Fibrocartilaginous embolism
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A fibrocartilaginous embolism (FCE) is an unusual cause of spinal cord and cerebral ischemia (insufficient blood supply).[2] Symptoms may include sudden, severe pain in the neck and/or back; progressive weakening and reduced sensation; and paralysis.[1] It may be caused by the blocking of an artery (embolization) with nucleus pulposus fragments (a substance that provides cushioning to the spinal column), which interrupts the vascular supply. Some individuals have reported lifting, physical exertion, minor trauma, or Valsalva maneuver before severe spinal cord infarction. FCE can result in severe spinal cord injury or death in some individuals.[2]
References
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Luigi Tosi, Gianfranco Rigoli, Alberto Beltramello. Fibrocartilaginous embolism of the spinal cord: a clinical and pathogenetic reconsideration. Journal of Neurology, Neurosurgery, and Psychiatry. 1996;:. Available at: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC486190/pdf/jnnpsyc00013-0063.pdf. March 23, 2011.
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F. J. Mateena,b, P. A. Monradb, A. N. Leep Hunderfundb, C. E. Robertsonb and E. J. Sorenson. Clinically suspected fibrocartilaginous embolism: clinical characteristics, treatments, and outcomes. European Journal of Neurology. 2011.
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Fibrocartilaginous embolism
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PubMed is a searchable database of medical literature and lists journal articles that discuss Fibrocartilaginous embolism. Click on the link to view a sample search on this topic.
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Organizations (Found 9 resources)
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National Spinal Cord Injury Association
1 Church Street #600 Rockville, MD 20850 Toll-free: 1-800-962-9629 Fax: 1-866-387-2196 E-mail: info@spinalcord.org Web site: http://www.spinalcord.org
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Christopher and Dana Reeve Foundation
636 Morris Turnpike Suite 3A Short Hills, NJ 07078 Toll-free: 1-800-225-0292 Telephone: 1-973-379-2690 Fax: 973-912-9433 E-mail: info@christopherreeve.org Web site: http://www.christopherreeve.org
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American Stroke Association
National Center 7272 Greenville Avenue Dallas TX 75231 Phone: 888-478-7653 Web site: http://www.strokeassociation.org/
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National Stroke Association
9707 E Easter Lane Building B Centennial, CO 80112 Phone: 800-787-6537 Fax: 303-649-1328 E-mail: Info@stroke.org Web site: http://www.stroke.org/
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Genetic Alliance
4301 Connecticut Avenue NW Suite 404 Washington, DC 20008-2369 Telephone: 202-966-5557 Fax: 202-966-8553 E-mail: info@geneticalliance.org Web site: http://www.geneticalliance.org
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National Organization for Rare Disorders (NORD)
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DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
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Madisons Foundation
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RDCRN 3rd Conference on Clinical Research for Rare Diseases, October 2, 2012
Location: Hilton Washington DC/Rockville Hotel & Executive Meeting Center, Rockville, MD Description: Clinical research in rare diseases presents a number of challenges and unique issues that are not usually considered in the training of clinical investigators through existing training programs. Goals of the conference include: direct instruction of trainees and new investigators in rare disease research methodology; development of a reusable curriculum/syllabus on rare disease research methodology; and stimulation of ideas regarding the unique issues facing investigators engaged in the study of rare diseases.
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VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010): Global Approach to Accessibility in Rare Diseases, Orphan Drugs and Neglected Diseases , March 18, 2010 - March 20, 2010
Location: Palais Rouge Convention Center, Palermo, Buenos Aires Description: For the first time, the VI International Conference on Rare Diseases and Orphan Drugs (ICORD 2010) was convened in the southern hemisphere in agreement with its aim of globalization of rare diseases research and orphan products development activities.
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ResearchMatch is a free national research registry designed to bring together patients, healthy volunteers and researchers. Anyone from the United States can register with ResearchMatch, and a parent, legal guardian, or caretaker may register on behalf of a volunteer. Researchers from participating institutions use the ResearchMatch database to search for patients or healthy volunteers who meet the study criteria. Many studies are looking for healthy people of all ages, while some are looking for people with specific illnesses. ResearchMatch was developed by major academic institutions across the country and is funded by the National Center for Advancing Translational Sciences.
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