| Time |
Topic |
Speaker(s) |
Day 1
7:30 a.m. |
Registration |
|
|
8:30 a.m |
Welcome NHLBI |
|
|
8:40 a.m. |
Opening Address |
|
|
8:55 a.m. |
Consumers' Perspectives |
|
|
|
Personal Histories |
Dorothy Moore, M.D.
Hoxi
Jones-Carranza |
|
9:25 a.m. |
Houston Consumers' Panel |
Sarah Iden |
|
9:35 a.m. |
Workshop Consumers' Panel |
Kimberly Elion
Eric
Kirkwood
Shirley Miller |
|
10:20 a.m. |
BREAK |
|
|
|
Overview of the Problems |
|
|
10:35 a.m. |
Major Health Problems |
Cage Johnson, M.D. |
|
10:50 a.m. |
Economic and Social Barriers |
Joseph Telfair, Dr.PH, MPH/MSW |
|
11:05 a.m. |
Information and Educational Barriers for Patients and
Providers |
Jeanne Smith, M.D. |
|
11:20 a.m. |
Quality of Life Issues |
Paul Swerdlow, M.D. |
|
11:35 a.m. |
Health Care Availability and Quality |
Elliott Vichinsky, M.D. |
|
11:50 a.m. -
12:20 p.m. |
Panel Discussion, Q and A |
|
|
12:20 p.m. -
1:20 p.m. |
LUNCH |
|
|
|
Pilot Programs and Models |
|
|
1:20 p.m. |
Work Incentives |
Charles F. Whitten, M.D. |
|
1:30 p.m. |
Scholastics Programs |
Winifred Wang, M.D. |
|
1:40 p.m. |
Transition Study |
Joseph Telfair, Dr.PH., MPH/MSW
|
|
1:50 p.m. |
Emory Univesrity Web site |
James Eckman, M.D. |
|
2:00 p.m. |
Life Skills Program |
Sharon Lewis |
|
2:10 p.m. |
Case Management in a Community-Based Program |
Gladys Ashe Robinson, M.E.D. |
|
2:20 p.m. |
Medical Student Buddy Program |
Cassandra Josephson, M.D. |
|
2:30 p.m. |
Health Services |
Christy Woods, M.D., M.P.H. |
|
2:40 p.m. |
Panel Discussion, Q and A |
|
|
3:00 p.m. |
Charge to Discussion Groups |
|
|
3:05 p.m. |
BREAK |
|
|
3:20 p.m. |
Discussion Groups
- Social and Economic Barriers and Needs
- Quality of Life Issues
- Health Care Availability and Quality
- Information and Educational Barriers and Needs
- A "fill-in-the-gaps" discussion group
|
|
|
5:20 p.m. |
Meeting adjourned for the day |
|
|
7:00 p.m. ^ Go to top |
Dinner (Information will be emailed to registrants)
|
|
Day 2
8:30 a.m. -
12:30 p.m. |
Discussion Groups |
|
|
10:30 a.m. |
BREAK |
|
|
12:30 p.m. -
1:30 p.m. |
LUNCH |
|
|
1:30 p.m. -
4:00 p.m. |
Discussion Groups' Presentations and
Recommendations |
|
|
3:00 p.m. |
BREAK |
|
|
4:00 p.m. |
Wrap Up: What's next? |
|
|
4:30 p.m. |
Meeting Adjourned |
|
