FIRST is a national non-profit organization connected to its members and families by the special skin and unique management needs of individuals affected with ichthyosis and related skin types.
Our mission is to educate, inspire, and connect those touched by ichthyosis and related disorders through emotional support, information, advocacy, and research funding for better treatments and eventual cures.
Governed by a Board of Directors and guided by a Medical & Scientific Advisory Board, FIRST provides accurate and timely information to meet the medical, social, and educational needs of our community.
Calling All Ichthyosis Patients - Gene Discovery Opportunity
Dr. Keith Choate and his team from Yale University are hosting a clinical and genetics study dedicated to an increased understanding of ichthyosis. Read More
Dr. Keith Choate and his team from Yale University are hosting a clinical and genetics study dedicated to an increased understanding of ichthyosis. Read More
PCORI Seeks Specific Research Questions from Patients and Stakeholders
The Patient-Centered Outcomes Research Institute (PCORI) wants to know what health care question or decision you may be facing. Read More
The Patient-Centered Outcomes Research Institute (PCORI) wants to know what health care question or decision you may be facing. Read More
FIRST to Know Conference Call Scheduled
A phone meeting to learn about navigating through the school system. Read More
A phone meeting to learn about navigating through the school system. Read More
Dr. Amy Paller Awarded Grant from FIRST
The object of Dr. Paller’s project states that epidermolytic ichthyosis is an inherited form of ichthyosis which manifests as blistering and the compensatory development of generalized scaling skin. Read More
The object of Dr. Paller’s project states that epidermolytic ichthyosis is an inherited form of ichthyosis which manifests as blistering and the compensatory development of generalized scaling skin. Read More
Skin Advocate App for iPhone is Available!
Allows dermatologists to quickly provide patients with support group information. Read More
Allows dermatologists to quickly provide patients with support group information. Read More
Study for a New Topical Medicine
Galderma is sponsoring this study at Northwestern University in Chicago, Illinois. Read More
Galderma is sponsoring this study at Northwestern University in Chicago, Illinois. Read More
