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  Familial Dysautonomia (FD)
 

  A disease most people have never heard of . . .

Familial Dysautonomia (FD) is a rare genetic neurological condition that affects the sensory and autonomic nervous systems, causing severe gastrointestinal, cardiac, pulmonary, orthopedic, renal and ophthalmologic problems. Watch our awareness video.
 

  A Foundation dedicated to helping them . . .

The Dysautonomia Foundation is a 501(c)(3) nonprofit public charity that supports medical treatment, research, public awareness and social services for the benefit of people afflicted with FD. The Foundation has established the world's only two FD treatment centers and is the largest single source of funding for research and treatment specifically for the benefit of people with FD. Watch our video about FD and the Dysautonomia Foundation's work.
 

  Remarkable progress, incredible challenges . . .

FD was once considered a fatal disease, but the Foundation's efforts have resulted in dramatic improvements in the quality of life and life expectancy for FD patients. Still, people with FD must overcome tremendous challenges, including frequent hospitalizations, major surgeries and daily medical and supportive therapies as they try to live normal lives.
 

   Join us, and make a difference in their lives.

The gene that causes FD has been identified. Genetic therapies are possible, but they are costly and time-consuming to develop. A new clinical research facility is now exploring new therapies. Basic, clinical and translational researchers are working together to improve survival and create positive outcomes for people with FD. With your help, we can make a real difference in their lives.
 
 

FD News
DYScourse - FD News - available online
The latest news about the Foundation's work, the FD community and FD medical treatment & research is now available on our web site more
No Tears: Life With FD
Our new comic strip focuses on the lighter side of life with FD more
FD events! - See photos of our FD Benefit Concert, join us for the Walk for FD, and get in on the fun at our annual Bowlathon.   
Oxygen on Airplanes
Airline oxygen policies have changed. more
Research Consortium
FD is one of several diseases being studied by a research consortium of the nation's foremost autonomic experts. more
The Dysautonomia Foundation is a registered 501(c)3 non-profit organization.
Contributions are tax deductible to the extent permitted by law.
 
Dysautonomia Foundation, Inc.
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