Completed Research Projects With CDC-EHDI Funding
(Updated October 2006)

Please click on the blue link for more information about a research project (information is in PDF format).

• Cost – Utah Department of Health and Utah State University, the EI Research Institute and National Center for Hearing Assessment and Management
  
  Purpose: The purposes of this study were to (1) determine the actual costs of screening, follow-up, and diagnosis of the EHDI programs in Utah; (2) assess families’ experiences with newborn hearing screening programs; and (3) assess the effect of false positive screens.
   

• Deaf People and Health Measures: Is a Database Feasible? - University of Rochester, Department of Family Medicine
  
  Purpose: The purpose of this project was to facilitate participation in health services research by members of the deaf community by fostering partnerships between health care, academic, and deaf community organizations. This formed an essential part of exploring the feasibility of a database to help monitor the health of members of this underserved group. A secondary goal was to explore attitudes and beliefs regarding health services research among members of the deaf community.
   

• Efficacy of Two-Stage (OAE/AABR) Newborn Hearing Screening Protocol – University of Hawai’i (UH), University of Hawai’i Center on Disability Studies
  
  Purpose: This project investigated the accuracy of the two-stage screening process in detecting infants with hearing loss.
   

• Epidemiology and Etiology of Hearing Loss in Newborns and Young Children - Utah Department of Health, Hawai’i Department of Health, Rhode Island Department of Health
  
  Purpose: The purpose of this study was to describe the epidemiology of hearing loss in infants and young children with a permanent hearing loss of any type. The specific aim of this study was to document the etiology of hearing loss for all children identified before their third birthday.
   

• Examination of Service History and Developmental Status of Children With Congenital Hearing Loss in Hawai'i - State of Hawai'i Department of Health, Family Health Services Division and Center for Disability Studies, University of Hawai'i.
  
  Purpose: The purpose of this project was to study the effectiveness of early identification and intervention for children with hearing loss. In addition to serving as a pilot study for a more comprehensive long-term outcome project, the study obtained a description of the service history and developmental status of children with congenital hearing loss in Hawai'i in terms of their long-term communication, cognitive, and social outcomes.
   

• Family Interview and Family Perspectives - Rhode Island Department of Health, Women and Infants Hospital and the Rhode Island School for the Deaf, and consultants from Brown University
  
  Purpose: The purpose of this study was to study the psycho emotional effect of hearing screening results on families, including families with children with hearing loss, children who had a false-positive screen, and those who passed their initial screen.
   

• Family Surveys – Colorado Department of Public Health and Environment, Health Care Program for Children with Special Needs and Massachusetts Department of Public Health, Bureau of Family and Community Health
  
  Purpose: The purpose of this project was two fold: (1) to design survey instruments to evaluate their EHDI programs and to pilot them in two participating states, and (2) to evaluate parent satisfaction with the Colorado and Massachusetts EHDI programs. The goal of the project was to facilitate improvement of parent satisfaction within state EHDI programs
   

• Health Utility Effects of Congenital Hearing Loss in Children - Arkansas Children’s Hospital and Arkansas University for Medical Sciences, Little Rock, Arkansas
  
  Purpose: The purpose of this study was to assess methods for measuring the health utilities of children with hearing loss and their caregivers.
   

• Intrauterine Cytomegalovirus Infection and Hearing Loss in Young Children - Utah Department of Health, University of Utah School of Medicine, and University of Utah School of Medicine
  
  Purpose: The purpose of this study was to investigate the feasibility of CMV screening.

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Date: April 04, 2007
Content source: National Center on Birth Defects and Developmental Disabilities