The Challenges and Impact of Human Genome Research for Minority Communities

proceedings from a conference presented by
Zeta Phi Beta Sorority, Inc., National Educational Foundation
July 7-8, 2000, Philadelphia, PA


Zeta Background
Acknowledgments
Introduction
Foreword
Zeta NEF Purpose

Conference
Conference Mission
Conference Objectives
Research Plans
Conference Agenda
Conference Summary
Workshop I Summary

Workshop II Summary
Workshop III Summary
What's Next?
Photographs
Human Genome News article

Presenters
Dr. Aristides A. Patrinos
Dr. John Quackenbush
Dr. Georgia M. Dunston
Dr. Mary Kay Pelias
Dr. Fatimah Jackson
Dr. Christopher Adams
Dr. Rosalind P. Hale
Dr. Margaret C. Werner-Washburne
Rev. Dr. Deborah P. Wolfe
Dr. Jeroo S. Kotval
Betty K. Mansfield
Issie L. Shelton Jenkins, Esq.
Phyllis Griffin Epps, Esq.
Dr. Kathryn T. Malvern

Contact Information
Board of Managers
Presenters
National Educational Foundation

Kathryn T. Malvern, Ph.D.
Minorities and the Human Genome Project: What Next?

IN THE CLOSING SESSION ON "WHAT NEXT?" FOR CONTINUING INVOLVEMENT OF MINORITIES AND EDUCATION AND INFORMATION ON GENOMIC RESEARCH DEVELOPMENTS, CONDUCTED BY DR. MALVERN, THE FOLLOWING WERE AMONG THE WRITTEN SUGGESTIONS / COMMENTS:

  • Continue information sessions at or involve local churches.
  • Prepare and disseminate a summary of the conference proceedings.
  • Break the silence in the minority community about the Human Genome Project; collaborate with other groups.
  • Begin a program of getting students interested early by beginning to talk about genetics in schools at an early age.
  • On a larger scale, information should be disseminated at events like Black Expo; Minority festivals, Videotapes, using factual information written in laymen’s terms. Develop information in cartoon form for children.
  • Form local HGP Awareness Teams to keep abreast of developments.
  • Provide more examples of the benefits from the project that can be easily understood.
  • Develop website with short lists of benefits; positive and negative potentials.
  • Develop career day presentations to encourage students to seek scientific careers; careers in biotechnology, genetic research, related fields.
  • Conduct more research into minority issues and minority concerns.

The Foundation received many favorable comments on the information received at the conference and many participants expressed the desire to continue to keep abreast of developments and have input into policy and legislative decisions that will be made with respect to genetic research and the use of genetic information.

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The online presentation of this publication is a special feature of the Human Genome Project Information Web site.