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Personalized Healthcare Workgroup - Archives

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As each workgroup meeting is completed, all of the relevant materials will be archived here, including agendas, any presentation materials, the program archive, the transcript, etc.

The Department of Health and Human Services strives to make information available to all. In some cases, due to size or complexity, we are not able to make files fully accessible using assistive technology. If you need assistance with any files, please call us at 1-866-776-5187 or email us at ahic@altarum.org.

2008 Meetings: 07/11/08 | 06/10/08 | 05/02/08 | 04/07/08 | 03/17/08 | 02/14/08 | 01/30/08

2007 Meetings: 11/26/07 | 10/25/07 | 09/17/07 | 08/17/07 | 06/07/07 | 05/15/07 | 04/17/07 | 03/12/07 | 02/21/07 | 01/04/07

Friday, July 11, 2008, 2:00 p.m., E.T.

Agenda & Other Presentation Materials

Transcript & Summary

Streaming Archive

• Agenda
• Weikart – Family Health History Technical Project Update
• Downing – PHC Workgroup Transition Planning Update

• Meeting Transcript

• Meeting transcript and summary coming soon.

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Tuesday, June 10, 2008, 1:00 p.m., E.T.

Agenda & Other Presentation Materials

Transcript & Summary

Streaming Archive

• Agenda (printer-friendly PDF)
• Pharmacogenomics / Clinical Research Final Recommendations (printer-friendly PDF)
• Newborn Screening Draft Reference Matrix Presentation (printer-friendly PDF)
• Roadmap to Newborn Screening Draft Reference Matrix (printer-friendly PDF)
• MS ExcelNewborn Screening Draft Reference Matrix (Excel only)

• Meeting Transcript

• Meeting Summary

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Friday, May 2, 2008, 1:00 p.m., E.T.

Agenda & Other Presentation Materials

Transcript & Summary

Streaming Archive
• Agenda
• Clinical Decision Support Final Recommendations
• Pharmacogenomics / Clinical Research Draft Recommendations
• PHC Workgroup Transition Planning Document
• AHIC 2009 Use Case Candidate Extensions and Gaps
• Paltoo & Warrington – PGx / Clinical Research Draft Recommendations Presentation

• Meeting Transcript

• Meeting Summary

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Monday, April 7, 2008, 1:00 p.m., E.T.

Agenda & Other Presentation Materials

Transcript & Summary

Streaming Archive
• Agenda
• Newborn Screening High-Level Use Case
• Downs – NBS High-Level Use Case Presentation
• Glaser and Henley – PHC Workgroup Transition Planning Presentation
• Caldwell and Peissig – Marshfield Clinic Presentation
• Teagarden and Moyer – Medco-Mayo Warfarin Study Presentation

• Meeting Transcript

• Meeting Summary

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Thursday, March 17, 2008, 1:00 p.m., E.T

Agenda & Other Presentation Materials

Transcript & Summary

Streaming Archive
• Agenda
• Sankaran - Federal Health Architecture
• Cullen - Indian Health Service
• Revised Draft Clinical Decision Support Recommendations
• Scheuner - Genetics Content in EHRs

• Meeting Transcript

•Meeting Summary

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Thursday, February 14, 2008, 1:00 p.m., E.T

Agenda & Other Presentation Materials

Transcript & Summary

Streaming Archive
• Agenda
• Revised Draft Newborn Screening Recommendations
• Clinical Decision Support Proto-Recommendations Background
• Glaser – Clinical Decision Support Presentation

• Meeting Transcript

• Meeting Summary

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Wednesday, January 30, 2008, 1:00 p.m., E.T.

Agenda & Other Presentation Materials

Transcript & Summary

Streaming Archive
• Agenda
• Downing – Update from the Ad Hoc CDS Planning Group
• Newborn Screening Presentation
• van Dyck & Downs - Newborn Screening Subgroup Recommendations
• Draft Detailed Use Case Overview
• Draft Detailed PHC Use Case Presentation
• Pharmacogenomics Topics for Consideration
• Warrington - Discussion Background for Pharmacogenomics Subgroup

• Meeting Transcript

• Meeting Summary

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Monday, November 26, 2007, 12 p.m., E.T.

Agenda & Other Presentation Materials

Transcript & Summary

Streaming Archive

• Agenda
• PHC Use Case Priorities
• PHC Workgroup JAMIA Submission Draft
• Downing – Pharmacogenomics Overview
• Kush – CDISC-HL7 Presentation
• PharmGKB Presentation
• PHC Scenarios for Clinical Decision Support
• PDF CDISC IHE Flyers (PDF only, 888KB)
• PDF Shabo – Clinical Genomics Data Standards for PGx (PDF only, 498KB)
• PDF Altman – PharmGKB Article (PDF only, 56KB)
• PDF Hernandez-Boussard et al – Integrating Large-Scale Genotype and Phenotype Data (PDF only, 235KB)
• Updated PHC Newborn Screening Subgroup Roster

• Meeting Transcript

• Meeting Summary

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Thursday, October 25, 2007, 2 p.m., E.T.

Agenda & Other Presentation Materials

Transcript & Summary

Streaming Archive

• Agenda
• PHC CPS Subgroup Presentation
• PHC Newborn Screening (NBS) Subgroup
• PHC Clinical Decision Support Priorities
• PHC Use Case Priorities
• PHC Confidentiality, Privacy, and Security Subgroup Cover Letter
• PHC CPS Subgroup Issues
• Family Health History Core Data Set Report

• Meeting Transcript

• Meeting Summary

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Monday, September 17, 2007, 9:00 a.m., E.T.

Agenda & Other Presentation Materials

Transcript & Summary

Streaming Archive

• Agenda
• PDF Clinical Decision Support Background (PDF only)
• PDF Preliminary Workgroup Input on CDS Priority Areas (PDF only)
• PDF Speaker List (PDF only)
Panel 1: Clinical Decision Support Tools - Services and Systems
• Michael Barton – Decision Support and Real-Time Surveillance for Enhancement of Patient Safety and Personalized Healthcare
• Ronald Paulus – Decision Support, Clinical Transformation and the Consumer
• Mark Hoffman – Clinical Decision Support and Personalized Medicine
• Amnon Shabo – Standards-Based Clinical Genomics Decision Support
Case Study: Clinical Decision Support for Pharmacogenomics-Guided Warfarin Dosing
• Case Study: The Wisconsin Warfarin Collaboration
Panel 2: Evidence Development for Clinical Decision Support
• Steven Teutsch – Evidence Based Guidelines for Genomic Applications in Practice and Prevention
• Rodolfo Valdez – Gathering Evidence for Clinical Decision Support: Family Healthware
• Keith Larsen – Evidence Development for Clinical Decision Support: Process & Outcomes Improvement
• Charles Kennedy – Genomics and Clinical Decision Support: A Health Plan Perspective
• P. Jon White – Developing Evidence for Healthcare Decision-Making

• Meeting Transcript

• Meeting Summary

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Friday, August 17, 2007, 2:00 p.m., E.T.

Agenda & Other Presentation Materials

Transcript & Summary

Streaming Archive

• Agenda
• Personalized Healthcare Recommendations
• Use Case Development Timeline
• Newborn Genetic Tests Background
• Michael S. Watson - Newborn Screening and Genetic Testing
• Pharmacogenomics Background
• Federico Goodsaid – Pharmacogenomics and eHR

• Meeting Transcript

• Meeting Summary

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Thursday, June 7, 2007, 2:00 p.m., E.T.

Agenda & Other Presentation Materials

Transcript & Summary

Streaming Archive

• Agenda
• Ferreira-Gonzalez - Laboratory Workflow Automation at Virginia Commonwealth University
• Ullman-Cullere - Sequencing Based Genetic Tests: Laboratory Automation and Structured Reporting to the Electronic Medical Record
• Draft Genetic/Genomic Test Matrix
• Draft Genetic/Genomic Test Matrix Appendix

• Meeting Transcript

• Meeting Summary

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Tuesday, May 15, 2007, 1:00 p.m., E.T.

Agenda & Other Presentation Materials

Transcript & Summary

Streaming Archive

• Agenda
Subgroup Activities:
• Brinner - Genetic/Genomic Test Priority Area
• Williams/Guttmacher - Family Medical History
Immediate Activities:
• Hughes - Data Standards for Family History
• Hughes - Specification of Family History HL7 XML File
• Moussavi - Clinical Bioinformatics Ontology
• Williams/Wood – HL7 Clinical Genomics Update
Complementary Activities:
• PDF Frueh/Mansfield - Voluntary Genomic Data Submissions (available in PDF only, 90kb)
• PDF Watson - Newborn Screening Collaborative (available in PDF only, 62kb)

• Meeting Transcript

• Meeting Summary

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Tuesday, April 17, 2007, 1:00 p.m., E.T.

Agenda & Other Presentation Materials

Transcript & Summary

Streaming Archive

General Materials:
• Agenda
• Changes to Charges
• Vision Summary
• PHC Priority Areas
• Vision Matrix
• Biosurveillance Priority Areas
• Biosurveillance Recommendations
• Press Release - "Personalized Health Care"
• Leavitt Speech - "Personalized Health Care"
• Working Hypothesis

• Meeting Transcript

• Meeting Summary

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Monday, March 12, 2007, 9:00 a.m., E.T.

Agenda & Other Presentation Materials

Transcript & Summary

Streaming Archive

General Materials:
• Agenda
• Summary of 2/21/07 Meeting
• Draft PHC Visioning Matrix
• Quality Workgroup Visioning Matrix
• Visioning
• Commercial EHR Ecosystem
• Introduction to DoD AHLTA System
• A Roadmap for National Action on Clinical Decision Support

• Meeting Transcript

• Meeting Summary

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Wednesday, Febuary 21, 2007, 1:00 p.m., E.T.

Agenda & Other Presentation Materials

Transcript & Summary

Streaming Archive

General Materials:
• Agenda

John Halamka, Harvard Medical School:
• HITSP Process
• HL7 Clinical Genomics Genotype Models

Kevin Hughes, Avon Comprehensive Breast Evaluation Center:
• Standards for Family History Information: Background
• Specification of Family History HL7 XML file
• Family History Information Exchange Services

John Loonsk, ONC:
• Recommendation and Use Case Development
• Emergency Responder EHR Detailed Use Case

• Meeting Transcript

• Meeting Summary

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Thursday, January 4, 2007, 1:00 p.m., E.T.

Agenda & Other Presentation Materials

Transcript & Summary

Streaming Archive

General Materials:
• Agenda

Presentations:
• Proposed Workgroup Charges
• Downing
• Loonsk
• Warrington
• Humphreys
• Williams
• McGuire

Background Documents:
•  Clinical genomics data standards for pharmacogenetics and pharmacogenomics
•  McGuire_Lin et al., Science 2004
• McGuire and Gibbs, Science 312, 370-371

• Meeting Transcript

• Meeting Summary

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