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You Are Not Alone is a toolkit developed specifically for parents of
teens who have epilepsy. Parents know that the transition from childhood
into adulthood often includes emotional, psychological, and social
challenges for any teen. But a teen with epilepsy, especially when newly
diagnosed, may have additional anxiety and confusion due to epilepsy's
complexity and unpredictability. When other people (including teachers,
other children, and other parents) do not understand or are afraid of this
teen who may appear different, a communication barrier can develop, creating
further misunderstanding, isolation, and discouragement. Parents can play an
important role in preventing this. When their children with epilepsy become
teenagers, they can encourage and assist them in taking responsibility for
themselves, while at the same time helping them accept the limitations on
their freedom and choices that may be necessitated by the seizure disorder.
The materials in this toolkit are designed to support this effort.
Print Materials
Parent's Letter
Letter describing kit material from a parent of a teen with epilepsy.
Facilitator's Guide
Strategies and suggestions for use of kit materials by facilitators of
Support Groups.
Parent's Guide
Strategies and suggestions for use of kit materials by parents.
"Reach Out" Brochure
The stress of parenting a teen with epilepsy affects the whole family,
including one's marital relationship and relationships with other children.
This brochure includes tips and strategies on how to keep one's self, one's
marriage, and one's relationships with other children healthy.
"Reach Out" Resource Guide
The Resource Guide includes a list of parenting resources as well as family
support groups throughout the country and sources of relevant and useful
information.
Stationery (PDF – 181K)
A set of preprinted sheets that can be used by parents and professionals to
write messages to teachers, neighbors, coaches, employers or other adults
who come into contact with their teen. The information on seizure
first aid at the bottom of each page provides an opportunity to educate the
reader about the appropriate response to a seizure. Each sheet carries a
different parent quote that advocates for the teen and helps to sensitize
and educate the reader.
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Multimedia Files
Audio
Streaming Audio Format. You will need RealPlayer®
to listen to this file.
- "Rewind" Audio—An audio disc that allows parents to
overhear three typical parent-teen conversations, and
then hear them again from a teen perspective.
- "Rewind"
Transcript
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Video
You will need
Real Player® to view this video.
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One or more documents on this Web page is available in Portable Document Format
(PDF). You will need Acrobat
Reader to view and print these documents.
Date last
modified: 03/15/2006
Date last reviewed:
03/15/2006
Content source: Division of Adult
and Community Health, National Center for Chronic Disease Prevention and
Health Promotion |
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