National Human Genome Research Institute

Online Bioethics Resources

• National Human Genome Research Institute (NHGRI)
• National Institutes of Health (NIH)
• U.S. Department of Health and Human Services (DHHS)
• U.S. Department of Energy (DOE)
• Other Resources

National Human Genome Research Institute (NHGRI)

• Ethical, Legal and Social Implications Program
• Ethical, Legal and Social Implications Program Reports
• Social and Behavioral Research Branch
• Issues in Genetics

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National Institutes of Health (NIH)

• Department of Clinical Bioethics [bioethics.nih.gov]
• Bioethics Consultation Service [bioethics.nih.gov]
• Bioethics Information and Resources [fic.nih.gov]
• Genetics and Social Science [nchpeg.org]
• Genetic Testing Registry [ncbi.nlm.nih.gov]
• Office for Human Research Protections (OHRP) [hhs.gov]
• Office of Human Subjects Research [ohsr.od.nih.gov]
• Bioethics Resources on the Web [nih.gov]
• Bioethics Information Resources [nlm.nih.gov]

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U.S. Department of Health and Human Services (DHHS)

• Office of Research Integrity [ori.hhs.gov]
• Office of Biotechnology Activities [oba.od.nih.gov]

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U.S. Department of Energy (DOE)

• Ethical, Legal and Social Issues [ornl.gov]
• Genetics, Privacy and Legislation [ornl.gov]
• Minorities, Race and Genomics [ornl.gov]
• Ethical, Legal, and Social Issues Research [ornl.gov]

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Other Resources

• American Academy of Pediatrics: Ethical Issues With Genetic Testing in Pediatrics
  pediatrics.aappublications.org/cgi/content/full/107/6/1451
  Recommendations on newborn screening and genetic testing in children
   
• bioethics.net
  www.bioethics.net
  Links to articles on bioethics and genetics
   
• Bioethics Resources on the Web
  bioethics.od.nih.gov
  Links to bioethics resources
   
• CDC Public Health Genomics
  http://www.cdc.gov/genomics/
  Publications: Ethical, legal, and social implications
   
• The Council for Responsible Genetics
  www.councilforresponsiblegenetics.org/
  Information on the social, ethical and environmental implications of genetic technologies
   
• DNA Patent Database
  dnapatents.georgetown.edu/
  Searchable database of U.S. DNA-based patents issued by the USPTO
   
• Ethics in Medicine
  depts.washington.edu/bioethx/
  An electronic resource at the University of Washington School of Medicine
   
• The Ethics of Synthetic Biology and Emerging Technologies
  www.genome.gov/27542921/The-Ethics-of-Synthetic-Biology-and-Emerging-Technologies
  A report to the Presidential Commission on the Study for Bioethical Issues on synthetic biology with an accompanying press release and FAQ.
   
• Genetics & Ethics
  genethics.ca
  Information on the social, ethical and policy issues associated with genetic and genomic knowledge and technology
   
• Georgetown University: National Information Resource on Ethics & Human Genetics
  bioethics.georgetown.edu/nirehg/
  Search engine for literature on specific issues.
   
• The Hastings Center
  www.thehastingscenter.org
  The Hastings Center is an independent, nonpartisan and nonprofit bioethics research institute founded in 1969. The Center's mission is to address fundamental ethical issues in the areas of health, medicine, and the environment as they affect individuals, communities, and societies.
   
• HumGen International - Database
  www.humgen.org/int/
  Access to a comprehensive international database on the legal, social and ethical aspects of human genetics
   
• International Bioethics Organizations Database
  bioethics.georgetown.edu/databases/organizations/index.html
  Part of the NIREHG, a database of bioethics organizations that have a focus on bioethics or an area related to bioethics.
   
• National Information Resource on Ethics & Human Genetics, Kennedy Institute of Ethics
  kennedyinstitute.georgetown.edu/
  The NIREHG, funded by the NHGRI and National Institutes of Health, supports information services - for example, bibliographic databases searchable via the Internet, the full text of online annotated bibliographies, and print publications - on topics related to ethics and human genetics.
   
• NCSL - Genetics Overview
  www.ncsl.org/default.aspx?tabid=14524
  Status of legislative actions and acess to policy briefs on genetic issues of concern to state legislators
   
• The Presidential Commission for the Study of Bioethical Issues
  www.bioethics.gov/
  Information on current bioethical issues
   
• Scope Note Series (Kennedy Institute of Ethics/ Georgetown University)
  bioethics.georgetown.edu/publications/scopenotes/
  Information on various aspects of genetics and ethics
   
• THOMAS Legislative Information on the Internet
  thomas.loc.gov/
  Searchable database of U.S. legislation
   
• Your Genes Your Choices
  ehrweb.aaas.org/ehr/books/index.html
  Describes the Human Genome Project, the science behind it, and the ethical, legal, and social issues that are raised by the project

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Last Updated: July 20, 2015