NIH Public Health Emergency and
Disaster Research Response (DR2)

NIH Repository of COVID-19 Research Tools

This website provides access to COVID-19 related data collection tools (CRFs, DCFs, instruments, surveys, questionnaires) that are currently in use. We hope that investigators will consider choosing from these tools rather than developing new ones. The source of each instrument has been verified and contact information is provided in case additional information is needed. We are also striving to provide access to study protocols/study designs and data dictionaries to enhance timeliness for end use, as well as data interoperability and harmonization. Please note, these data collection tools cannot be considered broadly validated and investigators are encouraged to perform validation studies.

Another important resource is the PhenX Toolkit which provides access to many of the COVID-19 instruments contained in the DR2 collection, but broken down into specific topic areas for improved ease of use. The PhenX Toolkit also provides recommended standard data collection protocols for conducting biomedical research.

To submit a COVID-19 related data collection tool and study protocols for consideration, please click here

COVID-19  Collection Tools

• DR2 COVID-19 Collection Tools: search of the DR2 Repository provides access to surveys, questionnaires, protocols, data dictionaries, etc.
  • REDCap Files
    • COVID-19 RADx-UP Tier 1 Recommendations  REDCap Zip File (click here to see how the survey renders)
• PHENX COVID-19 Collection Tools:  specific questions from collection tools in DR2 Repository, broken into modules by topic and subtopic, curated in the PhenX Toolkit

Survey Tool Comparison Guides

• COVID-19 Tools by Topic  Excel file: Collection tools in the DR2 repository categorized by one of ten topic areas (i.e. Mental Health, Symptoms, Environmental Factors)
• COVID-19 Socio-Behavioral-Economic (SBE) Tools by Topic Broken Down by Question  Excel file: SBE collection tools in the DR2 repository categorized by topic, broken out into individual questions
• COVID-19 Tools by Topic Broken Down by Question  Excel file: Collection tools in the DR2 repository categorized by topic, broken out into individual questions

Common Data Element (CDE) Repositories  (New)

• NIH CDE Collections: provide access to structured human and machine-readable definitions of data elements that have been recommended or required by NIH Institutes and Centers and other organizations for use in research and for other purposes
• NIH NCI CDE: primarily derive from data collection forms, spreadsheets, researcher data dictionaries, and protocols used in clinical trials
• PhenX Toolkit Research Domains: provides access to 826 protocols

Other Repositories of COVID-19 Research Tools

• Societal Experts Action Network (SEAN) COVID-19 Survey Archive
• COVID-19 & Social Determinants of Health Data Collection Instrument Repository

COVID-19 Training Material

• NIH Worker Training Material - developed by the NIEHS Worker Training Program
• Other Instructional/Training Material - curated in the National Library of Medicine's Disaster Lit database

COVID-19 Research Funding

• Information for NIH Applicants and Recipients of NIH Funding