Our Mission:
The LAM Foundation urgently seeks safe and effective treatments, and ultimately a cure, for lymphangioleiomyomatosis (LAM) through advocacy and the funding of promising research. We are dedicated to serving the scientific, medical and patient communities by offering information, resources and a worldwide network of hope and support. |
Current News
*Breaking News*
Mouse Model for Lymphangioleiomyomatosis Suggests Potential Treatment Regimen
October 5, 2012
Click here to read this exciting article from LAM Foundation Funded Scientist Elena Goncharova, PhD, research assistant professor of Medicine, and Vera Krymskaya, PhD, associate professor of Medicine, Pulmonary, Allergy, and Critical Care Division at Penn, and member of The LAM Foundation’s Scientific Advisory Board.
LAM Research Conference/LAMposium
Save the date: April 12-14, 2013
CURRENTS - Online Newsletter
September 30, 2012
Click here to view the September issue of CURRENTS.
CURRENTS - Online Newsletter
August 31, 2012
Click here to view the August issues of CURRENTS.
CURRENTS - Online Newsletter
July 31, 2012
Click here to view the July issue of CURRENTS. If you would like to receive communication from us, please register with the Foundation (using the Register Now button in the upper right-hand corner) or send your name and email address to info@thelamfoundation.org.
CURRENTS - Online Newsletter
June 29, 2012
Click here to view the June issue of CURRENTS
CURRENTS - Online Newsletter
May 31, 2012
Click here to view the May issue of CURRENTS
CURRENTS - Online Newsletter
April 30, 2012
Click here to view the April issue of CURRENTS
CURRENTS - Online Newsletter
March 30, 2012
Click here to view the March issue of CURRENTS.
CURRENTS - Online Newsletter
February 28, 2012
Click here to view the February issue of CURRENTS.
CURRENTS - Online Newsletter
January 30, 2012
Click here to view the January issue of CURRENTS.
Air Travel Information
November 1, 2011
Click here to read an article on LAM and air travel.
LAM Presentation at NIH
September 21, 2011
Joel Moss, MD, PhD and Frank McCormack, MD recently gave a presentation at NIH. The presentation called Lymphangioleiomyomatosis (LAM) Molecular Insights Lead to Targeted Therapies and Multicenter International LAM Efficacy of Sirolimus (MILES) Trial was recorded. Click here to watch the video.
Silencing LAM
August 2011
Frank McCormack, MD, LAM Foundation Scientific Director, gave a speech on Silencing LAM at the University of Utah. Click here to watch the video.
Public Advisory Roundtable (PAR) Excellence Award
May 18, 2011
Frank McCormack, MD, LAM Foundation Scientific Director, was presented the PAR Excellence Award during the American Thoracic Society (ATS) Conference on May 18, 2011 in Denver, CO. PAR is a core component of the ATS that represents persons affected by respiratory disease and provides the patient perspective to the ATS. The PAR Excellence Award honors people who have improved the lives of patients by; enabling research and advancing the understanding of disease through legislation, advocacy or philanthropy; performing basic or clinical scientific works that have produced tangible and significant benefits for affected individuals; and providing vision, hope, support or relief to those who live with life-threatening pulmonary illness.
Past recipients of the PAR Excellence Award include: Claude Lenfant, MD, James P. Kiley, BS, MS, PhD, Talmadge E. King, Jr., MD, Steven Groft, Pharm D, Dean Schraufnagel, MD, Sheldon Siegel,MD, Gordon D. Rubenfeld, MD, Margaret S. Herridge, MSc, MD, MPH, Bernadette Gochuico, MD, and Roy Brower, MD.
NORD Award
May 17, 2011
The MILES Research Team led by Frank McCormack, MD, and The LAM Foundation won the Partners in Progress Award. The research team and Foundation were honored for demonstrating how effective partnership between scientific researchers and the patient community can drive progress in better understanding of rare diseases and possible treatments.
Dr. Frank McCormack Presents MILES Trial Results
April 8, 2011
Click here to listen to Dr. McCormack's presentation. It is a big file so be patient.
New England Journal of Medicine (NEJM) Publishes MILES Trial Results
March 16, 2011
Click here for the NEJM Full Article
The LAM Foundation and Trial Participants Featured in NEJM Editorial
Click here for the NEJM Editorial
Click here for MILES FAQs.
VEGF-D Blood-based Diagnostic Test for LAM
VEGF-D testing is done in a clinical lab at Cincinnati Children’s Hospital Medical Center. To obtain a VEGF-D test please click here and choose “VEGF-D Quantification Sample Submission Form" (under Request Forms on the left-hand side).
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