A Mother’s Perspective: The 2010 AW2 Symposium

By Luana Schneider, AW2 Mother

Luana Scheider (right) witnessed her son Scott Stephenson (left) publicly advocate for burn victims at the 2010 AW2 Symposium

When my son Sgt Scott Stephenson (Ret) and I decided to attend the AW2 2010 Symposium, we were unsure of what to expect. It was a poignant experience. We met so many wonderful people that we hope to have lasting relationships with and now feel a little less alone.

By hearing stories from others and how they deal with the issues that face so many of our wounded Soldiers, we felt we gave and received huge amounts of very useful information. We were also a part of initiating changes that will affect all of our wounded, whether they were in attendance or not.

By hearing all of the issues, not just ours, we were able to better understand what others are facing in their own communities. And the staff and volunteers were so helpful and informative. We could not have asked for a better experience.

My son was also one of the media spokespersons at the AW2 Symposium and was asked to give a live interview at 7:40 in the morning. Now for anyone who knows Scott, that is no time to be getting up. But he really wanted to help support AW2 and be an advocate for all wounded military. We sincerely enjoyed the AW2 Stratcom representatives; they were there prepping us on the proper ways to speak to the media. They were also very interested in Scott’s issues on being a burn patient. Scott equated being a burn patient to “being wrapped in saran wrap–your skin cannot breathe or sweat and you lose the ability to feel the breeze or the light touch of another living being.” This was an analogy that the media seemed to understand well.

It seems when we are outside of the Army, we lose touch with that military camaraderie. Having that for a week was an excellent mental boost for Scott. He returned happier and better equipped for dealing with his issues as well as wanting to be more on the front lines of our own non-profit organization. He blossomed at the symposium. And as a mother, I could not be prouder of him.

The Flag

By COL Jim Rice, AW2 Director

COL Rice stands for the pledge of allegiance during an AW2 Symposium event.


As I was out running this week, I noticed the display of more and more flags in the neighborhood. Large ones on front porches. Small ones even lined the
borders of a few yards. I love seeing the proud display of the American Flag.

Perhaps it was spending a week with wounded warrior’s kids last week at the AW2 Symposium, but seeing all the flags out in preparation for July 4th made me think about saying the pledge of allegiance each day in school. “I pledge allegiance to the Flag of the United States of America, and to the Republic for which it stands, one Nation under God, indivisible, with liberty and justice for all.” Hand on heart, eyes on flag, all in unison.

Our flag makes a powerful statement. Where ever it is, there is freedom—or the fight for it.

Currently, each Soldier wears a flag patch on their uniform—which I often get asked about because it looks as though it’s backwards. But rather, it’s to appear that the flag is flying in the breeze as the Soldier moves forward. This dates back to when both mounted cavalry and infantry units would designate a standard bearer, who carried the flag into battle. The Soldier’s forward momentum caused the flag to stream back. For me, this patch represents the Army’s “forward lean” in fighting and protecting the freedoms represented by our flag. It’s a patch I am proud to wear.

During the holiday weekend, I’m sure even more flags will be on display and raised proudly in parades. I encourage everyone to take a moment to really stop and think about all that the United States flag represents, and to say a prayer for those who defend it.

Stories Offer a Glimpse into Life Post Injury

Retired CW3 James Hume talks about life with PTSD.

Emily Oehler, WTC Stratcom

This morning, I had the honor of listening to three people tell their personal story. While each story was unique, heartfelt and powerful—they all showed the full impact of a life with a severe injury, and the impact on the Family. I was in awe as retired Chief Warrant Officer James Hume, Army spouse Gina Hill and retired Sergeant Scott Stephenson shared their stories at the Army Wounded Warrior Program’s (AW2) Symposium.

As I watched James speak, he looked like corporate America—dark suit, clean cut, distinguished. Actually, he looked a lot like actor Bill Pullman who played the president in Will Smith’s Independence Day. Watching him, it was hard to connect what he was saying to his calm, poised demeanor. James suffers from PTSD and mild TBI. Although he received treatment at the combat stress unit in Balad, Iraq, cognitive behavior training at Walter Reed, and coping skills therapy through the Veterans Administration, it wasn’t until he returned home that it all really hit him.

“I returned home, my Family and I were hit hard with the symptoms of PTSD. My condition got worse in my new environment and over the following six months my situation deteriorated to a crisis mode. As a result, I was admitted to the Dallas VA for two weeks to stabilize my condition with medications. About three months later, I was admitted to a seven week inpatient PTSD program at the Waco, Texas VA. It was there, for once, I finally received what I call a well rounded education on PTSD. I was able to process my traumas, recognize triggers, and attempt to alter my behavior. This awareness does not cure PTSD but is intended to improve the quality of life for the Veteran and that also translates to the Family. My wife Diana and I feel awareness, education, and treatment should be extended to the Family members for they are an integral part of the Family dynamics and in many cases Family is all you have left.”

A Marine and Army reservist for nearly 30 years, James served in the Persian Gulf War and volunteered to deploy to Iraq with an ordinance unit. In Iraq he went on missions for route clearance and foot patrols throughout the villages which exposed him to multiple IEDs, mortar and rocket fire and resulted in life-altering injuries.

“This is not the person I use to be. I even avoid people that knew me before so they do not know me now. I try to protect a reputation that is now masked behind incompetence. As a reserve Soldier, this impacted not only my military career but also my civilian career and almost cost me my Family. I have worked hard with coping mechanisms but they also have limits. I can’t respectfully articulate what it is like to live with PTSD. The closest I can come is to imagine your mind is no longer your mind, your life is no longer your life, your dreams are no longer your dreams, you’re not the husband your wife deserves, you’re not the father your children deserve, you’re not the friend your friends deserve, you’re not a contributor to society but rather you view yourself as a burden. To simplify, imagine a life with a broken spirit. This may seem extreme to a normal person but it is normal for a person with PTSD.”

SGT Allen Hill’s wife Gina added that, “While the majority of Allen’s physical, or visible, wounds have healed, our Family still struggles daily with the psychological wounds. Often times, these are called the invisible wounds, but I have a hard time calling them that, for they are very visible to anyone who spends any amount of time with him.”

Gina then spoke about the impact of her husband’s TBI and PTSD on their Family. “These psychological wounds greatly affect not only the Soldier, but the entire Family. My husband’s triggers are now triggers for myself as well as our children. In the rare times we are away from my husband, we are constantly on high alert for his triggers. It is next to impossible for us to turn that off. Our kids have had to become caregiver’s for their dad instead of just being kids. They are well rehearsed in PTSD, calling 911, and explaining why their dad has a service dog, why he isn’t at many of their events, and why he sometimes acts really weird. They also have to understand that plans are never set in stone and are always contingent on their dad’s current mental state.”

She added that, “The struggles I face specifically as a spouse of a warrior suffering with PTSD are many as well. It is difficult watching the person you love fighting to get back to the person they were before war because they do remember what they used to be like, they just can’t figure out how to get back to that person. We have worked very hard to focus on the best he can be now, not who he was. Every part of him is different and when I say every, I mean every. With that being said, it is extremely difficult being married to someone who is completely different than when you married him. There are times that I see glimpses of the man I married, but they are few and far between.”

Her husband commented, “I wish I could get back to the old me for my Family’s sake, my wife’s sake. I know they long for the person I used to be.”

The life-long challenges retired SGT Scott Stephenson talked about were more physical. As a SAW gunner, he experienced third and fourth degree burns over 66 percent of his body and the amputation of his left foot as a result of an IED explosion. “I was sent to Brooke Army Medical Center in San Antonio where I received the best possible care and treatment. My treatment has been a long, hard road, and is still ongoing. Trying to describe living with burns is tough, and the best explanation I can come up with is, it’s like living with most of your body wrapped in air-tight saran wrap. I can’t feel the breeze on my skin.”

With all their challenges, each Family continues to serve and give back through nonprofits they’ve started, those they volunteer with, and through the stories they share so that other wounded Soldiers, Veterans, and Families know they are not alone.

Delegates Meet Key Resources at Symposium

AW2 Symposium delegates James and Diana Hume meet with representatives of the San Antonio Vet Center at AW2's Community Support Exhibit Hall.

By Sarah Greer, WTC Stratcom

There’s so much energy in the Community Support Exhibit Hall here at the AW2 Symposium. Delegates are learning about valuable resources provided by the 23 organizations attending.

I got a chance to talk to most of the exhibitors today, and their enthusiasm was contagious. So many had stories to share about their work with wounded warriors and Families—and their plans to expand to serve even more Soldiers and Veterans. These organizations are an incredible example of the commitment and compassion that thousands of organizations exhibit toward America’s wounded warriors every single day.

The organizations at this year’s Community Support Exhibit Hall include:

* Denotes organizations in the AW2 Community Support Network

Three years ago, Symposium delegates asked AW2 to help them learn more about the resources available to AW2 Soldiers, Veterans, and Families. In response, AW2 launched the AW2 Community Support Network in 2009 to increase local community support for wounded warriors to assist in their reintegration and long-term success.

The appearance of external hyperlinks does not constitute endorsement by the United States Department of Defense of the linked web sites, or the information, products or services contained therein. For other than authorized activities such as military exchanges and Morale, Welfare and Recreation (MWR) sites, the United States Department of Defense does not exercise any editorial control over the information you may find at these locations.

Army Gathers Recommendations for Improvements

Veteran Carlos Labarca-Cruz and his Family

Veteran Carlos Labarca-Cruz and his Family traveled from Puerto Rico to attend the 2010 AW2 Symposium in San Antonio, Texas.

By COL Jim Rice, AW2 Director

For the sixth year in a row, AW2 is bringing in more than 65 delegates—severely wounded, injured and ill Soldiers, Veterans and their spouse/caregiver—to identify the top issues facing this population and recommend improvements. While delegates are hard at work, their children will participate in Operation Purple®, an urban adventure camp hosted by the National Military Family Association.

I look forward to this event every year. Not only does it keep AW2 focused on what is important to the Army’s wounded warriors, but it unites Soldiers and Veterans together—as well as their Families. This afternoon I saw a Soldier, two Veterans, two wives and a mom all talking in a group about their challenges and their accomplishments. There were tears but also much laughter in describing the adventure that comes with being a wounded warrior.

I look around and see amputees showing off new prosthetics. I overhear wives talking with other wives about the organizations where they got local help. I hear Veterans talking about life with PTSD—comparing symptoms. I see anxiety on a parent’s face when they talk about the stress of the injury on their kids, as well as relief when they talk to an organization in our Community Support Network. I see folks connecting with their greater Army Family—learning they are not alone. It’s a powerful week for all involved.

I think delegate spouse Regina Hill summed it up best when she told me, “Participating in the AW2 Symposium is very important for us for many reasons. It helps us heal by sharing our story, as well as giving us the sense of helping make this road better for other Families facing similar situations. Allen and I both feel that if we don’t share our own story, we can’t expect for things to get fixed that we have struggled with throughout this journey. We hope that by sharing our personal struggles and accomplishments, we will shed light on some things that need fixed and share the blessings we have received that others may not know about.”

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