National Institute of Neurological Disorders and Stroke (NINDS)

NINDS Nonprofit Forum Celebrates a Milestone!

This September marked a milestone for the NINDS Nonprofit Forum: its tenth anniversary! The two day forum drew its largest crowd to date with over 150 participants, representing program staff from 3 NIH Institutes, the Food and Drug Administration (FDA), industry, and 75 different nonprofit organizations from across the country.

Each year, the Forum’s theme, “Progress through Partnership,” emphasizes the importance of collaboration between public and private stakeholders to advance therapeutic development for patients with neurological disorders. This theme of collaboration was interlaced throughout each session of the Forum, with several panels focusing on how meaningful clinical data can best be attained, applied, and (most importantly) shared.

The forum kicked off with a panel on Lessons Learned and Case Studies in Natural History Databases moderated by Dr. Petra Kaufmann of the National Center for Advancing Translational Sciences and Ms. Janet Hieshetter of the Dystonia Medical Research Foundation. Panelists discussed their experience developing natural history databases, and the importance of leveraging existing databases... More Message »