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2004

The Integrated Guidelines for Developing Epidemiologic Profiles: HIV Prevention and Ryan White CARE Act Community Planning have been developed by the Centers for Disease Control and Prevention and the Health Resources Services Administration to assist the persons who compile and interpret HIV prevention and care data for state, territorial, or local HIV/AIDS epidemiologic profiles. The purpose of the document is to provide one set of guidelines to help profile writers produce integrated epidemiologic profiles and advise them concerning how to interpret epidemiologic data in ways that are consistent and useful in meeting prevention and care planning needs. An example of an integrated epidemiologic profile from Louisiana is also included in this document.

Contributors

Abbreviations

Executive Summary

Chapter 1 Introduction

• Overview
• The Need for Integrated Guidelines
• Core Concepts

Chapter 2 Starting the Process

1. Determining the Scope
2. Determining the Content and Organization of the Profile
3. Determining the Development Process
4. Obtaining Profile Data
5. Identifying Skills for Preparing Profiles
6. Understanding Basic Analytic Concepts

Chapter 3 Describing the Epidemic

1. Core Epidemiologic Questions
2. Special Questions and Considerations for Ryan White CARE Act Grantees

Chapter 4 Completing the Epidemiologic Profile

1. Making Your Profile User-Friendly
2. Writing the Remaining Sections
3. Preparing Oral Presentations of Your Profile
4. Disseminating Your Profile

Chapter 5 Special Considerations

1. Confidentiality
2. Special-Needs Populations
3. Comorbidity
4. Areas with Low Morbidity and Minimal Data

Appendixes

• Data Sources
• Data Sources by Jurisdiction
• Web Data for Core Epidemiologic Question 1
• Table Formats for Mortality Data
• Table with Descriptions of Ryan White CARE Act Programs
• Planning Group Epidemiologic Profile Feedback Form

Glossary

References and Suggested Reading

Sample:
Integrated Epidemiologic Profile for HIV/AIDS Prevention and Care Planning--Louisiana, 2002