Navigation 101: Surviving the Impossible

By Diana Hume, AW2 Reserve Spouse

Through hard work and preserverance, Diana Hume was able to find answers to her questions about her husband's treatment and recovery

Editor’s Note: Diana Hume is a feature blogger for AW2. She’ll be sharing her experiences as the wife of a severely wounded reservist.

Surviving what seems to be the impossible is possible. We may not realize it, but spouses have been preparing for overcoming the impossible all along. Because of our Soldier’s absence, our strength grows over time. However, after we receive the call that our Soldier has been injured, we experience the fall out where, at least for me, the fog of loneliness I constantly pushed aside rolled in full force. I had to figure out how to manage the home front while simultaneously caring for my Soldier. 

As a result of my Soldier‘s med-evac out of Iraq, he was closer to home and just 1,224 miles away from Texas. He was at Walter Reed Army Medical Center in Washington, D.C. Also, keep in mind that this was back in April 2007, when many Soldiers were sent to Walter Reed to be treated, resulting in an over-flow of wounded warriors at the medical center. It was a time when the Army was working hard to hire more medical staff and develop new programs to handle the influx. 

I found myself alone navigating the path of finding our new normal. Daily, I called anyone at Walter Reed trying to find answers, but found little support, particularly since I was so far away. The distance and disconnect was a big change for me–and continues to be for a lot of reserve spouses. To put it bluntly, it stunk. The internet quickly became my best friend and I spent hours researching all I could to learn more about Walter Reed and the experience upon which we were about to embark.

I am confident resources are abundant, just hard to find. During this time, I prayed for some group or network to appear, but that prayer wasn’t fully answered–yet. I found that in order to be the warrior my Soldier needed, I had to make my voice be heard. So, I came up with tools to help me survive my impossible ordeal. One cherished tool was my little black book. It was in this small notebook where I would write down every name, phone number, location, unit, title or any other relevant information. In hindsight, I should have put it on a lanyard around my neck, but instead I carried it in my purse. At night, I placed it by my bed just in case a midnight thought needed to be captured.

It wasn’t until two months later in late June 2007 that I first visited my Soldier at Walter Reed. Yes, I know what you are thinking; the time it took to even just visit my Soldier was too long. The system did not see the sense of urgency because of his invisible wounds. However, once I got there it was an impressionable visit. Nevertheless, it was also a visit where my thoughts became even more complicated. Again, so many acronyms and programs, but nothing seemed to fit together. Just when I thought I had answers, 15 more questions would rear their heads!  At night, my tears got the best of me, sometimes all of me.

When tears finally dried, some clarity came. I could see a few noted valuable resources in my black book: The Soldier and Family Assistance Center, the chaplain, the Red Cross, the VA, and local charities such as the Yellow Ribbon Fund and, in Dallas, Operation Healthy Reunions. However, keep in mind that these programs and charity organizations differ by military treatment facility (MTF), so for all those who are going through their own period of transition, search for them on a local level.  Keep looking both locally and nationally for organizations and programs that meet your needs. 

I found that when I was physically at Walter Reed, things were different. It was only after I made my infrequent visits to be with my healing Soldier, that I became visible to the Army. Because of this visibility, I got help and answers to my growing list of questions. However, that did not hold true once I returned to take care of my home front. The old cliché, out of sight and out of mind became a mainstay. Remember, my Soldier was able bodied, his major injury being PTSD, so the Army assumed–without consulting me–that he was fully functional and able to manage his own care. Those who live with PTSD know that this is not the case and it is so far from reality.

Things I thought would happen and that I later asked for, such as reintegration counseling for our Family and marriage, were not being offered.  Even those at Walter Reed didn’t seem to understand the challenges reserve spouses often face. It was always assumed we were active duty and that we had access to active duty programs. This was one of the most frustrating challenges I had to navigate. 

As a result, I had to find help within my local community. However, this can be its own challenge. In a civilian environment it’s tough to find a specialist that understands the challenges faced by reserve spouses and Families who are adjusting to injuries and our new normal. I spent my time at home working to find a connection on my local level and within the Army so that our Family would be included in the healing process. 

One of these connections appeared near the end of our recovery at Walter Reed. This connection was, Robert Lipp, our Army Wounded Warrior Program (AW2) Advocate. Upon meeting him, I asked him, “Where have you been the last two years of my life?” It was a bitter sweet meeting for me. At Walter Reed, my Soldier didn’t qualify for the program because his injuries were invisible and we had no concrete initial rating. After the MEB (medical board evaluation), we were able to qualify to be part of AW2. Ever since, I have seen the amazing support the Army and AW2 provide and how they can improve the lives of wounded warriors and their families.  

I believe that the impossible just means our focus needs to be ever-changing while we journey on our new path. We are now the warrior demonstrating strength, character, loyalty, and determination so we can defeat whatever crosses our path. Our medal will not come in the form of something tangible, but rather something deeper; a pride knowing you have withstood a moment in time that seemed impossible to overcome.

Most of you who are reading this may be aware of the AW2 program. However, we can still be lost during deployments and the early stages of our wounded warriors’ healing. I have searched for groups who specifically support spouses of our Army Reserve and National Guard Soldiers.  Unfortunately, my findings are slim.   

Too many of us are falling through the cracks, but it is important that we never stop fighting. We, as reserve spouses, are full of experiences and stories of survival. Active duty wives have a strong network, so I ask that we work to build our own support network for reserve spouses so that together, we can navigate our impossibilities. This network could possibly be the best gift we can give to each other. Let’s keep sharing our stories. 

We can start today by commenting on AW2’s blog and sharing the helpful organization you’ve found. Start making your voice be heard. We owe it to ourselves, our Families, and our Soldiers.

A Mother’s Perspective: The 2010 AW2 Symposium

By Luana Schneider, AW2 Mother

Luana Scheider (right) witnessed her son Scott Stephenson (left) publicly advocate for burn victims at the 2010 AW2 Symposium

When my son Sgt Scott Stephenson (Ret) and I decided to attend the AW2 2010 Symposium, we were unsure of what to expect. It was a poignant experience. We met so many wonderful people that we hope to have lasting relationships with and now feel a little less alone.

By hearing stories from others and how they deal with the issues that face so many of our wounded Soldiers, we felt we gave and received huge amounts of very useful information. We were also a part of initiating changes that will affect all of our wounded, whether they were in attendance or not.

By hearing all of the issues, not just ours, we were able to better understand what others are facing in their own communities. And the staff and volunteers were so helpful and informative. We could not have asked for a better experience.

My son was also one of the media spokespersons at the AW2 Symposium and was asked to give a live interview at 7:40 in the morning. Now for anyone who knows Scott, that is no time to be getting up. But he really wanted to help support AW2 and be an advocate for all wounded military. We sincerely enjoyed the AW2 Stratcom representatives; they were there prepping us on the proper ways to speak to the media. They were also very interested in Scott’s issues on being a burn patient. Scott equated being a burn patient to “being wrapped in saran wrap–your skin cannot breathe or sweat and you lose the ability to feel the breeze or the light touch of another living being.” This was an analogy that the media seemed to understand well.

It seems when we are outside of the Army, we lose touch with that military camaraderie. Having that for a week was an excellent mental boost for Scott. He returned happier and better equipped for dealing with his issues as well as wanting to be more on the front lines of our own non-profit organization. He blossomed at the symposium. And as a mother, I could not be prouder of him.

Army’s Wounded Give Marching Orders for Five Areas of Improvement

Alexandria, VA—Sixty-five severely wounded Soldiers, Veterans, and their Family members prioritized the top issues facing the Army’s wounded warriors. This year, the delegates at the annual Army Wounded Warrior Program (AW2) Symposium selected five items to be addressed:

  1. Medically retired servicemember’s eligibility for Concurrent Receipt of Disability Pay (CRDP)
  2. Post 9/11 GI Bill transferability to dependents for all medically retired servicemembers
  3. Mandatory post-traumatic stress disorder/traumatic brain injury (PTSD/TBI) training for Veterans Affairs (VA) healthcare staff
  4. Transfer option from Temporary Disability Retired List (TDRL) to Permanent Disability Retired (PDR) for wounded warriors
  5. Benefits and entitlements information to wounded warrior primary caregivers

“The AW2 Symposium is about listening to those who have been through it and learning firsthand about ways we can continue to improve how we care for our most severely wounded, injured, and ill Soldiers, Veterans, and their Families—then take action,” said AW2 Director COL Jim Rice. “These delegates were the voice of the Army’s 7,000 severely wounded Soldiers, and we listen very closely to what they say.”

Issues raised at previous symposiums that have been resolved include expanded facilities to treat TBIs and a stipend for primary caregivers of severely wounded servicemembers to the creation of the AW2 Community Support Network and a $10,000 increase in VA housing benefits.

The final issues were announced at the conclusion of the AW2 Symposium, which took place from June 21-25 in San Antonio, TX. The top issues were chosen from more than 80 topics that were discussed in five focus groups: medical, careers, Family, Soldier support, and VA.

AW2 Symposium delegate and Veteran, Matt Staton, stated, “I can leave this event knowing that my voice, and the voices of the Soldiers I represent, will be heard. The AW2 Symposium is an excellent process for the Army to listen and to improve warrior care. All the delegates leave with the knowledge that a lot of people in the Army are striving to improve the care we wounded warriors receive.”

For the last six years, AW2 has served the most severely wounded, injured, and ill Soldiers, Veterans, and their Families. AW2 assists and advocates for the most severely wounded Soldiers, Veterans, and their Families, wherever they are located, regardless of their military status, for as long as it takes. AW2 is part of the Warrior Transition Command (WTC)—a new one-star command under the U.S. Army Medical Command that serves as the central comprehensive source for warrior care support across the Army. To learn more about AW2, visit www.AW2.army.mil or call 800-237-1336.

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We Are Who We Serve

By Emily Oehler, WTC Stratcom

There are all kinds of approaches to leadership—one that has resonated with me is the “servant leader.” By giving priority and added attention to the needs of their colleagues and those they serve, a servant leader achieves greater results for their organization. They are often seen as humble stewards of their organization’s resources—staff, finances, and physical items.

This week at the annual AW2 Symposium, I was surrounded by them…

  • Allen:  A Soldier who educated other wounded warriors about the benefits of service dogs for PTSD by introducing them to his dog Frankie.
  • Delano:  An AW2 Soldier, and a cute, smaller, more friendly version of Lawrence Taylor, who showed his support of the other wounded warrior’s kids by trying to attend the closing event at Operation Purple camp©—even though high pitched sounds, including kids squeals and laughter, are a key PTSD trigger.
  • Diana:  An AW2 reservist’s wife who fought for years to keep her family and marriage together as they learned how to live a new life due to her husband’s severe injuries, is now turning her attention to be an advocate for other spouses. She plans to share all she learned along her own journey to make things easier for those who follow.
  • Dreyson:  A wounded warrior’s 7-year-old son who knows to dial 911, that loud noises are triggers, and that plans always change due to his dad’s PTSD episodes. This week he supported the AW2 staff as a reporter—using a flip camera to capture AW2 kids at Operation Purple© to help the Army talk about the needs of wounded warrior’s children.
  • Gina:  An AW2 spouse who has involved her community in her husband’s care so that the rock quarry by their house calls 30 minutes before they start drilling so that she can better manage her husband’s PTSD reaction to what he thinks are mortar attacks.
  • James:  A Veteran who’s whole life came crashing down due to severe PTSD, shared his self-doubt, his pain, his anxieties, and his darkness to a room full of reporters in hopes of increasing awareness of the struggles so many other Soldiers and Veterans face. He worried about the fallout of his actions, but put helping others first.
  • Melissa:  An AW2 spouse who described herself as her husband’s “woobie”—a calming influence when his PTSD flairs up. Throughout the week I saw her in action soothing him with a hand squeeze, a strong embracing hug, or a gentle stroke, and kiss of his bald head to bring him back.
  • Tony:  A triple Purple Heart recipient who continues to serve the troops after decades on active duty as an AW2 Advocate.
Melvin Kearney, a retired sergeant and AW2 Advocate, took time out during the week to play with toddlers at the AW2 Symposium as a human jungle gym.

Melvin Kearney, a retired sergeant and AW2 Advocate, took time out during the week to play with toddlers at the AW2 Symposium as a human jungle gym.

All of the 65 delegates were in fact servant leaders—putting the needs of the wounded warriors that will follow ahead of themselves and the ongoing challenges they face every day dealing with severe injuries. It was obvious that what called them to serve in the Army in the first place, was still alive and strong.

For those who are looking for a way to serve your country or lead in your community—I ask you to consider becoming a servant leader…and look for ways you can support those who served in military service. Trust me when I say, they are an amazing group of people to know who will teach you a lot about what it means to lead, sacrifice, and make a difference.

AW2 Kids Make Themselves Heard

By Sarah Greer, WTC Stratcom

AW2 kids sing enjoyed Operation Purple® activities during the 2010 AW2 Symposium.

AW2 kids enjoyed Operation Purple® camp activities during the 2010 AW2 Symposium.

All week, everyone at the hotel wondered about the energetic roar that echoed throughout the lobby each morning and evening.

The staff lit up like clockwork when we heard them. You’d hear people exclaim, “The kids are here!” all throughout the staff workrooms.

Turns out, we were hearing their group cadences. Each age group wrote a cadence, and they sang it as they marched to and from the buses. And to see them, you knew immediately that they were Army kids. Their lines were straight, and every one of them belted out with enthusiasm.

How much fun to watch the AW2 kids’ brief out at the end of Operation Purple®! Here are the cadences they presented at the Thursday night event:

Purple Soldiers (ages 6-9)
Left, left, left, right, left.
Purple Soldiers break the mold
You can search, but you can’t find
An OPC camp better than mine!
For you all I have to say,
Mom and Dad would want to stay.
We only have but one request,
When you see us, no fear no mess.

Then, the Purple Soldiers read an acrostic describing their experience at camp. A couple included:

  • P is for the people we meet that become our friends.
  • E is for the excitement we have at the beginning of each day.

Purple Hearts (ages 10-12) wore combat helmets and looked incredibly tough. They sang:
Hands up! Shake it, shake it.
Hands low! Shake it, shake it.
Turn around! Shake it, shake it.
Touch the ground! Shake it, shake it.
Purple Hearts in the HOUSE!

Twelve Strong (ages 13-17)
Everywhere we go-o
People oughta know
Who we are
So we tell them
We are 12 Strong
Mighty, mighty 12 Strong.

I know I’m not the only staff member who enjoyed getting to know the AW2 kids this week. They brought so much energy and excitement to the Symposium. It was clear that they had so much fun and that they “didn’t miss Mom and Dad at all,” as Lauryn Hume, AW2 kid, told me with a mischievous grin.

AW2 Moms Unite at AW2 Symposium

AW2 Moms Mary Tallouzi and Denise Mettie bond with AW2 Advocate Sue Maloney at the 2010 AW2 Symposium.

By Sarah Greer, WTC Stratcom

There are always surprises at the AW2 Symposium. Today at lunch I met three AW2 moms who made quite an impression on other delegates—they refer to themselves as Larry, Curly, and Moe.

Barbara Appel, Denise Mettie, and Mary Tallouzi all cared for their children—Soldiers who sustained severe injuries in the line of duty. They’d met each other loosely in wounded warrior circles—sometimes in person, sometimes over the phone. All three were surprised to hear each other’s names at the Symposium registration table and even more surprised when they were all assigned to the Family issues focus group.

“It’s always nice going to these events, because you get to meet old friends,” said Denise.

The others nodded emphatically. “It’s easier going through the discussions in our focus group when you know the background of the other group members,” Barbara said.

“It’s also surprising to see the diversity of injuries other Families in our group experienced. I’m really taken by the different Families,” Mary added, noting that all of their warriors had similar experiences.

As we finished our tiramisu, these three ladies taught me a lot about the unique challenges facing caregiver parents—being away from a spouse and other children while the servicemember recovers, missing major Family events, and realizing the emotional impact on the Family’s other children. I also began to understand the value of peer support for caregivers—how much it helps to have someone to talk to about the challenges and frustrations of supporting a son or daughter who becomes a wounded warrior.

“I’d like to see more networking among Families,” said Denise. “Besides my son, there are lots of other severely injured Soldiers in Washington State—I could be a good resource for Families just starting this journey.”

This week is an opportunity to affect change, for these moms and for all the Symposium delegates. They’re working through tough issues and talking about the challenges they’ve faced, and they’re also making recommendations on how the Army can improve warrior care.

But tonight these AW2 moms will let their hair down at the San Antonio Missions baseball game with other Symposium delegates and Families. One word of warning to the rest of the group—don’t get between these three and the fun!

Operation Purple® Camp Helps AW2 Kids Be Kids

By Patty Sands, WTC Stratcom

AW2 kids prove they are Army Strong at Operation Purple® Camp, hosted by NMFA.

I thought I saw a familiar face in the crowd of kids at Operation Purple® Camp—but I paused. It took me a second to recognize that it was my friend’s child! I befriended her mom at the start of the Symposium, and it seemed from the start we were kindred spirits for sure. Why didn’t I recognize this beautiful teenager? She was smiling! The only time I had seen her before she had a serious and mature gaze that was way beyond her years. Her face was beaming today. She and her new friends were giggling about bug bites and music. It was regular stuff for a kid—laser tag, Xbox and eating pizza. But rare for her Family.

Life changed for everyone in her Family when her cousin was injured five years ago. Her mom has stretched her time, money and talents to make all things work. Without a doubt there is great love there, but there is also a profound tiredness from the sacrifice. Just like all the kids here, they have served in their own way and with their own lives as their loved ones recover.

But this week was different—it was all about new friends and connections. The camp is relaxed and fun with friendships and connections weaving through the laughter. They know that while they have fun their parents are here to help the Army make changes to better their lives and the lives of others. It is exciting to know that this group of kids will one day be in leadership positions. They already know about love, duty and sacrifice, and now they are seeing how to work within the system to make changes. The results of this Symposium will be a wonderful legacy for them.

AW2 is Not Just a Job to Me, it is My Life

–By Laura Castillo, AW2 Advocate and Spouse–

Castillo Family Camping This month is a difficult time for my family. It’s the second anniversary of when my husband was injured in Iraq. I remember the phone call I received on June 25th as if it were yesterday—when they told me that my husband’s vehicle was hit by an IED. I was 22 years old, and I thanked God that I was still going to be able to hear his voice again.

When he came home, I was so happy. I was glad that the war was over for us; little did I know that my war had just begun. He was strange. He wasn’t the funny outgoing person he used to be. He used to be the life of the house, now he was serious and distanced. I would try to ask what was wrong, but I “never could understand.” When I helped to tie his shoes because he couldn’t move his arm, he would tell me to get off, because he could do it on his own. To me, it seemed that everything I did to help, was wrong. The biggest mistake that I made was taking it seriously.

I began to get angry at him. I felt that he being home was worthless because I had never felt so alone. At night, we used to lay with each other and watch movies, but now I’d watch the movie and fall asleep alone. He would never sleep. He would be up all night and made so much noise. He didn’t want to go out, and I couldn’t stand being in the same house with him.

When my husband deployed, I made my schedule as busy as possible, so that I wouldn’t miss him as much. I was going to school full time and the kids kept me busy. When he came home early, due to an injury, I was unprepared. I tried to do my homework, but we were always fighting over nothing. I didn’t make it any better because I would fight back. I didn’t think that we needed counseling, and I didn’t want to admit that my family was falling apart. I had too much pride. “I was a newlywed, and it couldn’t be that we didn’t want to be with each other anymore!”

One night, I found my husband crying on the stairs. I gave him a hug and asked what I could do to make it better. I didn’t mind carrying his weight, but he just didn’t let me. Another night, I heard a clicking sound while I was sleeping. When I got up my husband was walking around the house with a loaded gun, because he said there were people in my house. The only ones who were there were my children. That’s when I became afraid.

I didn’t know what made him click. I was afraid that we would turn into those men from the war movies. I began to shut down as a defense mechanism and stayed guarded. Eventually, I couldn’t take it anymore. I called his Commander and had him removed from the house. He stayed at the barracks while I worked and went to school. I was planning on stabilizing myself so that I could take care of my children. It was worse that I was pregnant. I ended up having complications with my pregnancy and had to have an emergency Cesarean. When I came home, my husband left on leave. It was my breaking point. I felt that my life was over. I was 23 years old with three children and a messed up husband. As soon as I got better, I took my kids and left back home to stay with my mom.

I spent a month at my mom’s house. I felt that my husband was still in Iraq, and they sent back the wrong guy. My husband went back to Fort Riley and noticed that I was gone. It gave him enough time to reflect on our marriage and figure out what he wanted for his life. The MEB/PEB [Medical Evaluation Board/Physical Evaluation Board] process was very stressful. The thought of what life had to offer as a civilian was absolutely frightening. How were we going to provide for the children? My husband asked me to come back home. While I was gone, I thought about going to marriage counseling and seeking help from an outside source.

I can’t put in words the pain that I felt inside myself. It was the most horrible experience of my life. I went back to Fort Riley to give it a shot for the kids. We spent a lot of time at the WTU [Warrior Transition Unit]. We learned of the many activities they had for Wounded Soldiers and their families. We began to take part in these activities, such as canoeing and going to the lake. Our first trip was camping. We spent a weekend camping at the lake. We even took the boat out for a ride and went tubing.

It was the first time in a long time that we had so much fun. Today, I have pictures from that weekend up in my living room because it symbolizes our new beginning. We started going to marriage counseling and going to church. We would pray, and my husband would cry at the altar. He said that he felt weak for crying, but to me it made him more of a man. It had come time to let go.

Shortly after, we received his retirement orders stating that we were leaving in two months. This was so scary. Being that we didn’t have jobs, a place to live, and we didn’t have a clear future. We had barely made it through the storm! This is when I utilized AW2 for help. I spent many days at the SFAC [Soldier Family Assistance Center] talking to AW2 Advocate Patty Walker. I worked on my resume and applied for many positions. The Soldiers at the SFAC would play with my kids while I worked on developing a plan with my Advocate. Patty called AW2 and got me an interview for an AW2 Advocate position. She told me that the rest was up to me. I mean really, “Who wants to work at the Bronx?”

I was interviewed, and I prayed and prayed and prayed. We said our goodbyes to our friends at Fort Riley and relocated to New York. We lived with my in laws for a week. Just when I thought I couldn’t take it anymore, an AW2 representative called. “Hello Mrs. Castillo, I would just like you to know that you are hired and I didn’t want for you to go through the weekend without knowing.” I couldn’t thank her enough. When I hung up, I cried and I cried and thanked God for sending me an angel called AW2.

We started looking for apartments and moved in two days before I left for training. While I was at training, I had a great time and learned a lot about AW2, but most importantly I got to know myself again. When I went back home, I quickly got to work and have had such a great experience. AW2 is not just a job to me, it is my life. I owe everything I have accomplished in the past six months to AW2.

So, when I get discouraged I think of being to someone what AW2 has been to me and my family. So, now that June 25th is coming around, I can’t help but to remember that horrible time in our lives, however, it made us stronger and better. I didn’t go to Iraq, but I have fought the war. The strong survived! “Strength is not measured by how many times you fall, but it’s how you get up that counts.”

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Warriors in Transition can submit a blog by e-mailing WarriorCareCommunications [at] conus.army.mil.