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Medical Homes in Maryland
This page is designed to keep you informed about events and activities happening in Maryland that will help improve access to medical homes for children with special health care needs (CSHCN).

Click on a topic below to learn more about what's going on in Maryland
»Medical Home Initiatives »Resources
»Related Grant Initiatives »Educational Initiatives
»Partners in the State »Screening Initiatives

Medical Home Initiatives
This section provides information on state medical home initiatives/programs. States that are a part of the mentorship network will have a "Promise to the State" which outlines how they will achieve ensuring that all children have a medical home by 2010. This is based on the Healthy People 2010 goals which is a 10 year action plan to achieve and measure success for all CSHCN.

Maryland Medical Home Contact:

Name: Jamie Perry, MD, MPH
Office for Genetics and Children with Special Health Care Needs
Contact: Phone: 410-767-6730 | Email: jperry@dhmh.state.md.us

Name: Rachel Hardegree, MPH
Office for Genetics and Children with Special Health Care Needs
Contact: Phone: 410-767-6731 | Email: rhardegree@dhmh.state.md.us

Related Grant Initiatives

Maryland received an incentive award from the Champions for Progress Center to create a Medical Home Work Group for the purpose of bringing together important state and local medical home stakeholders including the Office for Genetics and Children with Special Health Care Needs, the Maryland Chapter of the AAP, academic and community pediatricians, The Parents’ Place of Maryland/ Maryland Family Voices, the Developmental Disabilities Administration, and the Maryland State Department of Education/Infants and Toddlers Program to learn about the medical home model, explore Maryland’s strengths and weakness related to medical home development, and create a state plan for addressing the 2010 goal of ensuring that all CSHCN will receive coordinated, ongoing, comprehensive care within a medical home.

The Medical Home Work Group, having recently completed its work in early 2006, has transitioned into the Medical Home Leadership Team. This team is charged with implementation and sustainability of the medical home state plan.

For more information, please visit the 'Building a Medical Home for CSHCN' page on the Office for Genetics and Children with Special Health Care Needs website: http://www.fha.state.md.us/genetics/med_childcare_home.cfm

Maryland participated in the National Initiative for Child Health Quality (NICHQ) Medical Home Learning Collaborative (October 2004 - September 2005)
The Medical Home Learning Collaborative was a 15-month project committed to helping primary care practices become accessible, family-centered, and provide care that is continuous, comprehensive, coordinated, compassionate, and culturally effective. A particular emphasis is placed on care coordination and family involvement in decision-making for children with special health care needs (CSHCN). Project Overveiw.

Partners in the State
This section provides information on who in the state (individuals and agencies) are working together to create medical homes for children.

American Academy of Pediatrics (AAP) Chapter: www.mdaap.org/

The Parents’ Place of Maryland/ Maryland Family Voices: www.ppmd.org

American Academy of Family Physicians (AAFP) Chapter: www.mdafp.org/

Title V Block Grant to States
Title V of the Social Security Act is one of the largest Federal block grant programs. It leads the nation in ensuring the health of all mothers, infants, children, adolescents, and children with special health care needs (CSHCN). Title V is administered by the Maternal and Child Health Bureau (MCHB) as part of the Health Resources and Services Administration, U.S. Department of Health and Human Services.

Title V and Children with Special Health Care Needs
MCHB Objective: Support development and implementation of comprehensive, culturally competent, coordinated systems of care for the estimated 18 million U.S. children who have or are at risk for chronic physical, developmental, behavioral or emotional conditions and who also require health and related services of a type or amount beyond that required by children generally.

MCH Contact:
Bonnie S. Birkel, CRNP, MPH
Director, Center for Maternal and Child Health
Address: DHMH- 201 W. Preston Street
Baltimore, Maryland 21201
Phone: 410-767-6713 | Fax: 410-333-5233
Email: birkelb@dhmh.state.md.us
Internet site: www.fha.state.md.us/mch

CSHCN Contact:
Susan Panny, M.D.
Director, Office for Genetics and Children with Special Health Care Needs
Address: DHMH- 201 W. Preston Street
Baltimore, Maryland 21201
Phone: 410-767-6730 | Fax: 410-333-5047
Email: pannys@dhmh.state.md.us
Internet site: www.fha.state.md.us/genetics

Early Hearing Detection & Intervention (EHDI) Contact(s):
State EHDI programs promote universal newborn hearing screening, develop effective tracking and follow-up as a part of the public health system, promote appropriate and timely diagnosis of the hearing loss, prompt enrollment in appropriate Early Intervention, link newborns to a medical home and strive to eliminate geographic and financial barriers to service access.

Name: Linda Vaughan, MA, CCC-A
Contact: Phone: 410-767-6432 | Fax: 410-333-5047
E-mail: lsvaughan@dhmh.state.md.us

Early Intervention/Part C Coordinator:
The Program for Infants and Toddlers with Disabilities (Part C of IDEA) is a federal grant program that assists states in operating a comprehensive statewide program of early intervention services for infants and toddlers with disabilities, ages birth through age 2 years, and their families.

Name: Deborah Metzger, Branch Chief (Part C Coordinator)
Contact: Phone: (410) 767-0261 | Fax: (410) 333-2661
Email: dmetzger@msde.state.md.us
Website: www.marylandpublicschools.org/MSDE/divisions/earlyinterv/

Section 619/ Preschool Grants Program of the Individuals with Disabilities Education Act (IDEA). This program provides free appropriate public education (FAPE) for children, ages 3 through 5 years, with disabilities:

Name: Nancy Vorobey, 619 Coordinator
Contact: Phone: (410) 767-0234 | Fax: (410) 333-2661| AltPhone1: (410) 767-0261
Email: nvorobey@msde.state.md.us | Web Site

State Interagency Coordinating Council (ICC) Chairs:The ICC advises appropriate agencies on the unmet needs in early childhood special education and early intervention programs for children with disabilities, assists in the development and implementation of policies that constitute a statewide system, and assists all appropriate agencies in achieving full participation, coordination, and cooperation for implementation of statewide system.

Name: Donna Njoku, ICC Co-Chair
Contact: Phone: (301) 419-2471 | Fax: (410) 859-5301
Email: donnanjok1@aol.com

Name: Linda Ramsey, ICC Co-Chair
Contact: Phone: (410) 659-7701 | Fax: (410) 783-0814
Email: lremsey@friendsofthefamily.org

Website: www.friendsofthefamily.org

Resources
State Waiver Information: www.cms.hhs.gov/MedicaidStWaivProgDemoPGI/08_WavMap.asp
Waivers are the result of a process that allows state Medicaid agencies to apply for and receive permission from HCFA to provide services not otherwise covered by Medicaid and/or to do so in ways not described by the Social Security Act. Most Medicaid managed care programs require Waivers. The Waivers, which can differ greatly, are known by their numbers (1115, 1119), or as home-and community-based, or as Katie Beckett Waivers.

Educational Initiatives
'Extreme Medical Home Makeover' Learning Series
Early 2007, Maryland’s Medical Home Leadership Team completed the first of four learning sessions entitled: "Extreme Medical Home Makeover". This learning series targeted community pediatricians and their office staff and topics include: coding and reimbursement, care coordination and chronic condition management, and understanding and finding community resources, among others. They are hoping to replicate and expand the learning series in various regions around the state in 2007.

For more information, please contact Jamie Perry, MD, MPH at 410-767-6730 or jperry@dhmh.state.md.us

Screening Initiatives
This section provides information on surveillance and screening initiatives in the state.

Maryland Selected by NASHP to participate in ABCD Learning Academy
The goal of participating in the Academy is to improve early identification of young children with developmental problems as well as identify and address state policy barriers. Maryland Medicaid/EPSDT, the Office of Genetics and Children with Special Health Care Needs, and MD AAP representatives are spearheading the project.
Press release link: http://www.nashp.org/Files/NASHP_Commonwealth_State_Consortium.pdf

State Newborn Screening & Genetics Programs: genes-r-us.uthscsa.edu/resources.htm

  • State Newborn Screening Program Links
  • State Genetics Program Links
  • Regional Genetics and Newborn Screening Collaborative Links
  • Newborn Screening State Contact Fact Sheet

The Office for Genetics and Children with Special Health Care Needs (OGCSHCN) is supporting a pilot program in two Baltimore City pediatric practices to implement the AAP’s new recommendations on developmental screening and surveillance in the medical home. OGCSHCN has also brought together Medicaid/EPSDT, the Maryland Chapter of the AAP, the Maryland State Department of Education/Infants and Toddlers Program, and other stakeholders to plan the steps required for implementation of these recommendations on a wider basis throughout the state.

House Bill 579: http://mlis.state.md.us/2005rs/billfile/HB0579.htm
Establishing a Pilot Program to Study and Improve Screening Practices for Autism Spectrum Disorders in the Department of Education; requiring the Department of Education, in collaboration with the Department of Health and Mental Hygiene, to select and establish relationships with specified providers to participate in the Pilot Program, assess and identify autism spectrum disorders screening instruments, and develop training materials and distribute written information on early detection of autism spectrum disorders; etc.

State Resources on the Internet

Note: The information provided on the state pages was submitted by the state medical home teams.As this is not an exhaustive list, please let us know if you have additions for your state resource page. You can contact us at:
medical home@aap.org.

Last Updated August 27, 2008

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