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Single Gene Disorders and Disability (SGDD) |
Conquer Fragile X Foundation (CFXF)
Promotes the development of international fragile X research
collaborations to increase the capacity and skills of fragile X labs
and researchers around the world, and to encourage young researchers
to pursue new and innovative fragile X research projects.
Fragile X
Research Foundation (FRAXA)
The Fragile X Research Foundation supports families affected by
fragile X and raises awareness of the disease. FRAXA's mission is to
find effective treatments and a cure for fragile X by funding
research
National Fragile X
Foundation (NFXF)
The National Fragile X Foundation is an organization that unites the
fragile X community through educational and emotional support and
referral networks. NFXF promotes public and professional awareness,
and supports research for improved treatments and a cure for fragile
X.
National Institute of Child Health and Development – Families and
Fragile X Syndrome
The National Institute of Child Health and Human Development (NICHD)
is a research agency that is part of the National Institutes of
Health. This site provides some general information about fragile X
syndrome, its causes, its features, and its treatments.
University of California, Davis - Medical Investigation of
Neurodevelopmental Disorders (MIND) Institute – Fragile X Research
and Treatment Center
The M.I.N.D. Institute is an international, multidisciplinary research
organization focusing on neurodevelopmental disorders. It tries to
understand the causes of neurodevelopmental disorders and develop
better treatments and hopefully a cure. The Fragile X Research and
Treatment Center was established at the M.I.N.D. Institute in 2001.
 Provides
link to non-governmental sites and does not
necessarily represent the views of the Centers for
Disease Control and Prevention. |
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Date: September 1, 2006
Content source: National Center on Birth Defects and Developmental
Disabilities
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