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Sickle
Cell Service Demonstration Program
| |
FY
2007
Actual |
FY
2008
Enacted |
FY
2009
Request |
FY
2009 +/-
FY 2008 |
| BA |
$2,180,000
|
$2,653,000
|
$2,184,000
|
-$469,000
|
| FTE |
2 |
2 |
2 |
--- |
Authorizing
Legislation -Section 712(c) of the American
Jobs Creation Act of 2004.
| FY
2009 Authorization |
$10,000,000 |
Allocation Method
-
Competitive grant/co-operative agreement
-
Contract
Program
Description and Accomplishments
The Sickle Cell Service Demonstration Program
was created in FY 2005 to develop systemic mechanisms
for the prevention and treatment of Sickle Cell
Disease, including the coordination of service
delivery for individuals with Sickle Cell Disease;
genetic counseling and testing; bundling of
technical services related to prevention and
treatment of Sickle Cell Disease; training of
health professionals; and identifying and establishing
other efforts related to the expansion and coordination
of education, treatment, and continuity of care
programs for individuals with Sickle Cell Disease.
The four year plan for the Sickle Cell Service
Demonstration Program charting the course of
the program outlining objectives and priority
areas has been developed. The priorities include:
-
Technical assistance/Information exchange
-
Materials review and development
- Collection,
coordination, and distribution of Sickle Cell
Service Demonstration
Program data, best practices, and findings
- Developing
and sustaining partnerships
- Reporting
and dissemination of results
The Sickle Cell Service Demonstration Program
is developing data collection tools that will
include a final list of utilization questionnaires,
data elements, indicators, measures and performance
targets, and data forms.
Funding includes costs associated with grant
reviews, processing of grants through the Grants
Administration Tracking and Evaluation System
(GATES) and HRSA’s electronic handbook,
and follow-up performance reviews.
Funding History
| FY
2004 |
--- |
| FY
2005 |
$
198,000 |
| FY
2006 |
$2,177,000 |
| FY
2007 |
$2,180,000 |
| FY
2008 |
$2,653,000 |
Budget Request
The FY 2009 request of $2,184,000 is a decrease
of $469,000 from the FY 2008 Enacted level.
Activities funded under this authority will
address HRSA strategic goals 1, 2, 3, 4 and
5. In particular this program will address the
elimination of health disparities for individuals
with Sickle Cell Disease. The program will continue
to address the priorities described above in
the four year plan. The four year plan began
in 2006 and will end in 2010. Over all, the
program will facilitate the delivery of education,
health promotion, patient and family support,
state of the art treatment, and continuous,
coordinated care to individuals with Sickle
Cell Disease. In addition, the protocols and
educational materials will facilitate the establishment
of a uniform and quality approach to the care
and treatment of individuals with Sickle Cell
Disease. Funds are provided for pay related
increases.
| # |
Key
Outputs |
FY
2004 Actual |
FY
2005 Actual |
FY
2006 |
FY
2007 |
FY
2008 Target/Est. |
FY
2009 Target/Est. |
Out-Year
Target/ Est. |
| Target/
Est. |
Actual |
Target/
Est. |
Actual |
| |
Grants |
|
|
|
4 |
|
4 |
4 |
4 |
-- |
| |
National
Coordinating Center |
|
|
|
1 |
|
1 |
1 |
1 |
-- |
| |
Appropriated
Amount ($ Million) |
|
|
|
2.177 |
|
2.18 |
2.653 |
2.184 |
|
|
