Living With Idiopathic Pulmonary Fibrosis

There is no cure for idiopathic pulmonary fibrosis (IPF) yet. Understanding that your symptoms may get worse over time is important. As your symptoms get worse, you may not be able to do many of the things that you did before you had IPF.

If you're still smoking, the most important thing you can do is stop. Ask your doctor or nurse about smoking cessation programs and products that can help. Avoid secondhand smoke as well. Ask family members and friends not to smoke in front of you or in your home, car, or workplace.

Ongoing medical care is important. Treatment by a pulmonologist who specializes in IPF is usually recommended. These specialists are usually located at major medical centers.

Treatment may relieve your symptoms and even slow or stop the fibrosis (scarring). Following your treatment plan is very important. You should:

• Take your medicines as your doctor prescribes
• Make any changes in diet or exercise that your doctor recommends
• Keep all of your appointments with your doctor
• Enroll in pulmonary rehabilitation

Being as active as you can is important to both your physical and mental health. It can help you maintain your strength and lung function and reduce stress. Try moderate exercise, such as walking or riding a stationary bike. Ask your doctor about using oxygen while you do this.

As your condition advances, use a wheelchair or motorized scooter, or stay busy with activities that aren't physical in nature.

As your condition worsens, you may need oxygen full time. Some people with IPF carry portable oxygen when they go out.

You should also follow a healthy diet. Eating smaller, more frequent meals may relieve stomach fullness, which can make it difficult to breathe. If you need help with your diet, ask your doctor to arrange for a dietitian to work with you.

Getting plenty of rest can increase your energy and help you deal with the stress of living with a serious disease like IPF.

Maintain a positive attitude. Practicing relaxation techniques may help you do this. It may also help you avoid excessive oxygen intake caused by tension or overworked muscles.

Join a support group to help you adjust to living with IPF. Talk to others who have the same symptoms so you can see how they're coping. To find a local support group, talk to your doctor or check your telephone directory.

Avoid situations that can make your symptoms worse, such as traveling by air or living at or traveling to high altitudes where the air is thin and the amount of oxygen in the air is low.