Post-Polio Syndrome
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What is Post-Polio Syndrome?
Is there any treatment?
What is the prognosis?
What research is being done?
Organizations
Publicaciones en Español
Additional resources from MEDLINEplus
What is Post-Polio Syndrome?
Post-polio syndrome (PPS) is a condition that affects polio survivors anywhere from 10 to 40 years after recovery from an initial paralytic attack of the poliomyelitis virus. PPS is characterized by a further weakening of muscles that were previously affected by the polio infection. Symptoms include fatigue, slowly progressive muscle weakness and, at times, muscular atrophy. Joint pain and increasing skeletal deformities such as scoliosis are common. Some patients experience only minor symptoms, while others develop spinal muscular atrophy, and very rarely, what appears to be, but is not, a form of amyotrophic lateral sclerosis (ALS), also called Lou Gehrig's disease. PPS is rarely life-threatening.
Is there any treatment? Presently, no prevention has been found. Doctors recommend that polio survivors follow standard healthy lifestyle practices: consuming a well-balanced diet, exercising
in moderation, and visiting a doctor regularly. There has been much debate about whether to encourage or discourage exercise
for polio survivors or individuals who already have PPS. A commonsense approach, in which people use individual tolerance as their limit, is currently recommended.
What is the prognosis? PPS is a very slowly progressing condition marked by long periods of stability. The severity of PPS depends on the degree
of the residual weakness and disability an individual has after the original polio attack. People who had only minimal symptoms
from the original attack and subsequently develop PPS will most likely experience only mild PPS symptoms. People originally
hit hard by the polio virus, who were left with severe residual weakness, may develop a more severe case of PPS with a greater
loss of muscle function, difficulty in swallowing, and more periods of fatigue.
What research is being done? The National Institute of Neurological Disorders and Stroke (NINDS) and other institutes of the National Institutes of Health
(NIH) conduct research related to PPS in laboratories at the NIH, and also support additional PPS research through grants
to major medical institutions across the country.
Select this link to view a list of studies currently seeking patients.
Post-Polio Health International/ 4207 Lindell Blvd. #110 St. Louis, MO 63108-2930 info@post-polio.org http://www.post-polio.org Tel: 314-534-0475 Fax: 314-534-5070 |
March of Dimes Foundation 1275 Mamaroneck Avenue White Plains, NY 10605 askus@marchofdimes.com http://www.marchofdimes.com Tel: 914-428-7100 888-MODIMES (663-4637) Fax: 914-428-8203 |
Prepared by:
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National Institute of Neurological Disorders and Stroke
National Institutes of Health
Bethesda, MD 20892
NINDS health-related material is provided for information purposes only and does not necessarily represent endorsement by or an official position of the National Institute of Neurological Disorders and Stroke or any other Federal agency. Advice on the treatment or care of an individual patient should be obtained through consultation with a physician who has examined that patient or is familiar with that patient's medical history.
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Last updated April 09, 2008