Teams. http://www.usaisr.amedd.army.mil/default.html
Joint Theatre Trauma Registry (JTTR)
The Joint Theater Trauma System (JTTS) is an approach to providing improved trauma care across the continuum of the Levels of Care to trauma patients, especially in the battlefield environment.
The Joint Theater Trauma Registry (JTTR) is the data repository collecting and hosting all DoD trauma related data.
The mission of the JTTS is to:
- Establish and maintain a Department of Defense Trauma Registry System to capture data and provide information on care and outcomes of military and civilian trauma patients.
- Provide the Department of Defense and other authorized interests with timely and relevant information about care and outcomes of military and civilian injuries.
- Create a research strategy that supports reduction of morbidity and mortality in military and civilian trauma patients.
- Establish and maintain a trauma outcomes database to analyze and evaluate clinical decision making and measure subsequent outcomes for improving treatment modalities.
- Provide activities of each of the services with full and complete access to data resident in the DoD Trauma Registry.
Data Sharing Agreement:
USAISR Data Sharing Agreement or Memorandum of Agreement (MOA) and Data Sharing Agreement Request Form
Research data collected or maintained by the USAISR may be made available as shared data for research purposes. Sources of that data may include data from:
- Clinical care by a military healthcare provider. As example: burn information.
- Care rendered in a combat setting and stored in the Joint Theater Trauma Registry (JTTR) or a database created by one of the Combat Support Hospitals. NOTE: JTTR data can only be shared with government entities.
An approved protocol and stored in e.g. the Trauma Vitals Database or one of the other databases maintained by USAISR.
Investigators from outside facilities (e.g. civilian institutions) will be allowed to obtain data from this Repository with a completed Data Sharing Agreement or a completed preparatory research request. Investigators must be compliant with the institution’s Institutional Review Board (IRB) standards for protecting subject confidentiality and must complete a Data Sharing Agreement with the USAISR. Only de-identified information will be shared with a preparatory research request.
Additional information and instructions to request data can be found at:
http://www.usaisr.amedd.army.mil/datashare.html
Questions can be directed to:
- USAISR Research Resource Coordinator
Tel: 210-916-2448
- USAISR Regulatory Compliance and Quality Management Coordinator
Tel: 210-916-2834
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