2009/10 National Survey of Children with Special Health Care Needs
Nationwide Profile
Estimated Number of CSHCN: 11,203,616
Click on any row of data in the table below to view detailed results by age, race/ethnicity, household income and other subgroups.
Prevalence of CSHCN | Nation % |
Percent of children who have special health care needs | 15.1 |
Age 0-5 years | 9.3 |
Age 6-11 years | 17.7 |
Age 12-17 years | 18.4 |
Male | 17.4 |
Female | 12.7 |
0-99% FPL | 16.0 |
100-199% FPL | 15.4 |
200-399% FPL | 14.5 |
400% FPL or more | 14.7 |
Non-Hispanic | 16.2 |
White | 16.3 |
Black | 17.5 |
Other | 13.6 |
Hispanic | 11.2 |
Spanish Language Household | 8.2 |
English Language Household | 14.4 |
|
National Indicators | Nation % |
CSHCN whose conditions affect their activities usually, always, or a great deal | 27.1 |
CSHCN with 11 or more days of school absences due to illness | 15.5 |
CSHCN without insurance at some point in past year | 9.3 |
CSHCN without insurance at time of survey | 3.5 |
Currently insured CSHCN whose insurance is inadequate | 34.3 |
CSHCN with any unmet need for specific health care services | 23.6 |
CSHCN with any unmet need for family support services | 7.2 |
CSHCN needing a referral who have difficulty getting it | 23.4 |
CSHCN without a usual source of care when sick (or who rely on the emergency room) | 9.5 |
CSHCN without any personal doctor or nurse | 6.9 |
CSHCN without family-centered care | 35.4 |
CSHCN whose families pay $1,000 or more out of pocket in medical expenses per year for the child | 22.1 |
CSHCN whose conditions cause financial problems for the family | 21.6 |
CSHCN whose families spend 11 or more hours per week providing or coordinating child's health care | 13.1 |
CSHCN whose conditions cause family members to cut back or stop working | 25.0 |
|
MCHB Core Outcomes | Nation % |
CSHCN whose families are partners in shared decision-making for child's optimal health | 70.3 |
CSHCN who receive coordinated, ongoing, comprehensive care within a medical home | 43.0 |
CSHCN whose families have adequate private and/or public insurance to pay for the services they need | 60.6 |
CSHCN who are screened early and continuously for special health care needs | 78.6 |
CSHCN who can easily access community based services | 65.1 |
Youth with special health care needs who receive the services necessary to make appropriate transitions to adult health care, work, and independence | 40.0 |
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