National Agenda: Healthy People 2010

"Only by working together at the Federal, State and local levels, public and private sectors can we achieve the goals of Healthy People 2010."

The Maternal and Child Health Bureau (MCHB), the American Academy of Pediatrics (AAP), Family Voices (FV) and the March of Dimes invite all persons and organizations concerned with children and youth with special health care needs to learn more about the Federal government initiative, Healthy People 2010 and strategize ways to achieve the goals and objectives outlined in this and accompanying documents. Healthy People 2010 represents an extensive document designed to achieve family-centered, culturally-competent, comprehensive, and coordinated systems of services for all children and youth with special health needs, in every community, by the year 2010.

Only by working together at the Federal, State and local levels, public and private sectors can we achieve the goals of Healthy People 2010. In Healthy People 2010, the U.S. Department of Health and Human Services, in partnership with States, communities, and many organizations in the public and private sectors, has set out a series of objectives to “bring better health to all people in this country.”

Healthy People 2020: The Road Ahead
Every 10 years, the U.S. Department of Health and Human Services (HHS) leverages scientific insights and lessons learned from the past decade, along with new knowledge of current data, trends, and innovations. Healthy People 2020 will reflect assessments of major risks to health and wellness, changing public health priorities, and emerging issues related to our nation's health preparedness and prevention. Healthy People 2020 will be released in two phases. The framework (the vision, mission, goals, focus areas, and criteria for selecting and prioritizing objectives) will be released in late 2008 - early 2009. A year later, in January 2010, the Healthy People 2020 objectives will be released along with guidance for achieving the new 10-year targets. Learn more.

HP 2010 - Achieving and Measuring Success: A National Agenda for Children with Special Health Care Needs.

The 6 critical indicators of progress & the National Centers charged with helping the nation achieve these goals.

1. Children will be screened early and continuously for special health care needs
   National Center for Hearing Assessment & Management:
   Web site | Abstract
   The National Newborn Screening and Genetics Resource Center
   Web site
   American College of Medical Genetics Coordinating Center
   Web site | Abstract
   
   
2. Families of CSHCN will participate in decision making at all levels and will be satisfied with the services they receive.
   Family Voices
   Web site | Abstract
   National Center for Cultural Competence
   Web site | Abstract
   
   
3. CSHCN will receive regular ongoing comprehensive care
   within a medical home.
   The National Center of Medical Home Initiatives for CSHCN
   Web site | Abstract
   
   
4. Families of CSHCN will have adequate public and/or private insurance to pay for the services they need.
   The Catalyst Center: Improving Financing of Care for Children and Youth with Special Health Care Needs
   Web site | Abstract
   
   
5. Community-based service systems will be organized so families can use them easily.
   Champions for Inclusive Communities-Integrated Services for
   CSHCN
   Web site | Abstract
   
   
6. Youth with special health care needs (YSHCN) will receive the services necessary to make transitions to all aspects of adult life.
   Healthy & Ready to Work National Resource Center (HRTW)
   Web site | Abstract

Other Key Partners:

1. Evidence Base Center for Systems of Care for CYSHCN - Abstract
   This project aims to improve access to systems of care for CYSHCN and their families through identifying and strengthening the evidence base for systems of care and key outcomes of that care in improving outcomes for children and families. Much of the work will go to collecting, interpreting, and integrating valid and applicable evidence regarding the overall theme and each of the six core outcomes. We will also assist in continued monitoring of the six core outcomes using the two national surveys that MCHB has developed. Funded by MCHB.
   Contact Person: Sheila Bloom, MS
   E-mail Address: sbloom1@partners.org
   Web site address: www.massgeneral.org/children/ccahp/
   Project Period: May 1, 2005 – April 30, 2009
   
   
2. Center for Medical Home Improvement
   The mission of the Center for Medical Home Improvement (CMHI) is to establish and support networks of parent/professional teams to improve the quality of primary care medical homes for children and youth with special health care needs and their families.
   
   CMHI efforts have included a successive series of Medical Home development efforts with practices in New Hampshire, Vermont, Maine and across the country including three Medical Home projects, validation of Medical Home measurement tools, and leadership for the national Medical Home Learning Collaborative offered in collaboration with the National Initiative for Children’s Health Care Quality (NICHQ). www.medicalhomeimprovement.org
   
   
3. Communities Can! a national network of communities who are dedicated to serving all children, including those with or at risk for special needs gucchd.georgetown.edu/programs/ta_center/communities_can/index.html
   


4. Federation of Families for Children's Mental Health: a nationally affiliated, parent-run organization focused on the needs of children and youth with emotional, behavioral or mental disorders and their families. www.fifionline.org/fl_frderation_for_childrens_ment.htm
   
   
5. Institute for Child Health Policy: A multi-disciplinary academic unit of the University of Florida. The center works on issues of health and health care for children and youth. The Institute houses two separate but integrated divisions: one dedicated to research and evaluation, and one dedicated to policy and program affairs. www.ichp.edu/
   
   Center on Financing for CSHCN: cshcnfinance.ichp.ufl.edu/
   Projects include
   (1) an examination of current Medicaid and SCHIP financing and reimbursement strategies to determine their applicability to CYSHCN using national data and person-level claims and encounter data and policy recommendations about the best combination of strategies to use when reimbursing health plans caring for CYSHCN;
   (2) an assessment of how financing strategies affect health plans of different sizes and the enrollment of children with different health care needs;
   (3) the design of financing strategies for children newly enrolling in health plans;
   (4) the development of financing strategies for children who are required to transfer to a new health plan when their previous plan exits the market;
   (5) the design of financing strategies to promote the medical home concept and to reimburse providers caring for CYSHCN;
   (6) the impact of increased cost-sharing on children’s health care use patterns, families’ out-of-pocket spending, and children’s insurance status; and
   (7) beginning analyses of health care use patterns and expenditures for adolescents with special needs who are transitioning to the adult health care system.



6. Institute of Medicine - Crossing the Quality Chasm:
   The IOM Health Care Quality Initiative.
   The American health care delivery system is in need of fundamental change. The current care systems cannot do the job. Trying harder will not work. changing the systems of care will.
   In 1996, the Institute of Medicine (IOM) launched a concerted, ongoing effort focused on assessing and improving the nation’s quality of care, which is now in its third phase. For more information on the national action plan to transforming health care quality go to: www.iom.edu/focuson.asp?id=8089
   
   
7. The Maternal and Child Health Policy Research Center
   A health policy group that provides federal and state policymakers, public health officials, and provider and family organizations with analysis of financing and service delivery issues affecting children and adolescents.
   www.mchpolicy.org
   
   
8. NAMI (National Alliance for the Mentally Ill)
   NAMI is a nonprofit, grassroots, self-help, support and advocacy organization of consumers, families, and friends of people with severe mental illnesses. Local affiliates and state organizations identify and work on issues most important to their community and state. www.nami.org
   
   
9. Parent Advocacy Coalition for Educational Rights
   (PACER Center): The Minnesota Parent Center is a statewide project designed to help families and schools build stronger ties to benefit students. The Minnesota
   Parent Center provides: free training, individual assistance, information handouts. www.pacer.org/mpc/
   


10. Support for Families of Children with Disabilities:
    In addition to providing support and resources to CSHCN and families in San Francisco, the program attempt to bring together a selection of some of the better resources on the Internet, organize them in an accessible manner, and provide brief annotations. It also offers information on legislative and public policy web sites to provide families, professionals and the community with resources to navigate the maze of legislation that governs the delivery of services to CSHCN. www.supportforfamilies.org

Last Updated July 2, 2008