CEDR - Comprehensive Epidemiologic Data Resource
CEDR Operations are now located at the Oak Ridge Institute for Science and Education (ORISE) and can be accessed on the Web. Please direct any inquiries to the CEDR program contact listed below.
Operating as a public-use data repository, CEDR is a prime example of the Department's commitment to worker and community health programs. The internet presence and capabilities of CEDR facilitate the sharing of information and de-identified data collected during DOE-supported epidemiologic, environmental, and related health studies.
The CEDR website is visited hundreds of times each day, and about 1500 websites, including hundreds of university or governmental Web sites, have links to CEDR. This further leverages DOE's investment in health-related data already collected at public expense by maximizing the utilization of these data on a worldwide scale. De-identified study data are incorporated into CEDR as soon as studies are completed, and researchers have provided files and documentation.
CEDR's large collection primarily pertains to occupational epidemiologic studies conducted at many nuclear weapons plants, such as Hanford, Los Alamos, Oak Ridge, Rocky Flats, and Savannah River. They include working and analytic data from cohort and case-control design studies, many of which have individual-level radiation exposure measurements. These valuable data have many possibilities for future research exploration. Additionally, CEDR presents data from studies of past DOE releases of hazardous materials that entered the environment of nearby communities, as well as data from classic studies of radiation health effects, such as the radium dial painters. The sharing of these data, at no cost to the user, encourages independent scientific inquiry and diversity of analyses. A CEDR catalog can be viewed or downloaded from https://www.orau.gov/cedr.
CEDR's collection also includes a repository of de-identified data from DOE's Former Worker Medical Screening Program (FWP). FWP funds external teams of health experts to independently offer medical screening to former workers who may be at significant risk for occupational diseases. De-identified FWP data are incorporated into CEDR in an effort to archive verified health observations of former DOE workers.
Accomplishments: The following accomplishments illustrate CEDR achieving its goal of serving as a public-use data repository that recognizes the public's right to know about worker and community health risks. DOE continues its commitment to openness and encourages scientific study to clarify the potential relationship of both past and present DOE activities and the health of its workforce, as well as the population of its host communities.
- On June 30, 2010, CEDR operations were relocated to ORISE. ORISE continues to maintain CEDR's Web presence and offers online service to an average of 500 visits a day - making CEDR a prime example of "expanded electronic government.
- CEDR "authorized" user account information and data are protected by the Federal Information Security Management Act (FISMA) and the National Institute of Standards and Technology (NIST) 800-53, state-of-the-art governmental cyber-security laws that ensure CEDR data is secure, trustworthy, and resilient.
- CEDR staff incorporate data file sets within 30 days of their being submitted with all proper documentation.
- New data sets are promptly announced on the CEDR homepage located at https://www.orau.gov/cedr, making these data extremely visible to the public, academia, and the occupational health community. CEDR has now delivered more than 30,000,000 data records to its authorized users since 2001.
- Recent additions to CEDR include a large data file set relating to the Savannah River Mortality Study, the Multiple Myeloma at K-25 Study, and the Multisite Leukemia Study.
- CEDR data, especially the de-identified dosimetry and work history information, is of considerable interest to researchers involved in activities for the Energy Employees Occupational Illness Compensation Program Act (EEOICPA) and for the Department of Veterans Affairs.
Program Manager: Clifton H. Strader
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