Medical
Homes in Maryland
This page is designed to keep you informed about events
and activities happening in Maryland that will help improve
access to medical homes for children with special health care
needs (CSHCN).
Click on a topic below to learn more about what's
going on in Maryland
Medical Home Initiatives
This section provides information
on state medical home initiatives/programs. States that
are a part of the mentorship
network will have a "Promise to the State"
which outlines how they will achieve ensuring that all children
have a medical home by 2010. This is based on the Healthy
People 2010 goals which is a 10 year action plan to
achieve and
measure
success for all CSHCN.
Maryland
Medical Home Contact:
Name: Jamie Perry, MD, MPH
Office
for Genetics and Children with Special Health Care Needs
Contact: Phone: 410-767-6730 | Email:
jperry@dhmh.state.md.us
Name: Rachel Hardegree, MPH
Office
for Genetics and Children with Special Health Care Needs
Contact: Phone: 410-767-6731 | Email: rhardegree@dhmh.state.md.us
Related Grant
Initiatives
Maryland received an incentive award from the Champions
for Progress Center to create a Medical Home Work Group
for the purpose of bringing together important state and
local medical home stakeholders including the Office for
Genetics and Children with Special Health Care Needs, the
Maryland Chapter of the AAP, academic and community pediatricians,
The Parents’ Place of Maryland/ Maryland Family Voices,
the Developmental Disabilities Administration, and the Maryland
State Department of Education/Infants and Toddlers Program
to learn about the medical home model, explore Maryland’s
strengths and weakness related to medical home development,
and create a state plan for addressing the 2010 goal of
ensuring that all CSHCN will receive coordinated, ongoing,
comprehensive care within a medical home.
The Medical Home Work Group, having recently completed
its work in early 2006, has transitioned into the Medical
Home Leadership Team. This team is charged with implementation
and sustainability of the medical home state plan.
For more information, please visit the 'Building a Medical Home for CSHCN' page on the Office for
Genetics and Children with Special Health Care Needs website: http://www.fha.state.md.us/genetics/med_childcare_home.cfm
Maryland participated in
the National Initiative for Child Health Quality (NICHQ)
Medical Home Learning Collaborative (October 2004 - September
2005)
The Medical Home Learning Collaborative was a 15-month project
committed to helping primary care practices become accessible,
family-centered, and provide care that is continuous, comprehensive,
coordinated, compassionate, and culturally effective. A
particular emphasis is placed on care coordination and family
involvement in decision-making for children with special
health care needs (CSHCN). Project
Overveiw.
Partners in the State
This section provides information
on who in the state (individuals and agencies) are working
together to create medical homes for children.
American Academy of Pediatrics (AAP) Chapter:
www.mdaap.org/
The Parents’ Place of Maryland/ Maryland
Family Voices: www.ppmd.org
American Academy of Family Physicians (AAFP) Chapter:
www.mdafp.org/
Title V Block Grant to States
Title V of the Social Security Act is one of the largest
Federal block grant programs. It leads the nation in ensuring
the health of all mothers, infants, children, adolescents,
and children with special health care needs (CSHCN). Title
V is administered by the Maternal and Child Health Bureau
(MCHB) as part of the Health Resources and Services Administration,
U.S. Department of Health and Human Services.
Title V and Children with Special Health Care
Needs
MCHB Objective: Support development and
implementation of comprehensive, culturally competent,
coordinated systems of care for the estimated 18 million
U.S. children who have or are at risk for chronic physical,
developmental, behavioral or emotional conditions and
who also require health and related services of a type
or amount beyond that required by children generally.
MCH Contact:
Bonnie S. Birkel, CRNP, MPH
Director, Center for Maternal and Child Health
Address: DHMH- 201 W. Preston Street
Baltimore, Maryland 21201
Phone: 410-767-6713 | Fax: 410-333-5233
Email: birkelb@dhmh.state.md.us
Internet site: www.fha.state.md.us/mch
CSHCN Contact:
Susan Panny, M.D.
Director, Office for Genetics and Children with Special Health Care Needs
Address: DHMH- 201 W. Preston Street
Baltimore, Maryland 21201
Phone: 410-767-6730 | Fax: 410-333-5047
Email: pannys@dhmh.state.md.us
Internet site: www.fha.state.md.us/genetics
Early Hearing Detection & Intervention (EHDI) Contact(s):
State EHDI programs promote universal newborn hearing screening,
develop effective tracking and follow-up as a part of the
public health system, promote appropriate and timely diagnosis
of the hearing loss, prompt enrollment in appropriate Early
Intervention, link newborns to a medical
home and strive to eliminate geographic and financial barriers
to service access.
Name: Linda Vaughan, MA, CCC-A
Contact: Phone: 410-767-6432 | Fax: 410-333-5047
E-mail:
lsvaughan@dhmh.state.md.us
Early Intervention/Part C Coordinator:
The Program for Infants and Toddlers with Disabilities (Part
C of IDEA) is a federal grant program that assists states
in operating a comprehensive statewide program of early
intervention services for infants and toddlers with disabilities,
ages birth through age 2 years, and their families.
Name: Deborah Metzger, Branch Chief
(Part C Coordinator)
Contact: Phone: (410) 767-0261 | Fax:
(410) 333-2661
Email: dmetzger@msde.state.md.us
Website: www.marylandpublicschools.org/MSDE/divisions/earlyinterv/
Section 619/ Preschool Grants Program of the Individuals
with Disabilities Education Act (IDEA). This program
provides free appropriate public education (FAPE) for children,
ages 3 through 5 years, with disabilities:
Name: Nancy Vorobey, 619 Coordinator
Contact: Phone: (410) 767-0234 | Fax:
(410) 333-2661| AltPhone1: (410) 767-0261
Email: nvorobey@msde.state.md.us
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Web Site
State Interagency Coordinating Council (ICC) Chairs:The
ICC advises appropriate agencies on the unmet needs in early
childhood special education and early intervention programs
for children with disabilities, assists in the development
and implementation of policies that constitute a statewide
system, and assists all appropriate agencies in achieving
full participation, coordination, and cooperation for implementation
of statewide system.
Name: Donna Njoku, ICC Co-Chair
Contact: Phone: (301) 419-2471 | Fax:
(410) 859-5301
Email:
donnanjok1@aol.com
Name: Linda Ramsey, ICC Co-Chair
Contact: Phone: (410) 659-7701 | Fax:
(410) 783-0814
Email:
lremsey@friendsofthefamily.org
Website: www.friendsofthefamily.org
Resources
State Waiver Information: www.cms.hhs.gov/MedicaidStWaivProgDemoPGI/08_WavMap.asp
Waivers are the result of a process that allows state Medicaid
agencies to apply for and receive permission from HCFA to
provide services not otherwise covered by Medicaid and/or
to do so in ways not described by the Social Security Act.
Most Medicaid managed care programs require Waivers. The
Waivers, which can differ greatly, are known by their numbers
(1115, 1119), or as home-and community-based, or as Katie
Beckett Waivers.
Educational Initiatives
'Extreme Medical Home Makeover' Learning Series
Early 2007, Maryland’s Medical Home Leadership Team completed the first of four learning sessions entitled: "Extreme Medical Home Makeover". This learning series targeted community pediatricians and their office staff and topics include: coding and reimbursement, care coordination and chronic condition management, and understanding and finding community resources, among others. They are hoping to replicate and expand the learning series in various regions around the state in 2007.
For more information, please contact
Jamie Perry, MD, MPH at 410-767-6730 or
jperry@dhmh.state.md.us
Screening
Initiatives
This section provides information on surveillance
and screening initiatives in the state.
Maryland Selected by NASHP to participate in ABCD Learning Academy
The goal of participating in the Academy is to improve early identification of young children with developmental problems as well as identify and address state policy barriers. Maryland Medicaid/EPSDT, the Office of Genetics and Children with Special Health Care Needs, and MD AAP representatives are spearheading the project.
Press release link: http://www.nashp.org/Files/NASHP_Commonwealth_State_Consortium.pdf
State Newborn Screening & Genetics Programs:
genes-r-us.uthscsa.edu/resources.htm
- State Newborn Screening Program Links
- State Genetics Program Links
- Regional Genetics and Newborn Screening Collaborative
Links
- Newborn Screening State Contact Fact Sheet
The Office for Genetics and Children with Special
Health Care Needs (OGCSHCN) is supporting a pilot program
in two Baltimore City pediatric practices to implement the
AAP’s new recommendations on developmental screening
and surveillance in the medical home. OGCSHCN has also brought
together Medicaid/EPSDT, the Maryland Chapter of the AAP,
the Maryland State Department of Education/Infants and Toddlers
Program, and other stakeholders to plan the steps required
for implementation of these recommendations on a wider basis
throughout the state.
House Bill 579: http://mlis.state.md.us/2005rs/billfile/HB0579.htm
Establishing a Pilot Program to Study and Improve
Screening Practices for Autism Spectrum Disorders in the
Department of Education; requiring the Department of Education,
in collaboration with the Department of Health and Mental
Hygiene, to select and establish relationships with specified
providers to participate in the Pilot Program, assess and
identify autism spectrum disorders screening instruments,
and develop training materials and distribute written information
on early detection of autism spectrum disorders; etc.
State Resources on the Internet
Note: The information provided on the state pages was submitted
by the state medical home teams.As this is not an exhaustive
list, please let us know if you have additions for your
state resource page. You can contact us at: medical
home@aap.org.
Last Updated August 27, 2008
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