National Alzheimer's Project Act

10/28/2020

The National Alzheimer's Project Act (NAPA) creates an important opportunity to build upon and leverage HHS programs and other federal efforts to help change the trajectory of Alzheimer's disease and related dementias (AD/ADRD). The law calls for a National Plan for AD/ADRD with input from a public-private Advisory Council on Alzheimer's Research, Care and Services. The Advisory Council makes recommendations to HHS for priority actions to expand, coordinate, and condense programs in order to improve the health outcomes of people with AD/ADRD and reduce the financial burden of these conditions on those with the diseases, their families, and society.

In order to inform the National Plan for AD/ADRD, HHS has partnered with the U.S. Department of Veterans Affairs (VA), the National Science Foundation (NSF), and the U.S. Department of Defense (DoD) to convene an Interagency Group on Alzheimer's Disease and Related Dementias. The group includes HHS representatives from the Office of the Assistant Secretary for Planning and Evaluation (ASPE), Office of the Assistant Secretary for Health (OASH), National Institute on Aging (NIA), Centers for Medicare & Medicaid Services (CMS), Centers for Disease Control and Prevention (CDC), Administration on Aging (AoA), Health Resources and Services Administration (HRSA), Agency for Healthcare Research and Quality (AHRQ), Substance Abuse and Mental Health Services Administration (SAMHSA), Food and Drug Administration (FDA), Indian Health Service (IHS), and Administration for Children and Families (ACF). The Interagency Group is working to carry out NAPA's charges to coordinate research and services across agencies, accelerate the development of AD/ADRD treatments, improve early diagnosis and coordination of care, reduce ethnic and racial disparities in rates of AD/ADRD, and coordinate with international efforts to fight these conditions. The Plan this group developed was presented to the Advisory Council for review, and updated annually.

WOULD YOU LIKE TO BE ALERTED WHEN NEW INFORMATION IS AVAILABLE? A Listserv is also available that will automatically email you a monthly message. To join, send an email to LISTSERV@LIST.NIH.GOV. Whatever email address the message is sent from will be what is used in the Listserv. The only thing that needs to be in the body of the message is:

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Comments and questions, or alerts to broken links, should be sent to napa@hhs.gov.

What's New:

Resources on COVID-19 for Caregivers and Older Adults

HHS/ASPE Office of Behavioral Health, Disability, and Aging Policy

COVID-19 Intensifies Nursing Home Workforce Challenges: https://aspe.hhs.gov/basic-report/covid-19-intensifies-nursing-home-workforce-challenges
Individuals Experiencing Homelessness are Likely to have Medical Conditions Associated with Severe Illness from COVID-19 Issue Brief: https://aspe.hhs.gov/basic-report/individuals-experiencing-homelessness-are-likely-have-medical-conditions-associated-severe-illness-covid-19-issue-brief

Alzheimer's Association

COVID-10 Resources: https://alz.org/alzheimers-dementia/coronavirus-covid-19
Emergency Preparedness: Caring for Persons Living with Dementia in a Long-Term or Community-Based Care Setting: https://alz.org/media/Documents/COVID-19-EmergencyTips_LongTermCommunityBasedDementiaCare_AlzheimersAssociation.pdf

Navigating COVID-19: Supporting Individuals With Dementia and Their Caregivers. Webinar information: https://www.resourcesforintegratedcare.com/Older_Adults/2020_Webinar/COVID-19_Supporting_Individuals_with_Dementia_and_Caregivers.

Emory University's Goizueta Alzheimer's Disease Research Center Fact Sheet for people providing informal care for persons living with Alzheimer's and related illnesses: http://alzheimers.emory.edu/documents/Caregiving%20COVID-19%20GADRC.pdf#Caregiving tips during COVID-19

Centers for Disease Control and Prevention (CDC) Guidance

Index: https://www.cdc.gov/coronavirus/2019-nCoV/index.html
Older Adults Index: https://www.cdc.gov/coronavirus/2019-nCoV/index.html
Older Adults Video: https://www.youtube.com/watch?v=TjcoN9Aek24
High Risk Individuals: https://www.cdc.gov/coronavirus/2019-ncov/hcp/guidance-home-care.html

COVID-19 and Down Syndrome (collaboration of several agencies)

Abbreviated Version (English): https://www.ndss.org/wp-content/uploads/2020/03/2020-COVID19-DS-QA-Abbreviated-03-27-FINAL.pdf
Abbreviated Version (Spanish): https://2e626e23-9885-43be-a9e4-d60d120ed14f.filesusr.com/ugd/c53c74_1d381fb7368f4526a54f84b406499ebf.pdf
Expanded Version (English): https://www.ndss.org/wp-content/uploads/2020/03/2020-COVID19-DS-QA-Expanded-03-27-FINAL.pdf
Expanded Version (Spanish): https://2e626e23-9885-43be-a9e4-d60d120ed14f.filesusr.com/ugd/c53c74_cef00b1dbeaf44cd88727b6f4c13e791.pdf

Substance Abuse and Mental Health Services Administration Guidance: https://www.samhsa.gov/coronavirus

Federal Emergency Management Agency Coronavirus Rumor Control: https://www.fema.gov/Coronavirus-Rumor-Control

American Medical Association paper "The Dilemma of Coronavirus Disease 2019, Aging, and Cardiovascular Disease: Insights From Cardiovascular Aging Science": https://jamanetwork.com/journals/jamacardiology/article-abstract/2764300

NAPA Information

Public Members of the Advisory Council on Alzheimer's Research, Care and Services: 2020 Recommendations (added October 2020)
November 2020 Advisory Council Meeting Material (added October 2020)
Alzheimer's Disease-Related Dementias (ADRD) Summit 2019 -- Prioritized Research Milestones (added September 2020)
National Plan to Address Alzheimer's Disease: 2019 Update (added October 2019)

Summit Information

Family Caregiver Stakeholder Workgroup Research Recommendations (added July 2020)
Payer Stakeholder Workgroup Research Recommendations (added July 2020)
Persons Living with Dementia Stakeholder Workgroup Research Recommendations (added July 2020)
Service Providers Stakeholder Workgroup Research Recommendations (added July 2020)
Workforce Development Stakeholder Workgroup Research Recommendations (added July 2020)

Although the 2017 Summit is over, the work has just begun. Continue to send your stories,
thoughts and recommendations to napa@hhs.gov,
with the Subject Line "Summit Comment".

The March 2020 Summit was canceled due to COVID-19, however there was a Summit Virtual Meeting Series. The Series divided the original Summit agenda into 3 meetings, which occurred July 10, July 21 and August 13. Registration information is available at Summit Virtual Meeting Series: 2020 National Research Summit on Care, Services, and Supports for Persons with Dementia and Their Caregivers Registration.

Find Information On:

WHAT IS ALZHEIMER'S DISEASE & RELATED DEMENTIAS	ADVISORY COUNCIL ON ALZHEIMER'S RESEARCH, CARE, & SERVICES Advisory Council Members -- updated Oct 2019 Meeting Material -- updated Oct 2020 Public Comments -- updated Apr 10 Meeting & Event Videos -- updated Oct 2019
NATIONAL PLAN & OTHER NAPA DOCUMENTS National Plans -- updated Oct 24 Council Recommendations -- updated Oct 2020 Research Milestones -- updated Sep 2020 Frequently Used Acronyms -- updated May 9 General Information -- updated Sep 25	OTHER INFORMATION ON AD/ADRD Agency Reports -- updated Jun 16 Agency Meetings & Events -- updated Jan 28 Agency Websites & Blogs -- updated Oct 4 Summit Home Page -- updated Jul 2020