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Publication

Parent-Reported Prevalence of Autism Spectrum Disorders in US-born Children: An Assessment of Changes within Birth Cohorts from the 2003 to the 2007 National Survey of Children's Health

Published paper looking at increases in parent-reported prevalence of ASD

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The National Survey of Children’s Health (NSCH) and the National Survey of Children with Special Health Care Needs (NS-CSHCN) have been implemented multiple times since 2001. Data can be compared between the 2001, 2005/06 and 2009/10 NS-CSHCN and the 2003, 2007, and 2011/12 NSCH. Data from the 2011/12 NSCH will soon be integrated into the search feature below.

What determines whether a question can be compared across survey years?

In order to compare data across multiple years, the question and response options must be identical. Changes in the overall content of the question, the specific wording of the question, or response options can result in changes in overall prevalence and interpretation of the survey item; therefore, comparison across survey years is not available for all measures.

Please note that changes in survey methodology from 2001, 2005/06 and 2009/10 NS-CSHCN may have an impact on the observed differences between survey years. Formal statistical analyses to test those differences require special consideration due to the inclusion of a cell phone sample in 2009/10. Additional information is available in the 2009/10 NS-CSHCN Codebook.

Which measures can be compared across survey years for the NSCH and NS-CSHCN?

The documents below outline the measures in the NSCH that are comparable across survey years.

The documents below outline the measures in the NS-CSHCN that are comparable across survey years.

1. Choose a geographic area

State/Region/Nation:

2. Choose a population for the State, Region or Nation

Browse Measures for CSHCN using the NS-CSHCN

CSHCN Prevalence and Demographics

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	Compare 2005/06 and 2009/10	Compare 2001, 2005/06 and 2009/10
Demographics and CSHCN prevalence for all children ages 0-17 (n=371,617)
Prevalence of children have special health care needs (CSHCN)		View Data
Children have special needs that include emotional, behavioral or developmental issues	View Data
Children qualified on the CSHCN Screener prescription medication use screening criteria		View Data
Children qualified on the CSHCN Screener elevated use of medical or related services screening criteria		View Data
Children qualified on the CSHCN Screener functional limitations screening criteria		View Data
Children qualified on the CSHCN Screener specialized therapies screening criteria		View Data
Children qualified on the CSHCN Screener ongoing emotional, developmental or behavioral conditions screening criteria		View Data
Children qualified on specific types of special health needs screening criteria		View Data
Age of children in the US population	View Data
Sex of children in the US population age 0-17 years	View Data
Primary Household Language of children in US population	View Data
Household income levels of the child population, in relation to the Federal Poverty Level	View Data
Household income levels of the child population (in relation to the Federal Poverty Level) - SCHIP categories	View Data
Household-level demographics and prevalence of CSHCN in households (n=196,159)
Household Prevalence of CSHCN		View Data
Number of CSHCN in Household	View Data
Number of Adults in Household		View Data
Number of Children in Household		View Data
Primary Household Language	View Data
Household income levels, in relation to the Federal Poverty Level	View Data
Household income levels (in relation to the Federal Poverty Level) - SCHIP categories	View Data
Demographics and types of needs for CSHCN population only (n=40,242)
Family structure of the CSHCN population	View Data
CSHCN receive Supplemental Security Income (SSI) disability benefits	View Data
CSHCN without insurance at some point during the past year		View Data
CSHCN without insurance at the time of the survey		View Data
Type of health insurance coverage in the CSHCN population		View Data

MCHB Core Outcomes and Key Indicators

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	Compare 2005/06 and 2009/10	Compare 2001, 2005/06 and 2009/10
Outcome #2: CSHCN who receive coordinated, ongoing, comprehensive care within a medical home	View Data
Outcome #3: CSHCN have consistent and adequate public or private insurance		View Data
Outcome #6: CSHCN youth receive services needed for transition to adulthood	View Data
Indicator 1: CSHCN whose health conditions consistently affect their daily activities		View Data
Indicator 2: CSHCN with 11 or more school absences due to illness, age 5-17 years		View Data
Indicator 3: CSHCN without insurance at some point during the past year		View Data
Indicator 4: CSHCN without insurance at the time of the survey		View Data
Indicator 5: Currently insured CSHCN whose insurance is inadequate		View Data
Type of health insurance coverage		View Data
Indicator 7: CSHCN whose families have any unmet need for support services	View Data
Indicator 8: CSHCN needing a referral who had difficulty getting it	View Data
Indicator 9: CSHCN without a usual source of care when sick		View Data
Indicator 10: CSHCN without any personal doctor or nurse	View Data
Indicator 11: CSHCN without family-centered care		View Data
Child's doctors spend enough time with him/her		View Data
Child's doctors listen carefully to his/her parent(s)		View Data
Child's doctors are sensitive to family culture and values		View Data
Child's doctors provided information specific to child's health		View Data
Child's doctors help family feel like partners		View Data
CSHCN receive effective care coordination	View Data
CSHCN receive effective care coordination, among CSHCN who needed care coordination	View Data
Satisfied with communication among child's doctors, when needed	View Data
Satisfied with doctors' communication to school or programs, when needed	View Data
Indicator 12: CSHCN whose families pay $1,000 or more out-of-pocket	View Data
Indicator 13: CSHCN whose conditions cause financial problems for family		View Data
Indicator 14: CSHCN whose families spend 11 or more hours a week providing care	View Data
Indicator 15: CSHCN whose conditions cause family members to cut back or stop working	View Data

Subcomponents and Details for Core Outcomes

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Browse Measures for All Children using the NSCH

Overall Child Health

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Health Insurance, Health Care Access, and Quality of Care

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Community, Family, and Neighborhood

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	Compare 2003 and 2007
Physical and Dental Health
Indicator 1.1: Children’s overall health status	View Data
Indicator 1.2: Condition of children's teeth, age 1-17	View Data
Indicator 1.7: Injuries requiring medical care, age 0-5	View Data
Indicator 1.3: Breastfed ever, age 0-5	View Data
Indicator 1.4: Weight status - BMI-for-age, 4 categories, age 10-17	View Data
Indicator 1.6: Missed school days, age 6-17	View Data
Emotional and Mental Health
Indicator 2.1: One or more concerns about child’s developmental status, age 4 months-5 years	View Data

	Compare 2003 and 2007
Health Insurance Coverage
Indicator 3.1: Current Health Insurance Status	View Data
Indicator 3.2: Consistency of insurance coverage	View Data
Indicator 3.3: Type of health insurance	View Data
Health Care Access and Quality
Indicator 4.9: Medical Home Component -- Have a personal doctor or nurse	View Data

	Compare 2003 and 2007
Community and School Activities
Indicator 5.2: Repeated grades in school, age 6-17	View Data
Indicator 5.3: Participation in organized activities outside school, age 6-17	View Data
Indicator 5.7: Religious services attendance	View Data
Family Health and Activities
Indicator 6.3: Overall health status of child’s mother	View Data
Indicator 6.7: Family reads to children, age 0-5	View Data
Indicator 6.8: Family eats meals together	View Data
Indicator 6.14: Child care issues affected employment, age 0-5	View Data
Neighborhood Safety and Support
Indicator 7.1: Children live in supportive neighborhoods	View Data
Indicator 7.2: Children live in safe communities	View Data
Indicator 7.3: Children have safe schools, age 6-17	View Data

	Compare 2005/06 and 2009/10	Compare 2001, 2005/06 and 2009/10
Medical Home
Medical Home Part A: Usual source(s) for sick and well care	View Data
Medical Home Part B: Personal doctor or nurse	View Data
No problems obtaining referrals when needed	View Data
Medical Home Part D: Receives family-centered care		View Data
Child's doctors spend enough time with him/her		View Data
Child's doctors listen carefully to his/her parent(s)		View Data
Child's doctors are sensitive to family culture and values		View Data
Child's doctors provided information specific to child's health		View Data
Child's doctors help family feel like partners		View Data
Medical Home Part E: Receives effective care coordination	View Data
CSHCN receive effective care coordination, among CSHCN who needed care coordination	View Data
Satisfied with communication among child's doctors, when needed	View Data
Satisfied with doctors' communication to school or programs, when needed	View Data
Adequate Insurance
Health Insurance Part A: Currently insured		View Data
Health Insurance Part B: No gaps in coverage during past 12 months		View Data
Health Insurance Part C: Adequacy of current insurance		View Data
Transition to Adulthood
Transition Part A: Anticipatory guidance for transition to adult health care, CSHCN age 12-17 years	View Data
Discussed shift to adult health care providers, if needed	View Data
Discussed changing health needs as youth becomes an adult, if needed	View Data
Discussed health insurance as youth becomes an adult, if needed	View Data
Transition Part B: Child's doctors encourage self management skills	View Data