The Challenges and Impact of Human Genome Research for Minority Communities

proceedings from a conference presented by
Zeta Phi Beta Sorority, Inc., National Educational Foundation
July 7-8, 2000, Philadelphia, PA


Zeta Background
Acknowledgments
Introduction
Foreword
Zeta NEF Purpose

Conference
Conference Mission
Conference Objectives
Research Plans
Conference Agenda
Conference Summary
Workshop I Summary

Workshop II Summary
Workshop III Summary
What's Next?
Photographs
Human Genome News article

Presenters
Dr. Aristides A. Patrinos
Dr. John Quackenbush
Dr. Georgia M. Dunston
Dr. Mary Kay Pelias
Dr. Fatimah Jackson
Dr. Christopher Adams
Dr. Rosalind P. Hale
Dr. Margaret C. Werner-Washburne
Rev. Dr. Deborah P. Wolfe
Dr. Jeroo S. Kotval
Betty K. Mansfield
Issie L. Shelton Jenkins, Esq.
Phyllis Griffin Epps, Esq.
Dr. Kathryn T. Malvern

Contact Information
Board of Managers
Presenters
National Educational Foundation

Introduction

The most profound phenomenon of year 2000 and at the beginning of the new millennium has to be the event of the Human Genome Project research and the near completion of the sequencing of the human genome.

Decoding the Book of Life has major implications for every human being and particularly minority communities. The raison d’être for Human Genome Project conferences, workshops and seminars for minority communities throughout the United States and abroad is to make those communities aware of this issue, so they may make informed health and daily life decisions, based on this impacting scientific technological research.

And so, the National Educational Foundation of Zeta Phi Beta Sorority, Inc. has produced its second and very successful HGP conference in Philadelphia, Pennsylvania, July 2000, the first being held at Xavier University in New Orleans, Louisiana in 1999.

This proceedings journal describes the entire event of the Philadelphia conference and has been produced for information dissemination as a community outreach service. However, it is important for you to know that imparting HGP information to minority communities did not cease on July 8, 2000.

Dr. Barbara West Carpenter, International President of Zeta Phi Beta Sorority, Inc., has made this project an international initiative throughout Zetadom. Regional, State and local conferences are currently being planned throughout the United States. The Foundation gives Dr. Carpenter special thanks.

The National Educational Foundation also gives special gratitude to the United States Department of Energy and the National Institutes of Health for grant funding, the March of Dimes and Merck Research Laboratories, Community Advisory Council, presenters, panelists, facilitators and conference attendees. The Foundation looks forward to continued support.

Our very special thanks and gratitude are given to Community Coordinator Audrey Johnson Thornton, Barbara Henderson Resource Coordinator and past Regional Director, Valerie Hollingsworth Davis, Logistics Coordinator.

Issie L. Jenkins, Esquire, immediate past Foundation Chairman, who through her vision, brought the Foundation and Zeta to this genomic venture, receives the highest commendation.

It is hoped that this document will prove helpful in your understanding of the Human Genome Project research and its impact.

Sincerely,

Dr. Kathryn T. Malvern
Foundation Chairman
July 2000 - Present

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The online presentation of this publication is a special feature of the Human Genome Project Information Web site.